New Member

[Guest guest]

Sam

Thanks I will try it.

Marcos

[Guest guest]

Marcos, I think the group will tell you that failure to control your

carb intake is why you are on insulin, and any excess weight makes it

much worse. So the rules are adjust your insulin from your sugar

readings, fixed insulin doses are counterproductive. As I lowered my

fat intake seriously my insulin requirements fell dramatically in a

matter of weeks, I was able to go back on micronase/ diiabeta/glyburide

single 2.5 mg pill in the morning. I lost weight and started having low

sugars after 8 months, went to a half pill, in a month I was forced to

diet only.

Recently I had not been testing and gained weight from fat, and was 130

fasting, and very carb sensitive. I cut back drastically and my morning

fastings fell to 100, then 86, 86, 76 today.

In explanation carbohydrates are made of chains of glucose molecules and

readily digest to blood glucose. sugars are a few molecules joined in

various ways, starches are longer chains, and fiber even longer and

digestible onlyby ruminant animals.

You have been lead down the ADA garden path of more medication and loss

of control. Sam 72, diet only.

[Guest guest]

Hi Marcoss,

Welcome to our group

A lot of doctors are just now beginning to recognise low carbing as

beneficial. I'd suggest you read either " Protein Power " , Dr Atkins' " New

Diet Revolution " , or Dr Bernstein's " Diabetes Solution " . They are all low

carb and explain the relationship between diabetes and high carbs.

Meenie

--

[Guest guest]

Marcos, I juist dropped 16 pounds by severely restricting fat, at the

same time maintaining low carbohydrates (sugars and starches).

I got my fasting sugar from 130 to 100 overnight by restricting carbs

seriously, and is now 80. Sam

[Guest guest]

In a message dated 08/04/00 12:44:59 AM Eastern Daylight Time,

designnut@... writes:

<< Marcos, I just dropped 16 pounds by severely restricting fat, at the

same time maintaining low carbohydrates (sugars and starches).

I got my fasting sugar from 130 to 100 overnight by restricting carbs

seriously, and is now 80. Sam >>

Sam:

I started with the low carbohydrates diet yesterday, lets see how it goes.

Thanks

Marcos

[Guest guest]

Hi, list:

Today we welcome a new member: Dionn. There is no public profile so I

don't know if this is a name or just an Email name.

Dionn we hope to meet you and help you if you'll just talk to us.

The diabetes one-doesn't-fit-all family!!

-moderator

[Guest guest]

Not to be funny.. but you have 2 things working against you.

1. The sugar up and down will definitely drive a person's moods. I have my mood swings as well. We all do. And my sugar changes do not help. There are times I feel so out of it, I don't know where I am.

..

2. You are entering into a relationship that is difficult for all young couples. Even couples with no medical issues have difficulties. It sounds like you are trying to work together.

Good luck and happy life,

Jim

New member

Hi everyone. I am a new member to this egroup and Ijust wanted to ask if there were any people out therewho live with a diabetic. My fiancee has had diabetesfor about 14 years now, she's 24. We have had ourshare of sugars in the 30's and up to as high as 515(that was last week). The main reason why I'm writing is to find out howothers who live with diabetics deal with them. Iunderstand how hard it is for diabetics, taking shots,watching what to eat, etc. but I think it's just ashard for people living with them. I know that I'vechanged my diet tremendously since moving in together.But how do you deal with someone who's having a lowsugar or having a high one? Their moods can swinggreat amounts in a short amount of time. I have a hardtime dealing with her when she gets very angry with meand she uses, "well it's my sugar". That hurts mebecause I'm angry, yet I don't have a right to be.Is there anyone out there that feels this way?Thanks,Chris__________________________________________________

[Guest guest]

Hi

You pose some terrific questions as a person living with someone else with

diabetes. Its wonderful that you can be so open with your feelings,

something that can be hard for people living with this.

It can certainly be hard having and living with those mood swings. Is your

fiance having difficulty controlling her diabetes? Big swings in bg's can

indeed play havoc with your emotions.

I hope you both realize that she and she alone is responsible for control.

I don't say that to sound mean, and I know you want to help her which is

wonderful and commendable. I do many things to help my husband and he for

me, but I am ultimately responsible for my bg's . If my bg's get wacko

(which hasn't happened for a long time) I try to recognise that. If I start

to feel bad, or in a bad mood, I immediately check my bg. And I let my

husband know if my bg's are out of whack so he knows my reactions may be

off.

Remember young women tend to have big mood swings anyway. Our hormone

levels swing all over the place during our monthly cycles and some people

have more trouble with that than others. We all need to learn to listen to

our bodies , recognize where moods are coming from and work on them. This

is something we learn from experience. Its something else we have to learn

to control and it isn't easy.

I think its wonderful you want to be able to help and wish you both luck .

Love can conquor all If you keep that in your hearts it will all be

fine.

Meenie

> Hi everyone. I am a new member to this egroup and I

> just wanted to ask if there were any people out there

> who live with a diabetic. My fiancee has had diabetes

> for about 14 years now, she's 24. We have had our

> share of sugars in the 30's and up to as high as 515

> (that was last week).

>

> The main reason why I'm writing is to find out how

> others who live with diabetics deal with them. I

> understand how hard it is for diabetics, taking shots,

> watching what to eat, etc. but I think it's just as

> hard for people living with them. I know that I've

> changed my diet tremendously since moving in together.

> But how do you deal with someone who's having a low

> sugar or having a high one? Their moods can swing

> great amounts in a short amount of time. I have a hard

> time dealing with her when she gets very angry with me

> and she uses, " well it's my sugar " . That hurts me

> because I'm angry, yet I don't have a right to be.

>

> Is there anyone out there that feels this way?

>

> Thanks,

> Chris

>

>

> __________________________________________________

>

[Guest guest]

Hi --

I'm on the opposite end of the spectrum. The man I've loved for almost

thirty years found out earlier this year that he's diabetic. He, too, is

having more moods than he ever has before both because of the bg's and

because of the stress of trying to be in control of food consumption,

something that has always been a challenge for both of us.

Actually, what Meenie said about a woman's monthly cycles has helped me

understand my husband's bg responses. For years, I pretended that I wasn't

effected by hormones and had disastrous clashes with people I cared about.

When I finally started taking account of my own physical chemistry, I started

paying attention to my intense moods and asking whether they were warranted

by the situation or whether they might be exaggerated because of hormones.

If the answer is B, I try to do one of two things. Either, back off and just

be alone for a while to try to let things settle out. Or advise the person

I'm having the conversation/confrontation with that I'm feeling a little

intense (or down) today and everything I say should be filtered through that

prism.

I can't always get ahead of my own moods and I don't expect my husband to

either. But it does help to at least think about what part of an argument is

related to body chemistry.

Just as an aside, you are entitled to be angry sometimes regardless of

whether your " blood sugar made you do it. " Living with another human being

isn't easy, and both parties are entitled to strong emotion. The question is

what you do with that emotion. Depending on the situation, you may want to

burn it off in exercise, express it (kindly, if at all possible :-), write it

down in a journal, bring it to this group. You get the idea. The point is

that your emotions are every bit as legitimate as hers.

Good luck with all this. I'm finding that diabetes has made me think through

(again) the ways in which my husband and I are a unit and the ways in which

we are individuals. It's a ongoing question and I, for one, will be

interested in any other insights you might have.

Carolyn, spouse of type II, diagnosed January, 2000

[Guest guest]

Hi Nadia welcome to the group you had your MS at an early age did you find having MS to be rough as a teenager? I don't know all that much about Canada does your country offer any kind of Social Security assistant? I am glad we have it here in the USA I paid into it for over 20 years and now I am able to make use of it. I am 42 with a great wife name Judy and we have 2 boy's 6 & 14. I still am not ready to retire at 42 but my MS gave me no choice in Aug of 99.

Welcome to the group

Bill

http://home.insightbb.com/~msdiabetes/default.htm

new member

Hi there,My name is and I'm a Canadian living in the Middle East. I've been lurking around for a few days and am happy to find such a positive, interesting list.

What state of country are you in?Saudi Arabia-but from Canada (Quebec) How long have you had MS? I've had symptoms since I was 18 (8 years) Diagnosed 3 years ago. What meds do you take for your MS?None-I'm pregnant so had to stop taking neurontin. Interferons are too expensive and almost not available in this country. What kind of troubles do you have with your MS? tingling in extremities, optical neuritis, shaking hands, balance problems, slurred speech, fatigue Are you still working a job?kinda If you still work does the MS make your job performance poor? I've had to quit yet another job (as a teacher) because of a bout of optical neuritis. Now that I'm pregnant, I'm just taking it easy and staying home. I give private tuition to earn a little money. Did getting MS force you to quit a job?Yes it has, indirectly

Are you on disability through Social Security? I was when I was in Canada Are you trying to get Social Security? no What other health condition do you have besides MS?type 1 diabetes (thanks to the steroids)

Do you get good family support to help you with your MS? not really If you are on disability what kind of things do you do to keep your self busy?Origami, sewing, internet , writing newspaper articles when assignments are available Add your own personal info I'm married and 5 months pregnant with what will hopefull.y be my first child. I enjoy living out here but as you can imagine, the heat can really get to you here. Thank God for air-conditioners!

[Guest guest]

Hi Bill and thanks for the welcome.

I think the worst of this roller coaster is when it takes so long to get

a diagnosis and the docs start thinking that it's " in your

head " . I was blinded for four years from optical neuritis and not a

thing was done before that because they didn't know the cause! Thank God

I'm not crazy! LOL

There is social assistance in Canada and the program for the disabled is

a pretty good one. However, I'm not in Canada now (Saudi Arabia) so it's

not very useful. Unlike the program in the US, you don't have to

" pay into it " in Canada. You are eligible based solely on your

civil status (ie..-are you still dependant on your parents?) and the

doctor's assessment. They don't take previous work " quarters "

into account.

My husband works and I squeak by with some part-time work. I can

handle two or three hours of work at a time without too much trouble (I

just crash into bed once I get home). My fatigue has been worse lately

but with the heat and this pregnancy, it's hard to say what the real

cause is.

At 09:41 PM 7/7/2004, you wrote:

Hi Nadia welcome to the group you had your MS at an

early age did you find having MS to be rough as a teenager? I don't know

all that much about Canada does your country offer any kind of Social

Security assistant? I am glad we have it here in the USA I paid into it

for over 20 years and now I am able to make use of it. I am 42 with a

great wife name Judy and we have 2 boy's 6 & 14. I still am not ready

to retire at 42 but my MS gave me no choice in Aug of 99.

Welcome to the group

Bill

http://home.insightbb.com/~msdiabetes/default.htm

new member

Hi there,

My name is and I'm a Canadian living in the Middle East. I've been lurking around for a few days and am happy to find such a positive, interesting list.

What state of country are you in?

Saudi Arabia-but from Canada (Quebec)

How long have you had MS?

I've had symptoms since I was 18 (8 years) Diagnosed 3 years ago.

What meds do you take for your MS?

None-I'm pregnant so had to stop taking neurontin. Interferons are too expensive and almost not available in this country.

What kind of troubles do you have with your MS?

tingling in extremities, optical neuritis, shaking hands, balance problems, slurred speech, fatigue

Are you still working a job?

kinda

If you still work does the MS make your job performance poor?

I've had to quit yet another job (as a teacher) because of a bout of optical neuritis. Now that I'm pregnant, I'm just taking it easy and staying home. I give private tuition to earn a little money.

Did getting MS force you to quit a job?

Yes it has, indirectly

Are you on disability through Social Security?

I was when I was in Canada

Are you trying to get Social Security?

no

What other health condition do you have besides MS?

type 1 diabetes (thanks to the steroids)

Do you get good family support to help you with your MS?

not really

If you are on disability what kind of things do you do to keep your self busy?

Origami, sewing, internet , writing newspaper articles when assignments are available

Add your own personal info

I'm married and 5 months pregnant with what will hopefull.y be my first child. I enjoy living out here but as you can imagine, the heat can really get to you here. Thank God for air-conditioners!

[Guest guest]

Hi ,

I don't think anyone would mind, the more we all learn the better, welcome

Regards,

Tom

New Member

>

> Hi, I am an occupational therapy student at KUMed. I was given an

> assignment to join a listserv, and want to learn more about MS. I

> was wondering if it is alright with everyone that I sign in and learn

> more about MS. Sincerely,

>

>

>

>

>

>

[Guest guest]

Hi I think many in the group wished that neurologist would join discussion groups so they can learn more about the disease they treat us all with so they will know what we go through on a daily basis.

My name is Bill and I haver had my MS now since Aug of 99 and am on disability because of it. You will learn MS treats everyone differently.

Here is my personal web page you can learn more about my MS.

http://home.insightbb.com/~msdiabetes/

Bill

New Member

Hi, I am an occupational therapy student at KUMed. I was given an assignment to join a listserv, and want to learn more about MS. I was wondering if it is alright with everyone that I sign in and learn more about MS. Sincerely,

[Guest guest]

Hi Donna,

You sound like a true animal lover. ) My youngest son, (14), said he wants to take our property someday and make it a rescue for animals. That or move to Japan. I'll pull for the animal rescue. LOL As long as I'm not doing the clean up. LOL

After moving here we seemed to be the place for wandering animals to find. We moved here with our cat, Po. We quickly brought two puppies home. Things have changed a lot since those first months. LOL Po soon had a litter, which we wanted very much considering where we live and the mice population. <gg> One day we heard meowing from the utility closet and I went to let the cat out, sure the boys had shut one in. Out popped a cat I'd never seen before. It happened again a few days later. LOL My husband, who was working weeks 3½ hours away, came home and closed whatever hole there was. LOL Dogs and cats came by, though not all remain, and eventually my husband asked me to please not take anymore animals in, and that he was sure he'd come home to a beaver and five raccoons one day. LOL

Currently, we do have five dogs out back who are looking for homes. And we have four cats indoors who are fat and happy where they are. LOL said he'd like a bird, but I'm afraid our kitties would, too. LOL

Challis

To answer some questions, I have a blck lab and agolden retriever. The lab is the only animal that Ibought and the rest are all strays, even thecockatiel. A former boss of mine caught her flyingaround in March in Wisconsin. Needless to say, she wasalmost a goner. She's fine now though, other thanbeing extremely hand shy. Now if only I can get her tostop laying eggs! She's laid 11 eggs the last 2springs now. I heard I should take it as a complimentas birds only lay eggs if they are happy but I'mworried about her getting 'egg-bound' and dying on me.My lab just turned 9 and I think my golden is about 7.I miss having a turtle (mine passed) and mice and rats(they all passed as well) but it's too much work formy friends when I'm not doing well. Someday I'd still like to open a rehab for animals andpeople. My background is in psychology and I loveanimals (I'm a vegetarian) and there have been greatpilot studies done that prove that working withanimals has great results with the disabled, elderly,criminals, inner city kids, abused children, etc. Ifigure it'd be wonderful to have a sanctuary forabused, neglected, unwanted animals and have peoplefrom the above listed groups to help with taking careof them. Someday maybe.Bill, I can sympathize with the sudden onset of thisdisease. It came on hard and quick for me. It was verydifficult in the beginning as I was just applying tograd school and was being prepped for a majorpromotion at my job. That was my dream job. I wasworking with people diagnosed as schizophrenics,bipolar, schizoaffective, ptsd, multiplepersonalities, etc that were just being released fromprison, jail, mental hospitals/jails, etc. It wasexactly what I was looking for as far as being likeschool but getting paid for it. My boss says that ifI'm ever able, he'll take me back in a minute. Butit's extremely stressful and we all know how that canbe bad for M.S. I guess I'll just approach this like everything else.Asking myself what am I supposed to learn from this? Ifind that taking that perspective keeps me motivated.I look forward to learning about all of you as well.Be well,DonnaI have to add that this seems like a much less ficklegroup than some of the other ms yahoo groups.

[Guest guest]

Hi ,

I think education is a good thing. I am happy you are here. Please ask lots of questions. I had no idea what MS was before last march when I heard it mentioned in the emergency room when I was there because I felt completely detached from my body and thought I might lose consciousness and lost all ability to function normally.

Patti

Hi ... welcome. )

Was MS assigned or did your interest come on it's own?

Challis

>Hi, I am an occupational therapy student at KUMed. I was given an

>assignment to join a listserv, and want to learn more about MS. I

>was wondering if it is alright with everyone that I sign in and learn

>more about MS. Sincerely,

[Guest guest]

,

We have not heard any more that I remember and I was wondering if you have learnt anything? Is this group what you were expecting? Is there anything that you would like to have discussed?

Lynn (Moderator/Helper)wishing you and yoursLove and Happiness;Flowers and Butterflies

New Member

Hi, I am an occupational therapy student at KUMed. I was given an assignment to join a listserv, and want to learn more about MS. I was wondering if it is alright with everyone that I sign in and learn more about MS. Sincerely,

[Guest guest]

Greetings:I am a 57 year old male. Before treatments, PSA 33; Gleason 9-10. I started with Zoladex (3 mo.) and after 3 months added Casodex 50mg due to PSA of 10. Then 4 months in, started IMRT Low-dose radiation (28 sessions), which I just finished. In April will be doing two sessions of High-dose RT with temporary brachtheraphy. CT and Bone scan appeared clean.I am lucky my doctors agree with my treatment course and hope it stays that way.Gregg

Hi Gregg,

How long have you been on the hormone therapy? Is your PSA

undetectable? If so, for how long?

With a PSA of 33 and a Gleason of 9-10, you probably had

systemic disease. In that case, local treatment such as

HDR will not be curative.

If it were me, I would stay on the Zoladex and Casodex for at

least 13 months. I would also add proscar to the mix. If my

PSA went to undetectable and stayed there for at least three

months, I would then go off the Zoladex and Casodex and

just stay on the proscar as maintenance. I would monitor my

PSA closely and if it started up again, I would go back on

the Zoladex and Casodex.

You should be aware that a CT and Bone scan may not show

any micrometastases.

I wish you all the bestAubrey Pilgrim, DC (Ret.)Author of A Revolutionary Approach to Prostate Cancer-Read the original book for free at: www.prostatepointers.org/prostate/lay/apilgrimRead the new edition for free at:www.prostate-help.org/cabooks.htmDr. E. Crawford is co-author of the revision

[Guest guest]

Aunt B nice to have you here, I take neurontin because I don't sleep

otherwise...I have been getting lots of sun with no problem...Everyone is

different, do you take Vit D3 and Vit A??, my doc said that it was the key for

tolerating sun and it has worked for me.

Debi

>

> My name is Bev, but, most call me AuntB. I am 68, live in N.W. Ohio in a

senior complex.

> I started Nurontin last fall, but, since it has been nice out, I have now

acquired a horrible allergic reaction to the sun. Every inch of me that has been

exposed to the sun, which at my age isn't a lot...TG...lol....looks like I have

been rolling around in poison ivy. I itch so bad I want to just cut the skin

off. I use a hairbrush on it sometimes.

> So, I am now looking for something else that I can use. I used to be on

amatryptoline for the fibro and put on a LOT of weight. I have been looking into

5HTP...anyone know anything about that?

> I am desperate. I can't even step out to get my mail (

>

> Have a great day )

> AuntB

> Invest in the life of a Lakota child!

> http://FriendsofPineRidgeReservation.org

> MySpace

> http://www.myspace.com/auntbstuff2c

> My Patterns

> http://groups.yahoo.com/group/abpatterns/

>

>

>

[Guest guest]

I just happen to read your post and just thought I would suggest Benadryl for

the itching and Aveeno soap or soak whichever you want for the itching and the

redness and if you don't mind the smell of vinegar (apple cider) and if it

doesn't burn, you can try it in a small area first, but it is very healing and

moisturizing or you can get some Aloe Vera gel and put it on, but any of these

you use don't rub just dab it on. And let me know how it gets if you want. I

have Fibromyalgia and all that goes with it, it is bad and I do not take any of

those medicines they say will help it thay are all bad and will just make you

sick in other ways, I take things from the health food store and it took me

about 2 yrs by trial and error to figure out what helped, everyone is different,

but if I don't take my supplements for a couple of days the PAIN comes 100 fold,

so I know they work. These are just my suggestions but everyone's opinion is

different. I am 60 and live in Okla. City, Okla. I have suffered with all the

terrible things Fibro does to a person for about 20 yrs.

Shirley

My name is Bev, but, most call me AuntB. I am 68, live in N.W. Ohio in a

senior complex.

I started Nurontin last fall, but, since it has been nice out, I have now

acquired a horrible allergic reaction to the sun. Every inch of me that has been

exposed to the sun, which at my age isn't a lot...TG...lol....looks like I have

been rolling around in poison ivy. I itch so bad I want to just cut the skin

off. I use a hairbrush on it sometimes.

So, I am now looking for something else that I can use. I used to be on

amatryptoline for the fibro and put on a LOT of weight. I have been looking into

5HTP...anyone know anything about that?

I am desperate. I can't even step out to get my mail (

Have a great day )

AuntB

Invest in the life of a Lakota child!

http://FriendsofPineRidgeReservation.org

MySpace

http://www.myspace.com/auntbstuff2c

My Patterns

http://groups.yahoo.com/group/abpatterns/

[Guest guest]

Hi Aunt B.

I think different people have different side effects to everything we take.

That is your side effect and I hope its not permanent. Is it?

I would consult a dermatologist for a solution. Or you can just go to a

health food store and see if someone there has some knowledge about your

particular situation. We are all so different there is no one blanket

answer for everyone.

Does your doc know this? Can he not help you? I don¹t know about 5HTP for

this although I take it to sleep and it works great for me.

You need some different opinions from people who are well versed in your

problem.

> %40yahoogroups.com> , " AuntB " wrote:

>> >

>> > My name is Bev, but, most call me AuntB. I am 68, live in N.W. Ohio in a

>> senior complex.

>> > I started Nurontin last fall, but, since it has been nice out, I have now

>> acquired a horrible allergic reaction to the sun. Every inch of me that has

>> been exposed to the sun, which at my age isn't a lot...TG...lol....looks like

>> I have been rolling around in poison ivy. I itch so bad I want to just cut

>> the skin off. I use a hairbrush on it sometimes.

>> > So, I am now looking for something else that I can use. I used to be on

>> amatryptoline for the fibro and put on a LOT of weight. I have been looking

>> into 5HTP...anyone know anything about that?

>> > I am desperate. I can't even step out to get my mail (

>> >

>> > Have a great day )

>> > AuntB

>> > Invest in the life of a Lakota child!

>> > http://FriendsofPineRidgeReservation.org

>> > MySpace

>> > http://www.myspace.com/auntbstuff2c

>> > My Patterns

>> > http://groups.yahoo.com/group/abpatterns/

>> >

>> >

>> >

[Guest guest]

From The Easternmost point in the U.S.A.- Lubec Maine Hi, My name is Mike and

I am suffering from Fibromyalgia. My doctor has me on a lot of pain killers and

other meds, but I STILL HURT! I read a book on herbal remedies and I would like

to try them. I would appreciate any suggestions you can give me.

Thanks, Miles " Mike " Hudson (Mike because there is no nickname for Miles and

my friends started calling me Mike)

[Guest guest]

Welcome, Mike!

Have you checked fibrofix.com.?That is a good start. The rest of our friends as

I see are coming forward helping you.

Welcome aboard,

M

From: Miles Hudson <teechurman37@ yahoo.com>

Subject: New Member

To: fibromyalgiacured@ yahoogroups. com

Date: Wednesday, 2 September, 2009, 3:06 PM

 

From The Easternmost point in the U.S.A.- Lubec Maine Hi, My name is Mike and I

am suffering from Fibromyalgia. My doctor has me on a lot of pain killers and

other meds, but I STILL HURT! I read a book on herbal remedies and I would like

to try them. I would appreciate any suggestions you can give me. Thanks, Miles

" Mike " Hudson (Mike because there is no nickname for Miles and my friends

started calling me Mike)