Re: About to be diagnosed?

[Guest guest]

Barb,

When I was pregnant with my first daughter I could not drink out of any

glass container. I have never heard of anyone else having this problem. My

very sweet understanding husband never said one word about my crazy

aversion. Even when we went to people's houses, and I would try to drink

out of a glass and quietly gag, he would just try to find me a plastic

container to drink out of. I thought it was all pregnancy related, except

that I still can not drink out of a glass. Maybe I should send you all my

glasses, and you could send me all your plastic stuff (just kidding).

I also had a weird smell thing that luckily is not with me still. I threw

away our comforter because it smelled musty even after I washed it. Then I

went and bought a new one, which also smelled musty. I returned that,

bought a new one, and when it still smelled musty to me, it occurred to me

that it was possibly me that had the problem.

I can't eat cookies that have been stored in Tupperware, which is

unfortunate because my mom buys me Tupperware like crazy, and I can't really

use any of it for food that I want to be able to eat.

Wow, I can't believe you have the aversion to plastic too. I am sorry for

you because I know how frustrating that can be! I am also sorry because I

thought it was a weirdness unique to me, and now I guess it must be a MS

thing.

You sound very similar to me in dismissing all your symptoms as nothing.

The first time my doctor asked me about things I said I never had any of

them too. Then when I repeated to my husband what I told the doctor, he

looked at me like I was crazy and reminded me of all the things I had

casually mentioned to him.

Anyway, good luck, and if you ever want to talk, feel free to write me. I

have 4 kids, my youngest is only 7 months so I don't get to check the

computer every day, but I try to write back to people the best that I can.

Take care!

Tori

About to be diagnosed?

> Hello! My name is Barb and I am in the process of being diagnosed

> with MS. It all started with some very annoying blurred vision in my

> right eye and very quickly snowballed. I have my MRI tomorrow.

> When I first saw the neurologist, I answered " No " to all of the

> symptom questions. Of course I have never had tingling, of course I

> don't get dizzy, ect...you get my drift. But during the last six

> days since that appointment, while I visit the eye doctor again for a

> visual field exam and get lab work done, waiting for the MRI, I

> realize that...of course I have been having tingling in my legs and

> feet, of course my arms have gone numb, yes I have had some

> dizziness. None seemed to be related, it came and went quickly so I

> dismissed it. Now, it is all adding up and I wonder how long I have

> let this go. Tomorrow will answer the questions, hopefully.

> I have gotten a lot of very good information on the internet. I know

> not to believe everything I read and think I have been able to sort

> through it all fairly well.

> I have one question that may sound very strange, but again, maybe

> not. Did or do any of you have an aversion to eating or drinking

> food that has been stored or cooked in a plastic container? I have

> had a progressively worsening problem the last six months or so that

> I can taste the plastic in anything that has been cooked or stored in

> plastic. This includes drinks made in a plastic pitcher. It is very

> annoying! This includes all kinds of plastic containers from the

> dollar store containers to Tupperware, it is all the same.

> I look forward to learning all I can to make my quality of life as

> good as it has been, if not better

>

> Barb

>

>

>

>

>

>

[Guest guest]

Barb:

Is there anything else going on besides MS stuff? OCD? Sometimes an aversion like that is OCD caused in my own experience.

What kinds of meds are you on?

Hugs)

SharonBarb wrote:

Hello! My name is Barb and I am in the process of being diagnosed with MS. It all started with some very annoying blurred vision in my right eye and very quickly snowballed. I have my MRI tomorrow. When I first saw the neurologist, I answered "No" to all of the symptom questions. Of course I have never had tingling, of course I don't get dizzy, ect...you get my drift. But during the last six days since that appointment, while I visit the eye doctor again for a visual field exam and get lab work done, waiting for the MRI, I realize that...of course I have been having tingling in my legs and feet, of course my arms have gone numb, yes I have had some dizziness. None seemed to be related, it came and went quickly so I dismissed it. Now, it is all adding up and I wonder how long I have let

this go. Tomorrow will answer the questions, hopefully.I have gotten a lot of very good information on the internet. I know not to believe everything I read and think I have been able to sort through it all fairly well.I have one question that may sound very strange, but again, maybe not. Did or do any of you have an aversion to eating or drinking food that has been stored or cooked in a plastic container? I have had a progressively worsening problem the last six months or so that I can taste the plastic in anything that has been cooked or stored in plastic. This includes drinks made in a plastic pitcher. It is very annoying! This includes all kinds of plastic containers from the dollar store containers to Tupperware, it is all the same.I look forward to learning all I can to make my quality of life as good as it has been, if not better :)Barb

[Guest guest]

For those who have such problems that are made worse by thinking about them

(such as the swallowing), why not try visualization.

What I mean by that is that when you are swallowing and you feel you might

have trouble, focus your mind on something else. Sometimes my injections

his a vein (I'm diabetic) and that hurts like a b**ch and I've found that

by focusing on something such as when I used to play in the snow as a child

gets my mind off the issue and the pain disapears.

Since epidurals are practically never used where I now live, I plan on

doing the same thing during childbirth. It takes a lot of practice at first

but once you are able to do it, I find that it's a big help with pain or

any " mental blocks " .

At 04:18 PM 08/27/2004, you wrote:

>Barb:

>

>Is there anything else going on besides MS stuff? OCD? Sometimes an

>aversion like that is OCD caused in my own experience.

>

>What kinds of meds are you on?

>

>Hugs)

>Sharon

>

>Barb wrote:

>Hello! My name is Barb and I am in the process of being diagnosed

>with MS. It all started with some very annoying blurred vision in my

>right eye and very quickly snowballed. I have my MRI tomorrow.

>When I first saw the neurologist, I answered " No " to all of the

>symptom questions. Of course I have never had tingling, of course I

>don't get dizzy, ect...you get my drift. But during the last six

>days since that appointment, while I visit the eye doctor again for a

>visual field exam and get lab work done, waiting for the MRI, I

>realize that...of course I have been having tingling in my legs and

>feet, of course my arms have gone numb, yes I have had some

>dizziness. None seemed to be related, it came and went quickly so I

>dismissed it. Now, it is all adding up and I wonder how long I have

>let this go. Tomorrow will answer the questions, hopefully.

>I have gotten a lot of very good information on the internet. I know

>not to believe everything I read and think I have been able to sort

>through it all fairly well.

>I have one question that may sound very strange, but again, maybe

>not. Did or do any of you have an aversion to eating or drinking

>food that has been stored or cooked in a plastic container? I have

>had a progressively worsening problem the last six months or so that

>I can taste the plastic in anything that has been cooked or stored in

>plastic. This includes drinks made in a plastic pitcher. It is very

>annoying! This includes all kinds of plastic containers from the

>dollar store containers to Tupperware, it is all the same.

>I look forward to learning all I can to make my quality of life as

>good as it has been, if not better

>

>Barb

>

>

>

[Guest guest]

Hi Barb,

My name is Patti and I am in that boat, the limbo boat. I don't read these posts often because now that I feel well I prefer to row my boat on the river of

de-nial. I have had every symptom and every risk factor. Lots of stuff has been ruled out. But I feel fine so I'd rather not think about it.

Patti

The neurologist called to say that from what he can see on the electronic copy of my MRI he got today, there appear to be no lesions. However, he wants to wait until Tuesday when he gets the original and the neuro-radiology report before we continue. He believes since I have been having quite a number of MS symptoms and nearly everything else has been ruled out at this point, it is likely I am in the process of getting MS. This whole thing is very confusing. If the actual MRI shows nothing, I will be off for a spinal tap and spinal CAT scan.

I have heard many people have gone through this process for months and years until lesions finally form. Anyone else start off in this same boat? My symptoms are numbness in legs, mostly from the knees down, feet almost always, numbness in my arms, primarily right arm and hand, tingling also in right leg, numbness on the right side of my face. Extreme fatigue, hot tempurature intolerance and I have recently started having some sort-term memory loss. I am 41 years old.\

Thanks!

Barb

Barb - loving wife of dan, blessed mother of eleven of God's special angels, Chelsea 0:), Gabby, Halee, Becca, Davin 0:), Becca, Ana, Emma, Kamryn 0:), , Oliver and Jasmine!!!