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Re: Re: my intro, etc...

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I used to have a guide dog-was the best thing I ever did. She saved my life

twice from stupid drivers and is also a great companion. Then they

diagnosed me with optical neuritis (took them 4 years to find the cause)

and was able to be treated for it...though had I known the payoff at the

time, I would have refused.

Service dogs-whether for blindness, mobility or other disabilities are

excellent IF they are well trained to do their jobs.

Here's a pic of my Nevi. She's now enjoying her retirement in the lap of

luxury with my mother.

At 03:06 AM 09/04/2004, you wrote:

>hi krissy! congrats on the dog in agility! that's tough even

>without your own trials! and i cannot wait for my service dog!

>

>does anyone from here ever chat? are you ever up for a chat? i'm

>looking for some comeraderie --someone to commisserate with or at

>least share stories with...i'm looking for some answers or at least

>some clues as to what is going on with my body and what questions and

>tests i should talk to the doctors about...i think those of us who

>live with it every day are the experts and luckily i have found

>doctors who feel the same way and they are open to me doing research

>and asking for pertinant tests, so i am looking for ideas...hugs to

>all your doggies---my bernese mountain dog is sitting next to me on

>the couch now! talk soon i hope!

>rachelyse

>

>

>

>

> > > hi everyone! my name is rachelyse and i am 29 soon to be 30:o(

>and

> > i

> > > have had many symptoms of MS for at least 13 years and mild

> > symptoms

> > > intermittantly for all my life...i have been tested for MS by

>MRIs

> > > and spinal taps for 13 years and they have all come back

>negative,

> > so

> > > i have been a medical mystery to my doctors and i have been

>treated

> > > with meds by trial and error...

> > > since my legs seemed to be all that was effected (besides the

> > > nystagmus) i had a funtional diagnosis of hereditary spastic

> > > paraplegia for the last 3 or 4 years-- although i have no family

> > > history of this disorder...the last 9 months or so i have been

> > having

> > > problems with speech and swallowing, nerve damage in my hands and

> > > arms, and some prickly tingling in my legs---all of which does

>not

> > > jive with hereditary spastic paraplegia...

> > > my husband and i went to a conference last weekend for HSP and

> > > Primary lateral sclerosis and i became even more convinced that

>my

> > > diagnosis is incorrect and now i'm wondering again if i should

>get

> > > tested again for MS! HAS ANYONE GONE 12 OR 13 WITH NEGATIVE

> > RESULTS

> > > ON TESTS AND THEN SHOWN POSITIVE ON A TEST?

> > >

> > > anyway i have a furchild named sam and i have another furchild

>who

> > is

> > > being trained as a service dog for me! i enjoy scrapbooking and

> > > rubberstamping and i have been offered money to make scrapbooks

>for

> > > people and also to make birth announcements and invitations!

> > >

> > > -rachelyse in CT

>

>

>

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Nadia do you know what the typical price is on a guide dog are you the one pictured with the dog?

Bill

Re: Re: my intro, etc...

I used to have a guide dog-was the best thing I ever did. She saved my life twice from stupid drivers and is also a great companion. Then they diagnosed me with optical neuritis (took them 4 years to find the cause) and was able to be treated for it...though had I known the payoff at the time, I would have refused.Service dogs-whether for blindness, mobility or other disabilities are excellent IF they are well trained to do their jobs.Here's a pic of my Nevi. She's now enjoying her retirement in the lap of luxury with my mother.At 03:06 AM 09/04/2004, you wrote:>hi krissy! congrats on the dog in agility! that's tough even>without your own trials! and i cannot wait for my service dog!>>does anyone from here ever chat? are you ever up for a chat? i'm>looking for some comeraderie --someone to commisserate with or at>least share stories with...i'm looking for some answers or at least>some clues as to what is going on with my body and what questions and>tests i should talk to the doctors about...i think those of us who>live with it every day are the experts and luckily i have found>doctors who feel the same way and they are open to me doing research>and asking for pertinant tests, so i am looking for ideas...hugs to>all your doggies---my bernese mountain dog is sitting next to me on>the couch now! talk soon i hope!>rachelyse>>>>> > > hi everyone! my name is rachelyse and i am 29 soon to be 30:o(>and> > i> > > have had many symptoms of MS for at least 13 years and mild> > symptoms> > > intermittantly for all my life...i have been tested for MS by>MRIs> > > and spinal taps for 13 years and they have all come back>negative,> > so> > > i have been a medical mystery to my doctors and i have been>treated> > > with meds by trial and error...> > > since my legs seemed to be all that was effected (besides the> > > nystagmus) i had a funtional diagnosis of hereditary spastic> > > paraplegia for the last 3 or 4 years-- although i have no family> > > history of this disorder...the last 9 months or so i have been> > having> > > problems with speech and swallowing, nerve damage in my hands and> > > arms, and some prickly tingling in my legs---all of which does>not> > > jive with hereditary spastic paraplegia...> > > my husband and i went to a conference last weekend for HSP and> > > Primary lateral sclerosis and i became even more convinced that>my> > > diagnosis is incorrect and now i'm wondering again if i should>get> > > tested again for MS! HAS ANYONE GONE 12 OR 13 WITH NEGATIVE> > RESULTS> > > ON TESTS AND THEN SHOWN POSITIVE ON A TEST?> > >> > > anyway i have a furchild named sam and i have another furchild>who> > is> > > being trained as a service dog for me! i enjoy scrapbooking and> > > rubberstamping and i have been offered money to make scrapbooks>for> > > people and also to make birth announcements and invitations!> > >> > > -rachelyse in CT>>>

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Sorry, that's not me in the picture--it's my ex-roomate.

Guide dogs don't cost the user anything if it comes from one of the

reputable schools but there is a high cost to training them and us. I got

Nevi from Guide Dogs for the Blind in San , CA (near San Francisco).

Each team that is paired costs the school about 50 000$ US. This is also

probably one of the most expensive training programs--it's funded entirely

by donations. Most schools in North America go through about 12-25 000$ US

to train the team. This included everything from the time the puppy is born

till it dies...at least in my school it did. They pay for airfare to travel

for a month of training, room and board in their facility. It's not a cheap

undertaking but in order to be a successful team, it's important to spend a

month learning everything...when you get there the dog is already

trained-you're the one that needs the training!

I'm attaching my guide dog class photo. Of the three with black labs, I'm

the one on the right. Notice I said BLACK lab... was taken away

shortly after the picture was taken because she wasn't deemed suitable and

was retired...this is why the training is so important, to make sure that

dog and handler will make a good and safe team...enough rambling...toodles!

At 02:24 PM 09/04/2004, you wrote:

>Nadia do you know what the typical price is on a guide dog are you the one

>pictured with the dog?

>Bill

>----- Original Message -----

>Nadia B.

>To: <mailto:MSersLife >MSersLife

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Hi ,

May I ask what was the "payoff"?

Challis

I used to have a guide dog-was the best thing I ever did. She saved my life twice from stupid drivers and is also a great companion. Then they diagnosed me with optical neuritis (took them 4 years to find the cause) and was able to be treated for it...though had I known the payoff at the time, I would have refused.

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I don't doubt it and sure can't blame you!

Thank you for sharing that with me, .

Hugs!,

Challis

Sorry, I don't mean to sound self-loathing...I'm just resentful that the doctor never informed me of the risks of steroids.

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