Re: Re: Numbness in the legs

[Guest guest]

Hi, Tracey:

Just wanted to say that I have had problems with my legs for a very long time.

First I had one leg that jumped around of it's own free will.  Then I was

diagnosed with Restless Leg Syndrome.  Then the other leg started jumping

around. And the tingling, like electrical currents started   Years after the

symptoms started,a wonderful nurse practictioner ordered an MRI of my lower

back.  Turns out that all that jumping, tingling, etc., is caused from

deginerating discs pressing on nerves.

Numbness is a possible symptom. You may want to discuss this with your doc. 

Vicki

________________________________

To: fibromyalgiacured

Sent: Friday, May 29, 2009 9:48:26 PM

Subject: Re: Numbness in the legs

>i have numbness in my legs too but mostly in my feet.sometimes my legs give out

on me and i feel like nobody believes me.so i feel your pain.

> Hi Everyone....

> My doctor, my husband... basically everyone thinks I'm crazy.  My legs are

always numb... some days are worse than others but I feel like my legs are

noodles and I can barely feel them at all.  Strangely though, I can walk...

anyone else have these symptoms?

> Traci

>

>

>

>

>

[Guest guest]

 Oops!  I meant to say I had degenerative joints--degenerative joint disease. 

My vertibrae are falling apart.

Vicki L

________________________________

To: fibromyalgiacured

Sent: Wednesday, August 5, 2009 9:07:43 AM

Subject: Re: Re: Numbness in the legs

 

I've seen on here much talk of degenerative disc disease... is this yet another

problem caused by FMS?

From: vicki lockwood <twelvestoneslady@ yahoo.com>

Subject: Re: Re: Numbness in the legs

To: fibromyalgiacured@ yahoogroups. com

Date: Tuesday, August 4, 2009, 3:52 PM

 

Hi, Tracey:

Just wanted to say that I have had problems with my legs for a very long time.

First I had one leg that jumped around of it's own free will.  Then I was

diagnosed with Restless Leg Syndrome.  Then the other leg started jumping

around. And the tingling, like electrical currents started   Years after the

symptoms started,a wonderful nurse practictioner ordered an MRI of my lower

back.  Turns out that all that jumping, tingling, etc., is caused from

deginerating discs pressing on nerves.

Numbness is a possible symptom. You may want to discuss this with your doc. 

Vicki

____________ _________ _________ __

From: stevensdanielle75 <stevensdanielle75@ yahoo.com>

To: fibromyalgiacured@ yahoogroups. com

Sent: Friday, May 29, 2009 9:48:26 PM

Subject: Re: Numbness in the legs

>i have numbness in my legs too but mostly in my feet.sometimes my legs give out

on me and i feel like nobody believes me.so i feel your pain.

> Hi Everyone....

> My doctor, my husband... basically everyone thinks I'm crazy.  My legs are

always numb... some days are worse than others but I feel like my legs are

noodles and I can barely feel them at all.  Strangely though, I can walk...

anyone else have these symptoms?

> Traci

>

>

>

>

>

[Guest guest]

Rosemarie,

The mask is a great idea, I should have thought about that.. my bedroom window

gets eastern sunlight... and this also might keep my husband form poking me in

the eye when he roles over!!!!

I too get very sensative to light.... I have also noticed if i have too many

electrical things on in my bedroom it makes me edgy and not sleep well.

Joy

________________________________

To: fibromyalgiacured

Sent: Thursday, August 6, 2009 11:50:41 AM

Subject: Re: Re: Numbness in the legs

 

Yes I too have leg problems. I get restless legs at night, plus a lot of

numbness in one leg and pins and needles. I have leg cramps at night

sometimes very painful on the outside of my leg not just in the calf and big

toe area.

What I have done that has helped me are the following:

1. magnesium every night before bed. (I found liquid magnesium on line. No

IBS then)

2. potassium every night before bed.(I have prescription strength from my

doc. 25 Meq)

3. I sleep with a hot water bottle in a towel and if I feel a leg cramp

coming on I touch my leg to the hot water bottle and the heat relaxes it. I

wrap a hand towel around the bottle so it doesn¹t burn my leg to though so

be careful of that. I have burned my leg but not serious and it helped me

so much I do it every single night even on vacations.

4. I go to sleep with a sleep mask on because it blocks the light and I get

into a deep sleep that way. Without a sleep mask I don¹t ever get into a

deep sleep. I take it off half way through the night if I wake up because I

don¹t need it then and sometimes it starts to make a wrinkle in my cheeks

that takes hours to go away. LOL

5.. I take amino acids before bed.

That¹s about it if I think of something I will tell you.

On 8/5/09 11:40 AM, " nessie " <nessie8btinternet (DOT) . com> wrote:

>

>

>

>

> Not with me Traci,

> although I did believe that much of my pain was from my spine until they

> diagnose me with FMS.I too like Vicki have Restless Leg Syndrome. They now

> tell me that this linked to FMS as is IBS.

>

> Nessie

> Re: Numbness in the legs

>

>

>> >i have numbness in my legs too but mostly in my feet.sometimes my legs give

>> out on me and i feel like nobody believes me.so i feel your pain.

>> > Hi Everyone....

>> > My doctor, my husband... basically everyone thinks I'm crazy. My legs are

>> always numb... some days are worse than others but I feel like my legs are

>> noodles and I can barely feel them at all. Strangely though, I can walk...

>> anyone else have these symptoms?

>> > Traci

>> >

>> >

>> >

>> >

>> >

[Guest guest]

Vicki,

Could you please give me more detail on your diagnosis? I am very

interested in what you have to say about your degenerative joint disease /

degenerating discs. My DH is trying to figure out where his leg pain and

numbness is coming from and still think that maybe it is not FM and maybe a

problem similar to yours.

Thanks,

Jen

[Guest guest]

>

> From: vicki lockwood <twelvestoneslady@ yahoo.com

> <mailto:twelvestone slady%40yahoo. com> >

> Subject: Re: Re: Numbness in the legs

> To: fibromyalgiacured@ yahoogroups. com

> <mailto:fibromyalgi acured%40yahoogr oups.com>

> Date: Tuesday, August 4, 2009, 3:52 PM

>

> Hi, Tracey:

> Just wanted to say that I have had problems with my legs for a very long

> time. First I had one leg that jumped around of it's own free will. Then I

> was diagnosed with Restless Leg Syndrome. Then the other leg started jumping

> around. And the tingling, like electrical currents started Years after the

> symptoms started,a wonderful nurse practictioner ordered an MRI of my lower

> back. Turns out that all that jumping, tingling, etc., is caused from

> deginerating discs pressing on nerves.

> Numbness is a possible symptom. You may want to discuss this with your doc.

> Vicki

>

> ____________ _________ _________ __

> From: stevensdanielle75 <stevensdanielle75@ yahoo.com>

> To: fibromyalgiacured@ yahoogroups. com

> Sent: Friday, May 29, 2009 9:48:26 PM

> Subject: Re: Numbness in the legs

>

>

>> >i have numbness in my legs too but mostly in my feet.sometimes my legs give

>> out on me and i feel like nobody believes me.so i feel your pain.

>> > Hi Everyone....

>> > My doctor, my husband... basically everyone thinks I'm crazy. My legs are

>> always numb... some days are worse than others but I feel like my legs are

>> noodles and I can barely feel them at all. Strangely though, I can walk...

>> anyone else have these symptoms?

>> > Traci

>> >

>> >

>> >

>> >

>> >

[Guest guest]

:

I mis-spoke...er...typed when I said 'disc'.  My husband has disc problems,

which cause tingling, sciatica, and weakness in his legs--mostly just one leg,

but the good one is weaker as a result of the one that is affected.  He had

surgery on one disc after bulging became a rupture.  After the surgery he did

much better for a long time, but other discs are causing him minor pain now, so

we are careful with his back.

I have degenerative joint disease in my lower back--in particular, L3 through S1

vertabrea.  The bones are slowly crumbling.  I think this was the cause of my

'restless leg syndrome' diagnosis several years ago, in California.  At that

time the doctor asked questions, did a brief physical exam and that was that. 

When I started seeing a nurse practioner up here in Missouri, she listened.  She

ordered tests and found the real problem.  An MRI was the determining test.  No

one has mentioned any kind of surgery, etc., which makes me happy cause I really

don't want back surgery.  Despite my husband's great response to surgery, I've

known many people who had back surgery and ended up with more pain than before

the surgery.

So, I could wear a brace to stablize my lower back, but I don't want

to--compression is not comfortable for me because of the fibro.  What I need to

do is build the muscles that stablize the lower back, to protect what is left of

the bones.  That means work on my core--abs, back--all the muscles around my

body from the bottom of the ribs to the top of the hip bones..  I use ice packs

to reduce swelling around my spine.  I would take NSAIDS, but I'm allegic.  I

use pain pills when I'm driving, or if I have to sit for more than a few

minutes.  I would love to have access to the lidoderm patches, but haven't

gotten a response from the manufacturer yet about getting them free.  They

really help, but are really expensive.

Hope this info helps you.  If you have more questions, just ask.

Vicki

Missouri 

________________________________

To: fibromyalgiacured

Sent: Thursday, August 6, 2009 1:27:26 PM

Subject: RE: Re: Numbness in the legs

 

Vicki,

Could you please give me more detail on your diagnosis? I am very

interested in what you have to say about your degenerative joint disease /

degenerating discs.. My DH is trying to figure out where his leg pain and

numbness is coming from and still think that maybe it is not FM and maybe a

problem similar to yours.

Thanks,

Jen

[Guest guest]

Thanks much Joy!  I'm gonna check this out now!

From: vicki lockwood <twelvestoneslady@ yahoo.com>

Subject: Re: Re: Numbness in the legs

To: fibromyalgiacured@ yahoogroups. com

Date: Tuesday, August 4, 2009, 3:52 PM

 

Hi, Tracey:

Just wanted to say that I have had problems with my legs for a very long time.

First I had one leg that jumped around of it's own free will.  Then I was

diagnosed with Restless Leg Syndrome.  Then the other leg started jumping

around.. And the tingling, like electrical currents started   Years after the

symptoms started,a wonderful nurse practictioner ordered an MRI of my lower

back.  Turns out that all that jumping, tingling, etc., is caused from

deginerating discs pressing on nerves.

Numbness is a possible symptom. You may want to discuss this with your doc. 

Vicki

____________ _________ _________ __

From: stevensdanielle75 <stevensdanielle75@ yahoo.com>

To: fibromyalgiacured@ yahoogroups. com

Sent: Friday, May 29, 2009 9:48:26 PM

Subject: Re: Numbness in the legs

>i have numbness in my legs too but mostly in my feet.sometimes my legs give out

on me and i feel like nobody believes me.so i feel your pain.

> Hi Everyone....

> My doctor, my husband... basically everyone thinks I'm crazy.  My legs are

always numb... some days are worse than others but I feel like my legs are

noodles and I can barely feel them at all.  Strangely though, I can walk...

anyone else have these symptoms?

> Traci

>

>

>

>

>

[Guest guest]

Yes Joy. It took me a long time to figure out the mask. I read about it in

a book on insomnia. My husband can¹t believe the difference in me. I used

to yell at him to shut the lights off. Now idon¹t care. I fall right

asleep

>

>

>

>

> Rosemarie,

> The mask is a great idea, I should have thought about that.. my bedroom window

> gets eastern sunlight... and this also might keep my husband form poking me in

> the eye when he roles over!!!!

> I too get very sensative to light.... I have also noticed if i have too many

> electrical things on in my bedroom it makes me edgy and not sleep well.

> Joy

>

> ________________________________

> From: Rosemarie Tropf <rosemarie@... <mailto:rosemarie%40intnet.net> >

> To: fibromyalgiacured

> <mailto:fibromyalgiacured%40yahoogroups.com>

> Sent: Thursday, August 6, 2009 11:50:41 AM

> Subject: Re: Re: Numbness in the legs

>

>  

> Yes I too have leg problems. I get restless legs at night, plus a lot of

> numbness in one leg and pins and needles. I have leg cramps at night

> sometimes very painful on the outside of my leg not just in the calf and big

> toe area.

>

> What I have done that has helped me are the following:

> 1. magnesium every night before bed. (I found liquid magnesium on line. No

> IBS then)

> 2. potassium every night before bed.(I have prescription strength from my

> doc. 25 Meq)

> 3. I sleep with a hot water bottle in a towel and if I feel a leg cramp

> coming on I touch my leg to the hot water bottle and the heat relaxes it. I

> wrap a hand towel around the bottle so it doesn¹t burn my leg to though so

> be careful of that. I have burned my leg but not serious and it helped me

> so much I do it every single night even on vacations.

> 4. I go to sleep with a sleep mask on because it blocks the light and I get

> into a deep sleep that way. Without a sleep mask I don¹t ever get into a

> deep sleep. I take it off half way through the night if I wake up because I

> don¹t need it then and sometimes it starts to make a wrinkle in my cheeks

> that takes hours to go away. LOL

> 5.. I take amino acids before bed.

>

> That¹s about it if I think of something I will tell you.

>

> On 8/5/09 11:40 AM, " nessie " <nessie8btinternet (DOT) . com> wrote:

>

>> >

>> >

>> >

>> >

>> > Not with me Traci,

>> > although I did believe that much of my pain was from my spine until they

>> > diagnose me with FMS.I too like Vicki have Restless Leg Syndrome. They now

>> > tell me that this linked to FMS as is IBS.

>> >

>> > Nessie

>> > Re: Numbness in the legs

>> >

>> >

>>>> >> >i have numbness in my legs too but mostly in my feet.sometimes my legs

>>>> give

>>> >> out on me and i feel like nobody believes me.so i feel your pain.

>>>> >> > Hi Everyone....

>>>> >> > My doctor, my husband... basically everyone thinks I'm crazy. My legs

are

>>> >> always numb... some days are worse than others but I feel like my legs

>>> are

>>> >> noodles and I can barely feel them at all. Strangely though, I can

>>> walk...

>>> >> anyone else have these symptoms?

>>>> >> > Traci

>>>> >> >

>>>> >> >

>>>> >> >

>>>> >> >

>>>> >> >