Re: Patti checks in Being diagnosed Yet?

[Guest guest]

Another thing that has changed about me is that I feel a sense of urgency to connect with other people. I used to be pretty much of a hermit and I liked it that way. Now, at work I'm the one cheering everyone on. I have a hello and a compliment for every single person I see every day. This has been so rewarding to me. And I'm much more likely to say exactly what I am thinking - good or bad.

Patti

Hi Patti

I found my attitude toward people change once I realize I needed more assistants with my MS especially the simple things I alway's took for granite, like just changing a light bulb. I have no balance so it is impossible to reach those high light bulbs.

I am more patient also with other driver's on the road.

Bill

Patti checks in Being diagnosed Yet?

Hi,

I haven't been online in a long while. I'm trying to forget about the possibility of MS and just live life to the fullest now and do everything I can, while I can. I am no closer to a diagnosis than I was before. I would have forgotten about MS altogether except that every night when I lay down to go to bed some part of my body twitches, and every day while I am working some part of my body has a sharp twinge of pain. These little subtle reminders keep me grateful for everything I am able to do. Now I am so grateful to just be able to walk that not only do I walk, but I dance. And I am not shy and quiet any more. I'm very freindly and outgoing. My personality is completly different. I don't know if this is an MS thing or just my personal reaction to the threat of MS and thinking I was going to need brain surgery for the abnormal viens in my brain which turned out to be benign.

Patti

This year we have had several join the discussion group needing to know more about MS and some of you were waiting to be diagnosed. If you are still waiting then how is your present health condition and are you getting closer to getting a DX?

[Guest guest]

Hi Patti

I found my attitude toward people change once I realize I needed more assistants with my MS especially the simple things I alway's took for granite, like just changing a light bulb. I have no balance so it is impossible to reach those high light bulbs.

I am more patient also with other driver's on the road.

Bill

Patti checks in Being diagnosed Yet?

Hi,I haven't been online in a long while. I'm trying to forget about the possibility of MS and just live life to the fullest now and do everything I can, while I can. I am no closer to a diagnosis than I was before. I would have forgotten about MS altogether except that every night when I lay down to go to bed some part of my body twitches, and every day while I am working some part of my body has a sharp twinge of pain. These little subtle reminders keep me grateful for everything I am able to do. Now I am so grateful to just be able to walk that not only do I walk, but I dance. And I am not shy and quiet any more. I'm very freindly and outgoing. My personality is completly different. I don't know if this is an MS thing or just my personal reaction to the threat of MS and thinking I was going to need brain surgery for the abnormal viens in my brain which turned out to be benign. Patti

This year we have had several join the discussion group needing to know more about MS and some of you were waiting to be diagnosed. If you are still waiting then how is your present health condition and are you getting closer to getting a DX?

[Guest guest]

I didn't know what MS was either untill the day I ended up in the emergency room unable to feel any part of my body. It was there that my sister in law asked the doctors if it could be MS. And they answered that it was something to look into.

Patti

It's funny I actually enjoy going to the MS support groups and also the MS internet groups plus my diabetic group. If I did not have MS saying hello to people with MS would be the last thing on my mind. I didn't even know what MS was until I had it. The MS support groups are nice to be around others I can related to what they go through. I also learn new stuff about MS.

Bill

Patti checks in Being diagnosed Yet?Hi,I haven't been online in a long while. I'm trying to forget about the possibility of MS and just live life to the fullest now and do everything I can, while I can. I am no closer to a diagnosis than I was before. I would have forgotten about MS altogether except that every night when I lay down to go to bed some part of my body twitches, and every day while I am working some part of my body has a sharp twinge of pain. These little subtle reminders keep me grateful for everything I am able to do. Now I am so grateful to just be able to walk that not only do I walk, but I dance. And I am not shy and quiet any more. I'm very freindly and outgoing. My personality is completly different. I don't know if this is an MS thing or just my personal reaction to the threat of MS and thinking I was going to need brain surgery for the abnormal viens in my brain which turned out to be benign. Patti

This year we have had several join the discussion group needing to know more about MS and some of you were waiting to be diagnosed. If you are still waiting then how is your present health condition and are you getting closer to getting a DX?

[Guest guest]

Taking a new perspective on life is something that i am very grateful for now. I also have become less judgemental. We all so the best we can. No one comes close to being perfect. i'm more accepting of others.

Patti

I agree that it changed my attitude towards everything. On the one hand, it makes me want to do everything I possibly can right now because I see that life is short (not just because of the MS, but in general). That is why all of a sudden I "need" to do every triathlon, running race, etc. "right now". I am making my husband crazy! He says I am like a 2 year old!

On the other hand it makes me slow down and not let things bother me so much. For instance, we were at Mcs the other day, and I was getting drinks for all my kids at the self serve drink thing. There was a lady behind me swearing at me in front of her kids and mine because I was not getting the drinks fast enough. When I was done, I apologized for taking so long but then when I thought about it later, she was the one who should have apologized! My kids heard words that they didn't know, and then I had to explain that they were not very nice words. Plus, what in the world is she teaching her own children? That you have to be impatient and angry all the time? I couldn't believe her!

Tori

Patti checks in Being diagnosed Yet?

Hi,I haven't been online in a long while. I'm trying to forget about the possibility of MS and just live life to the fullest now and do everything I can, while I can. I am no closer to a diagnosis than I was before. I would have forgotten about MS altogether except that every night when I lay down to go to bed some part of my body twitches, and every day while I am working some part of my body has a sharp twinge of pain. These little subtle reminders keep me grateful for everything I am able to do. Now I am so grateful to just be able to walk that not only do I walk, but I dance. And I am not shy and quiet any more. I'm very freindly and outgoing. My personality is completly different. I don't know if this is an MS thing or just my personal reaction to the threat of MS and thinking I was going to need brain surgery for the abnormal viens in my brain which turned out to be benign. Patti

This year we have had several join the discussion group needing to know more about MS and some of you were waiting to be diagnosed. If you are still waiting then how is your present health condition and are you getting closer to getting a DX?

[Guest guest]

Tori,

I too have to agree with my attitude changing also, ....getting told that I had MS did make me really stop in my life and take a look at what was really important, etc.

I thought I had faith, shared love etc....but when told of something that will debilitate you is very hard (and also knowing that with a flare of my original lesion in my neck at c-4, and if it goes across my spinal cord instead of just playing around on one side...well, I am a quadrapalegic if I survive. My biggest fear WAS to go to sleep at night since that was when I had my 1st attack, I awoke numb).

What I'm trying to say is, I hear Tim McGraw's new song "Live Like You Were Dying" which is dedicated to his father who just passed from brain cancer (Tug McGraw the great pitcher). I engulfed myself in that immediately and then began to think....we all know that we will die eventually, it's inevidible. What we don't know is what we will die from and when. I wonder how many people wait until something "tragic" per say is told to them for them to stop and re-evaluate what is in their lives.

I wished that I could tell people to not wait... that no matter if one has a disease or not....one must cherish their lives and what they surround themselves (family, friends, hobbys etc.) in becasue time IS so precious.

As in Tim's song, I do love deeper, and speak sweeter now that I have had to stop and look at my life since the MS wall hit me smack in the face in 2001.

Isn't it amazing how something like this CAN really change your whole life; and I think generally it is for the best...atleast I can say that I have become a full person (which I thought I was before...hah!).

Don't get me wrong....there are those moments that start getting me and then I just have to willingly stop and "smell the roses."

My thoughts,

Kim in Nebraska

Patti checks in Being diagnosed Yet?

Hi,I haven't been online in a long while. I'm trying to forget about the possibility of MS and just live life to the fullest now and do everything I can, while I can. I am no closer to a diagnosis than I was before. I would have forgotten about MS altogether except that every night when I lay down to go to bed some part of my body twitches, and every day while I am working some part of my body has a sharp twinge of pain. These little subtle reminders keep me grateful for everything I am able to do. Now I am so grateful to just be able to walk that not only do I walk, but I dance. And I am not shy and quiet any more. I'm very freindly and outgoing. My personality is completly different. I don't know if this is an MS thing or just my personal reaction to the threat of MS and thinking I was going to need brain surgery for the abnormal viens in my brain which turned out to be benign. Patti

This year we have had several join the discussion group needing to know more about MS and some of you were waiting to be diagnosed. If you are still waiting then how is your present health condition and are you getting closer to getting a DX?