Re: Texan new to group

[Guest guest]

Welcome to the group. We have another active Texan - Imogene - maybe

the two of you live close to each other... There's tons of info on

the board so feel free to look around. Here's a few links to get

you started...

LBD Brochure:

http://www.lewybodydementia.org/docs/LBDAbroch_webLGL.pdf

(you can order hard copies from LBDA@...)

Dr. Bradley Boeve's Diagnostic Review & Medicine Management:

http://www.lewybodydementia.org/docs/DLB-BoeveContinuum04.pdf

(some of us use this as a guide book - refer to it constantly)

Dr. Gomperts transcript of a Q & A session we had, he

answered many of the most common questions that we have:

http://www.lewybodydementia.org/docs/gomperts_transcript.pdf

Links Section:

http://health.groups.yahoo.com/group/LBDcaregivers/links

(Tons of links that is continuously a `work in progress' – all these

links are useful to the caregiver. A variety of categories neatly

organized into folders – what topic are you interested in? Find the

folder and within it find numerous links to other websites for

additional information.)

>

> Hello.We live in South Texas and my spouse of 46 years has been

> diagnosed with Parkinsons and LBD. He has been on Namenda for the

> first ramp up week and showing a whole lot of improvement. 10

months

> ago he went in the hospital with a urinary tract infection and it

was

> so bad he went crazy and came home with Sundowners Syndrome and it

has

> just gotten worse and worse. Our move from West Texas 3 months ago

was

> the final straw. He started sleeping an hour at a time and the

> confusion and halucinations just got worse and worse. We got into

an

> excellent medical program nearby for seniors and they got us into

the

> Baylor Parkinsons Clinic in only a matter of days. I am looking

> forward to talking to other spouses and caregivers and learning how

to

> take better care of him. We had dreamed of living near the coast

for

> 30 years, and agressively worked on the move for 2 years and we

were to

> the point of no return when he really got ill. Today was a great

day

> here. Thank you for letting me join these support groups.

>