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Hi again Liz

I realized I am asking you the same questions as my last post. Brain fog!

How did you realize that you had cancer? Did you start bleeding or have other

symptoms? It is crazy that it only took one year on the hormones. Wow. Very

scary.

Was the recovery from the hysterectomy really hard?

These doctors...i don't know.

Liz W

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Hi, Liz,

I, too, have always suffered from P intolerance--mostly very severe depression. I am post menopausal, and the depression from no estradiol is far worse than the P depression. So I am stuck using P every month for ten days so that I can safely use E. Of course, I can barely function during these ten days.

Doc says only way to not use P is to have hysterectomy (great choice).

Colleen

Subject: progesterone intolerance and estrogen creamTo: rhythmicliving Date: Wednesday, June 24, 2009, 10:49 PM

Hi everyone!Glad to be here on the board. I had not heard of the Wiley protocol but I have been trying to search for information on progesterone intolerance (there is not much out there!) and I found the rhythmic living site.I will tell my story briefly. I am 38 years old, premenopausal with uterus.When I was 23 I had a terrible virus and have had a host of health issues ever since. I have hashimoto's thyroiditis, asthma, and blood tests have recently shown that I have adrenal fatigue. I am under treatment for both of these conditions, as well as depression, which is also chronic.I seem to have problems with autoimmune types of things, and I tend to swell up a lot for mysterious reasons. Anyway, through a series of personal trial and error sessions, I actually ended up learning that estriol cream in highish doses helps many of my health problems for reasons I don't understand, particularly when combined with a small amount of

estradiol. Almost miraculously.I wanted to try this as a real remedy for my situation, but of course I knew I needed progesterone in the second half of my cycle. I learned quickly that progesterone makes me really ill. Even bioidentical progesterone in a teeny little dab makes me really sick, asthmatic, depressed and totally non functional. I am wondering if progesterone sensitivity is the reason for many of my health issues (worse during the luteal phase of my cycle)So I am finding myself searching everywhere for answers about whether I can take estrogen unopposed, or if there is any other option.I can't understand that something which makes me so sick is necessary for me, but I don't want endometrial cancer!All of my hormone tests are in the normal range, although now my progesterone is a little highish, and I feel it!Any info about any of this would be greatly

appreciated!Thanks

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When I talked to my regular OB/GYN she said that I could be placed on birth

control pills where I have a period only every 3 months. This was medically

acceptable. Why wouldn't it work the same with BHRT?

Take estrogen for 2.5 months and then the last 2 weeks take P for a period. It

wouldn't resolve the progesterone problem, just make it less troublesome in

terms of time?

Ghina

>

> Hi everyone!

> Glad to be here on the board. I had not heard of the Wiley protocol but I have

been trying to search for information on progesterone intolerance (there is not

much out there!) and I found the rhythmic living site.

> I will tell my story briefly. I am 38 years old, premenopausal with uterus.

> When I was 23 I had a terrible virus and have had a host of health issues ever

since. I have hashimoto's thyroiditis, asthma, and blood tests have recently

shown that I have adrenal fatigue. I am under treatment for both of these

conditions, as well as depression, which is also chronic.

> I seem to have problems with autoimmune types of things, and I tend to swell

up a lot for mysterious reasons.

> Anyway, through a series of personal trial and error sessions, I actually

ended up learning that estriol cream in highish doses helps many of my health

problems for reasons I don't understand, particularly when combined with a small

amount of estradiol. Almost miraculously.

> I wanted to try this as a real remedy for my situation, but of course I knew I

needed progesterone in the second half of my cycle. I learned quickly that

progesterone makes me really ill. Even bioidentical progesterone in a teeny

little dab makes me really sick, asthmatic, depressed and totally non

functional. I am wondering if progesterone sensitivity is the reason for many of

my health issues (worse during the luteal phase of my cycle)

> So I am finding myself searching everywhere for answers about whether I can

take estrogen unopposed, or if there is any other option.

> I can't understand that something which makes me so sick is necessary for me,

but I don't want endometrial cancer!

> All of my hormone tests are in the normal range, although now my progesterone

is a little highish, and I feel it!

> Any info about any of this would be greatly appreciated!

> Thanks

>

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When I talked to my regular OB/GYN she said that I could be placed on birth

control pills where I have a period only every 3 months. This was medically

acceptable. Why wouldn't it work the same with BHRT?

Take estrogen for 2.5 months and then the last 2 weeks take P for a period. It

wouldn't resolve the progesterone problem, just make it less troublesome in

terms of time?

Ghina

>

> Hi everyone!

> Glad to be here on the board. I had not heard of the Wiley protocol but I have

been trying to search for information on progesterone intolerance (there is not

much out there!) and I found the rhythmic living site.

> I will tell my story briefly. I am 38 years old, premenopausal with uterus.

> When I was 23 I had a terrible virus and have had a host of health issues ever

since. I have hashimoto's thyroiditis, asthma, and blood tests have recently

shown that I have adrenal fatigue. I am under treatment for both of these

conditions, as well as depression, which is also chronic.

> I seem to have problems with autoimmune types of things, and I tend to swell

up a lot for mysterious reasons.

> Anyway, through a series of personal trial and error sessions, I actually

ended up learning that estriol cream in highish doses helps many of my health

problems for reasons I don't understand, particularly when combined with a small

amount of estradiol. Almost miraculously.

> I wanted to try this as a real remedy for my situation, but of course I knew I

needed progesterone in the second half of my cycle. I learned quickly that

progesterone makes me really ill. Even bioidentical progesterone in a teeny

little dab makes me really sick, asthmatic, depressed and totally non

functional. I am wondering if progesterone sensitivity is the reason for many of

my health issues (worse during the luteal phase of my cycle)

> So I am finding myself searching everywhere for answers about whether I can

take estrogen unopposed, or if there is any other option.

> I can't understand that something which makes me so sick is necessary for me,

but I don't want endometrial cancer!

> All of my hormone tests are in the normal range, although now my progesterone

is a little highish, and I feel it!

> Any info about any of this would be greatly appreciated!

> Thanks

>

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Hi Colleen

I feel like there has to be a better way to deal with this issue!

Here are some things I have been looking into, which you may have already tried:

Angeliq is a low dose HRT pill that has bioidentical estradiol (1 mg) with a low

dose of drospirenone. This is the same kind of progestin which is in Yaz/Yasmin,

the BCP which is marketed for people with PMS/PMDD because it is apparently more

tolerable.

I actually took Yasmin for a month, and I still had physical side effects from

the progesterone, but I did not get the typical depressive symptoms I usually

get (like you, just awful) with progesterone. I wonder if you could at least try

this type of progesterone instead? I have actually been considering taking this

during the second half of the month if I raise my estrogen dose.

Also, have you looked into intrauterine progesterone? I have read that it is not

as systemic as regular progesterone, although I have to say I am very

doubtful...might be worth a try, though

What kind of progesterone are you on? how do you take it?

I feel for you...I get horrible depression on progesterone which pretty much

renders me nonfunctional. Sometimes I think that doctors don't understand how

bad this really is.

Liz W

>

>

>

> Subject: progesterone intolerance and estrogen cream

> To: rhythmicliving

> Date: Wednesday, June 24, 2009, 10:49 PM

>

>

>

>

>

>

>

>

> Hi everyone!

> Glad to be here on the board. I had not heard of the Wiley protocol but I have

been trying to search for information on progesterone intolerance (there is not

much out there!) and I found the rhythmic living site.

> I will tell my story briefly. I am 38 years old, premenopausal with uterus.

> When I was 23 I had a terrible virus and have had a host of health issues ever

since. I have hashimoto's thyroiditis, asthma, and blood tests have recently

shown that I have adrenal fatigue. I am under treatment for both of these

conditions, as well as depression, which is also chronic.

> I seem to have problems with autoimmune types of things, and I tend to swell

up a lot for mysterious reasons.

> Anyway, through a series of personal trial and error sessions, I actually

ended up learning that estriol cream in highish doses helps many of my health

problems for reasons I don't understand, particularly when combined with a small

amount of estradiol. Almost miraculously.

> I wanted to try this as a real remedy for my situation, but of course I knew I

needed progesterone in the second half of my cycle. I learned quickly that

progesterone makes me really ill. Even bioidentical progesterone in a teeny

little dab makes me really sick, asthmatic, depressed and totally non

functional. I am wondering if progesterone sensitivity is the reason for many of

my health issues (worse during the luteal phase of my cycle)

> So I am finding myself searching everywhere for answers about whether I can

take estrogen unopposed, or if there is any other option.

> I can't understand that something which makes me so sick is necessary for me,

but I don't want endometrial cancer!

> All of my hormone tests are in the normal range, although now my progesterone

is a little highish, and I feel it!

> Any info about any of this would be greatly appreciated!

> Thanks

>

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Hi Colleen

I feel like there has to be a better way to deal with this issue!

Here are some things I have been looking into, which you may have already tried:

Angeliq is a low dose HRT pill that has bioidentical estradiol (1 mg) with a low

dose of drospirenone. This is the same kind of progestin which is in Yaz/Yasmin,

the BCP which is marketed for people with PMS/PMDD because it is apparently more

tolerable.

I actually took Yasmin for a month, and I still had physical side effects from

the progesterone, but I did not get the typical depressive symptoms I usually

get (like you, just awful) with progesterone. I wonder if you could at least try

this type of progesterone instead? I have actually been considering taking this

during the second half of the month if I raise my estrogen dose.

Also, have you looked into intrauterine progesterone? I have read that it is not

as systemic as regular progesterone, although I have to say I am very

doubtful...might be worth a try, though

What kind of progesterone are you on? how do you take it?

I feel for you...I get horrible depression on progesterone which pretty much

renders me nonfunctional. Sometimes I think that doctors don't understand how

bad this really is.

Liz W

>

>

>

> Subject: progesterone intolerance and estrogen cream

> To: rhythmicliving

> Date: Wednesday, June 24, 2009, 10:49 PM

>

>

>

>

>

>

>

>

> Hi everyone!

> Glad to be here on the board. I had not heard of the Wiley protocol but I have

been trying to search for information on progesterone intolerance (there is not

much out there!) and I found the rhythmic living site.

> I will tell my story briefly. I am 38 years old, premenopausal with uterus.

> When I was 23 I had a terrible virus and have had a host of health issues ever

since. I have hashimoto's thyroiditis, asthma, and blood tests have recently

shown that I have adrenal fatigue. I am under treatment for both of these

conditions, as well as depression, which is also chronic.

> I seem to have problems with autoimmune types of things, and I tend to swell

up a lot for mysterious reasons.

> Anyway, through a series of personal trial and error sessions, I actually

ended up learning that estriol cream in highish doses helps many of my health

problems for reasons I don't understand, particularly when combined with a small

amount of estradiol. Almost miraculously.

> I wanted to try this as a real remedy for my situation, but of course I knew I

needed progesterone in the second half of my cycle. I learned quickly that

progesterone makes me really ill. Even bioidentical progesterone in a teeny

little dab makes me really sick, asthmatic, depressed and totally non

functional. I am wondering if progesterone sensitivity is the reason for many of

my health issues (worse during the luteal phase of my cycle)

> So I am finding myself searching everywhere for answers about whether I can

take estrogen unopposed, or if there is any other option.

> I can't understand that something which makes me so sick is necessary for me,

but I don't want endometrial cancer!

> All of my hormone tests are in the normal range, although now my progesterone

is a little highish, and I feel it!

> Any info about any of this would be greatly appreciated!

> Thanks

>

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Hi Ghina

Are you talking about Yasmin? I tried that for a month.

Your logic is interesting. So would that mean that for the time I took

progesteron then I would have a really heavy period that month? because I

wouldn't be taking enough hormones to turn off my period. But this might be

something I could do, but even thinking about prog every three months makes be

bummed out.

Liz W

>

> When I talked to my regular OB/GYN she said that I could be placed on birth

control pills where I have a period only every 3 months. This was medically

acceptable. Why wouldn't it work the same with BHRT?

>

> Take estrogen for 2.5 months and then the last 2 weeks take P for a period.

It wouldn't resolve the progesterone problem, just make it less troublesome in

terms of time?

>

> Ghina

>

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Hi Ghina

Are you talking about Yasmin? I tried that for a month.

Your logic is interesting. So would that mean that for the time I took

progesteron then I would have a really heavy period that month? because I

wouldn't be taking enough hormones to turn off my period. But this might be

something I could do, but even thinking about prog every three months makes be

bummed out.

Liz W

>

> When I talked to my regular OB/GYN she said that I could be placed on birth

control pills where I have a period only every 3 months. This was medically

acceptable. Why wouldn't it work the same with BHRT?

>

> Take estrogen for 2.5 months and then the last 2 weeks take P for a period.

It wouldn't resolve the progesterone problem, just make it less troublesome in

terms of time?

>

> Ghina

>

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Hi Colleen

Yes I have hashi's also. I do think it can slow down your sex hormone activity,

and I agree with Sam that if your thyroid isn't functioning you will feel

worse. Are you on any armour or T3 therapy? That can do wonders for mood and

depression. You are probably doing all that stuff already, but if not, you

should go for it because it will make you feel so much better.

Liz W

> > >

> > >

> > > From: wliz@ <wliz@>

> > > Subject: progesterone intolerance and estrogen cream

> > > To: rhythmicliving@ yahoogroups. com

> > > Date: Wednesday, June 24, 2009, 10:49 PM

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > Hi everyone!

> > > Glad to be here on the board. I had not heard of the Wiley protocol but I

have been trying to search for information on progesterone intolerance (there is

not much out there!) and I found the rhythmic living site.

> > > I will tell my story briefly. I am 38 years old, premenopausal with

uterus.

> > > When I was 23 I had a terrible virus and have had a host of health issues

ever since. I have hashimoto's thyroiditis, asthma, and blood tests have

recently shown that I have adrenal fatigue. I am under treatment for both of

these conditions, as well as depression, which is also chronic.

> > > I seem to have problems with autoimmune types of things, and I tend to

swell up a lot for mysterious reasons.

> > > Anyway, through a series of personal trial and error sessions, I actually

ended up learning that estriol cream in highish doses helps many of my health

problems for reasons I don't understand, particularly when combined with a small

amount of estradiol. Almost miraculously.

> > > I wanted to try this as a real remedy for my situation, but of course I

knew I needed progesterone in the second half of my cycle. I learned quickly

that progesterone makes me really ill. Even bioidentical progesterone in a teeny

little dab makes me really sick, asthmatic, depressed and totally non

functional. I am wondering if progesterone sensitivity is the reason for many of

my health issues (worse during the luteal phase of my cycle)

> > > So I am finding myself searching everywhere for answers about whether I

can take estrogen unopposed, or if there is any other option.

> > > I can't understand that something which makes me so sick is necessary for

me, but I don't want endometrial cancer!

> > > All of my hormone tests are in the normal range, although now my

progesterone is a little highish, and I feel it!

> > > Any info about any of this would be greatly appreciated!

> > > Thanks

> > >

> >

>

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Hi Liz W,

The first 2 months or so on the Progesterone (this was way pre

WP) I got the dizziness and major depression, then the 3rd

month (I’m estimating as I didn’t keep notes) my periods started

getting longer. 8-10 days, with spotting around day 14. That went on for a

couple of months, then continual spotting on the days I didn’t have my

period.

The recovery from the hyst was not hard at all. The difficulties

started when my body went into surgical menopause about 3 weeks later. Just to

be clear, I was not the WP when I got cancer. J

Liz V

From:

rhythmicliving [mailto:rhythmicliving ] On

Behalf Of wliz@...

Sent: Thursday, June 25, 2009 9:35 PM

To: rhythmicliving

Subject: Re: progesterone intolerance and estrogen

cream

Hi again Liz

I realized I am asking you the same questions as my last post. Brain fog!

How did you realize that you had cancer? Did you start bleeding or have other

symptoms? It is crazy that it only took one year on the hormones. Wow. Very

scary.

Was the recovery from the hysterectomy really hard?

These doctors...i don't know.

Liz W

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Hi Liz

Okay, so the period troubles happened when you were on progesterone only,

right? Then after your hysterectomy you tried the WP.

Does hysterectomy actually change the hormonal balance, hence the term surgical

menopause?

Thanks

Liz

>

> Hi Liz W,

>

>

>

> The first 2 months or so on the Progesterone (this was way pre WP) I got

> the dizziness and major depression, then the 3rd month (I'm estimating as I

> didn't keep notes) my periods started getting longer. 8-10 days, with

> spotting around day 14. That went on for a couple of months, then continual

> spotting on the days I didn't have my period.

>

>

>

> The recovery from the hyst was not hard at all. The difficulties started

> when my body went into surgical menopause about 3 weeks later. Just to be

> clear, I was not the WP when I got cancer. J

>

>

>

> Liz V

>

>

>

> From: rhythmicliving [mailto:rhythmicliving ]

> On Behalf Of wliz@...

> Sent: Thursday, June 25, 2009 9:35 PM

> To: rhythmicliving

> Subject: Re: progesterone intolerance and estrogen cream

>

>

>

>

>

>

>

>

> Hi again Liz

> I realized I am asking you the same questions as my last post. Brain fog!

> How did you realize that you had cancer? Did you start bleeding or have

> other symptoms? It is crazy that it only took one year on the hormones. Wow.

> Very scary.

> Was the recovery from the hysterectomy really hard?

> These doctors...i don't know.

> Liz W

>

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My ovaries were removed so instantly, the hormones changed. And as per drs orders (which I have since decided that most don't know what they are talking about in regards to anything.) I was not allowed to use Estrogen for 5 years. That was the stupidest thing. I found out 4 years later, from an oncologist that I could have taken E right from the get go, due to the stage of cancer I had (1b) I suffered for 2 years of horrible menopause symptoms. Then I started doing research and there was NOTHING out there about the type/stage cancer I had that using E was dangerous. I then found a dr online to prescribe me a tiny dose of Estrace, which helped a tiny bit and then I went on a patch, which didn't help at all. In 2003, I read the book SLM, and then I went to a WP dr. in 2004, I started on the WP and was on it for a year (struggling after the first 3 months). on the 12th month cycle, the anxiety hit HARD, and it's been downhill since. Liz

--- Re: progesterone intolerance and estrogen cream > > > > > > > > > Hi again Liz > I realized I am asking you the same questions as my last post. Brain fog! > How did you realize that you had cancer? Did you start bleeding or have > other symptoms? It is crazy that it only took one year on the hormones. Wow. > Very scary. > Was the recovery from the hysterectomy really hard? > These doctors...i don't know. > Liz W >

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Hi Liz-I spent a lot of money with Roby and got very little out of it. He has a one size protocol, but was open to writing scripts on request. He has the business end of things figured out. They have two programs. One is hormones and the other is allergies. Both neatly require the other. Each program was approx. 1,500. I spent 3000. out of pocket and then some for this and that. Roby insisted I get on a decent amount of estrogen. I told him I was using the Vivelle Dot and getting a level of 350 from 2 of them. Waved me off. He wrote a script for E cream for a dose that was LESS than what I was on. All of it was a lot of hyped up amateur hour stuff. You had to watch it every step of the way.Forgot to mention he was an attorney before an allergist. My experience with progesterone was intractable. There was no cycling dose I could tolerate. My level of E required a decent P dose. I was peri meno when I started E, but had no E, P, DHEA, T or GH levels to speak of. All in the dirt. My cortisol barely rose in the morning. Nothing much was working. Scant periods. The bleeding came from high estrogen dosing. After the Roby affair the choice came down to go off of E or get a hysto. Without being too cavalier I'll honestly say that the hysto was a breeze. There was 4 weeks post-op were I was laying around tired. After this it was up and around like nothing ever happened. I was on HC at the time.At one point was up to 32.5 mg of HC. My average dose was 22.5 after I stabilized on it. I honestly didn't think I would get off of it after 3 years on and was fine with this. My weaning was over a 4-5 month period. I certainly went up and up on it until things leveled out. When I was on cytomel I required a higher HC dose. I have NO residual effects from HC other than my adrenals are in better shape than I could have imagined. The whole time I was on HC I was building back with minerals and right foods. Have been following a paleo/WP approach to eating that has made a significant difference as well.With adrenal issues you might want to check the adrenal connection with spiro like progestins. These can whop the adrenals down something fierce. They lower aldosterone I think. I was totally whipped out when on spiro for 9 weeks. Right, if you have this level of progesterone then this might be enough. Are you having bleeds?AG Hi Atlanta Girl,I guess it was worth a shot going to see him, right? All of the things you are dubious about are the same for me. I just don't think miniscule amounts of progesterone sublingually will desensitize someone to progesterone. He seems a little suspicious in too many ways for my comfort!I have tons of questions for you!Why did you initially go on unopposed e? See, this is what freaks me out because your story sounds like mine-adrenal fatigue, thryoid, progesterone intolerance. I am on unopposed e, too, but my blood progesterone levels are high normal.Were you premenol at the time? Were your blood levels of P normal, high, or low? What about e?What caused the bleeding? Endometrial issues or fibroids?This is what I fear will happen to me, although I guess if I got a hysterectomy I could take E unopposed, but I worry about the recorvery and my hormone balance. How was that for you?Also, how much HC to you get up to and how long did it take to wean off of it? I feel like I keep having to go up and up on it! Do you have any residual effects from the HC?The only option I am really considering now regarding P is taking angeliq, which is low dose HRT with the prog that is like spironolactone. I would cut the pill in half and take it for the last part of my cycle. Still I don't know if that would be enough to protect my lining. But this is all so confusing for me because Sam brought up the point that since I have high-normal progesterone levels then I shouldn't worry about this...arg!I am glad you figured it all out!Liz W

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Hi Atlanta Girl

I think I have seen your name on the RT3 boards, also, so you must have thyroid

resistance on top of everything. Me too! Arg!

Yeah, the Roby story sounds like what I sort of suspected. Too bad.

Why did you decide to go on high doses of estro instead of a low dose unopposed?

Were you really low and needed to get the levels higher fast?

I feel like I could raise my e dose now. I am on 0.25 patch and I feel totally

prog dominant (blood levels are high normal). PMA was a nightmare for me this

month, I had to stress dose HC all night long because I had asthma and a racing

heart with adrenaline rushes. It was so awful.

I am glad to hear that your hysterectomy was a breeze! Does having a

hysterectomy actually change hormone levels? Or is it only when the ovaries are

taken out that that is the case?

The point you raised about the spiro-like progesterone is something I have

thought about. I do tend to have low aldosterone levels so it is worrying.

How are you feeling now?

Thanks

Liz W

>

>

> Hi Liz-

>

> I spent a lot of money with Roby and got very little out of it. He

> has a one size protocol, but was open to writing scripts on request.

> He has the business end of things figured out. They have two

> programs. One is hormones and the other is allergies. Both neatly

> require the other. Each program was approx. 1,500. I spent 3000. out

> of pocket and then some for this and that.

>

> Roby insisted I get on a decent amount of estrogen. I told him I was

> using the Vivelle Dot and getting a level of 350 from 2 of them.

> Waved me off. He wrote a script for E cream for a dose that was LESS

> than what I was on. All of it was a lot of hyped up amateur hour

> stuff. You had to watch it every step of the way.

>

> Forgot to mention he was an attorney before an allergist.

>

> My experience with progesterone was intractable. There was no cycling

> dose I could tolerate. My level of E required a decent P dose. I was

> peri meno when I started E, but had no E, P, DHEA, T or GH levels to

> speak of. All in the dirt. My cortisol barely rose in the morning.

> Nothing much was working. Scant periods.

>

> The bleeding came from high estrogen dosing. After the Roby affair

> the choice came down to go off of E or get a hysto. Without being too

> cavalier I'll honestly say that the hysto was a breeze. There was 4

> weeks post-op were I was laying around tired. After this it was up

> and around like nothing ever happened. I was on HC at the time.

>

> At one point was up to 32.5 mg of HC. My average dose was 22.5 after

> I stabilized on it. I honestly didn't think I would get off of it

> after 3 years on and was fine with this. My weaning was over a 4-5

> month period. I certainly went up and up on it until things leveled

> out. When I was on cytomel I required a higher HC dose. I have NO

> residual effects from HC other than my adrenals are in better shape

> than I could have imagined. The whole time I was on HC I was building

> back with minerals and right foods. Have been following a paleo/WP

> approach to eating that has made a significant difference as well.

>

> With adrenal issues you might want to check the adrenal connection

> with spiro like progestins. These can whop the adrenals down

> something fierce. They lower aldosterone I think. I was totally

> whipped out when on spiro for 9 weeks.

>

> Right, if you have this level of progesterone then this might be

> enough. Are you having bleeds?

>

> AG

>

>

>

> Hi Atlanta Girl,

> I guess it was worth a shot going to see him, right? All of the things

> you are dubious about are the same for me. I just don't think

> miniscule amounts of progesterone sublingually will desensitize

> someone to progesterone. He seems a little suspicious in too many ways

> for my comfort!

> I have tons of questions for you!

> Why did you initially go on unopposed e?

> See, this is what freaks me out because your story sounds like mine-

> adrenal fatigue, thryoid, progesterone intolerance. I am on unopposed

> e, too, but my blood progesterone levels are high normal.

> Were you premenol at the time?

> Were your blood levels of P normal, high, or low? What about e?

> What caused the bleeding? Endometrial issues or fibroids?

> This is what I fear will happen to me, although I guess if I got a

> hysterectomy I could take E unopposed, but I worry about the recorvery

> and my hormone balance. How was that for you?

> Also, how much HC to you get up to and how long did it take to wean

> off of it? I feel like I keep having to go up and up on it! Do you

> have any residual effects from the HC?

> The only option I am really considering now regarding P is taking

> angeliq, which is low dose HRT with the prog that is like

> spironolactone. I would cut the pill in half and take it for the last

> part of my cycle. Still I don't know if that would be enough to

> protect my lining. But this is all so confusing for me because Sam

> brought up the point that since I have high-normal progesterone levels

> then I shouldn't worry about this...arg!

> I am glad you figured it all out!

> Liz W

>

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Hi Atlanta Girl

One more question

How much estro were you taking? 2 mg? Figuring out estro dosing is hard for

me...

I can't believe Roby said your uterine lining would not build! What did he say

when you were bleeding like crazy??

Arg!

Thanks

Liz

>

>

> Hi Liz-

>

> I spent a lot of money with Roby and got very little out of it. He

> has a one size protocol, but was open to writing scripts on request.

> He has the business end of things figured out. They have two

> programs. One is hormones and the other is allergies. Both neatly

> require the other. Each program was approx. 1,500. I spent 3000. out

> of pocket and then some for this and that.

>

> Roby insisted I get on a decent amount of estrogen. I told him I was

> using the Vivelle Dot and getting a level of 350 from 2 of them.

> Waved me off. He wrote a script for E cream for a dose that was LESS

> than what I was on. All of it was a lot of hyped up amateur hour

> stuff. You had to watch it every step of the way.

>

> Forgot to mention he was an attorney before an allergist.

>

> My experience with progesterone was intractable. There was no cycling

> dose I could tolerate. My level of E required a decent P dose. I was

> peri meno when I started E, but had no E, P, DHEA, T or GH levels to

> speak of. All in the dirt. My cortisol barely rose in the morning.

> Nothing much was working. Scant periods.

>

> The bleeding came from high estrogen dosing. After the Roby affair

> the choice came down to go off of E or get a hysto. Without being too

> cavalier I'll honestly say that the hysto was a breeze. There was 4

> weeks post-op were I was laying around tired. After this it was up

> and around like nothing ever happened. I was on HC at the time.

>

> At one point was up to 32.5 mg of HC. My average dose was 22.5 after

> I stabilized on it. I honestly didn't think I would get off of it

> after 3 years on and was fine with this. My weaning was over a 4-5

> month period. I certainly went up and up on it until things leveled

> out. When I was on cytomel I required a higher HC dose. I have NO

> residual effects from HC other than my adrenals are in better shape

> than I could have imagined. The whole time I was on HC I was building

> back with minerals and right foods. Have been following a paleo/WP

> approach to eating that has made a significant difference as well.

>

> With adrenal issues you might want to check the adrenal connection

> with spiro like progestins. These can whop the adrenals down

> something fierce. They lower aldosterone I think. I was totally

> whipped out when on spiro for 9 weeks.

>

> Right, if you have this level of progesterone then this might be

> enough. Are you having bleeds?

>

> AG

>

>

>

> Hi Atlanta Girl,

> I guess it was worth a shot going to see him, right? All of the things

> you are dubious about are the same for me. I just don't think

> miniscule amounts of progesterone sublingually will desensitize

> someone to progesterone. He seems a little suspicious in too many ways

> for my comfort!

> I have tons of questions for you!

> Why did you initially go on unopposed e?

> See, this is what freaks me out because your story sounds like mine-

> adrenal fatigue, thryoid, progesterone intolerance. I am on unopposed

> e, too, but my blood progesterone levels are high normal.

> Were you premenol at the time?

> Were your blood levels of P normal, high, or low? What about e?

> What caused the bleeding? Endometrial issues or fibroids?

> This is what I fear will happen to me, although I guess if I got a

> hysterectomy I could take E unopposed, but I worry about the recorvery

> and my hormone balance. How was that for you?

> Also, how much HC to you get up to and how long did it take to wean

> off of it? I feel like I keep having to go up and up on it! Do you

> have any residual effects from the HC?

> The only option I am really considering now regarding P is taking

> angeliq, which is low dose HRT with the prog that is like

> spironolactone. I would cut the pill in half and take it for the last

> part of my cycle. Still I don't know if that would be enough to

> protect my lining. But this is all so confusing for me because Sam

> brought up the point that since I have high-normal progesterone levels

> then I shouldn't worry about this...arg!

> I am glad you figured it all out!

> Liz W

>

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Liz-Yes, I was an active member of the RT3 board for a year. I followed a personalized version of the RT3 protocol they espouse there. All cytomel with strong adrenal support, raising ferritin, rest, learning to say *No*, minding minerals, etc. It worked for me. Before I started the plan I was on 6 grains of armour, painfully tired and not able to feel the thyroid at all. Clearing the Rt3 with cytomel while I worked on things was the ticket. Presently I am on 2 3/4 grains and can feel a slight dose change for once. So no more tissue resistance!When I started E I was simultaneously working with variations of P dosing. Two years of experimenting. By the time I reached the end of all options I was "hooked" on higher E and unwilling to lower it to .05 mg or below. Sorry you are having to deal with those nasty p and adrenal sx. I FEEL for you! It's hell. I've had my share of them. You didn't say if you have monthly bleeds or not, but I would think you could have your endometrial lining checked to see if your E was building as you increased it. Some of your sx might clear just from raising e alone!I had a partial hysto with ovaries intact. No post-hysto hormone changes that I could discern. Right now I am feeling the best ever. It's been hard earned every nerve wracking step of the way. I did it all backwards. Truly I left no stone unturned in my search to recover my wellness. It all started with a few bouts of severe shedding when I was 42 and for 8 years it's been an expensive tripped up odyssey of trial and error. But I dug up what's important to me- endurance, hair, adrenals and joy. (But I'm also forced daily to defend it from vampireous encounters!)Keep at it Liz!AGHi Atlanta GirlI think I have seen your name on the RT3 boards, also, so you must have thyroid resistance on top of everything. Me too! Arg!Yeah, the Roby story sounds like what I sort of suspected. Too bad.Why did you decide to go on high doses of estro instead of a low dose unopposed? Were you really low and needed to get the levels higher fast?I feel like I could raise my e dose now. I am on 0.25 patch and I feel totally prog dominant (blood levels are high normal). PMA was a nightmare for me this month, I had to stress dose HC all night long because I had asthma and a racing heart with adrenaline rushes. It was so awful.I am glad to hear that your hysterectomy was a breeze! Does having a hysterectomy actually change hormone levels? Or is it only when the ovaries are taken out that that is the case?The point you raised about the spiro-like progesterone is something I have thought about. I do tend to have low aldosterone levels so it is worrying.How are you feeling now? ThanksLiz W

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Roby said I was bleeding because I wasn't on enough E. I was on 2 .2 mg V Dot patches I think. My E levels were 350-380. Roby was a loose cannon when I look back. He didn't think I needed P, but that made no sense as I was bleeding each day and not having periods. *eye roll*AGHi Atlanta GirlOne more questionHow much estro were you taking? 2 mg? Figuring out estro dosing is hard for me...I can't believe Roby said your uterine lining would not build! What did he say when you were bleeding like crazy??Arg!ThanksLiz

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Thanks AG

Very inspiring message!

I am still having periods, I am trying to find a gyn. now who will give me an

endometrial biopsy to see where I am at. Where you on E when the RT3 was

happening? Could that have contributed?

Thanks

Liz W

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