(No subject)

[Guest guest]

Hi :

It is Amerge -- I type it daily for the neurologists I transcribe for.

Pat

[Guest guest]

Thank you Donna, Today, two different test were done on Don, and he was a

bit woozy. He was confused because of being in a strange place, and after I

came home yesterday, he called. " Honey, where are my pants? I need my pants!

Where are my shoes?They left me in some place with no clothes. I need my

clothes. "

I calmed him down and told him I was washing his clothes, and I would bring

them tomorrow. Yes, I was tired. Too tired. I counted how long I sat awake on

that straight chair in emergency. 13 1/2 hours. After I left, taking the bag

of clothes with me (which he forgot I had done) I washed a load, and finally

at 4 PM I conked out for two hours. At nine I went back to bed for the

night, but my stomach started acting up from the cortisone I am taking, at 4:30

AM, and I had to get up. It hasn't happened before good old cortisone. UGH!

Today he was confused a number of times. If I hadn't insisted he would not

have taken a shower, or shaved, and brushed his teeth and hair. He fussed I

can't find any soap. I said use the Hospital's soap. Then he fussed because he

didn't have his shaving kit. I showed him where he had put it. Quite a few

things like that happened. He is in a strange place and it is showing. He

called and begged, " Honey I need you, I don't know where I am. " I calmed him

again, then cried when I hung up. Yet, he was with it enough to remember our

phone number. He couldn't remember where the kids phone numbers were even

though

I had just written them down. I told him where he had put the pad right by

his bed.

My kids came by the hospital this afternoon and said, " Mom, we aren't

worried about Papa here, because he is in a place to get care, but we are

worried

about you. Now, GO HOME. It's not that we don't love you. But please go

home. " I pooched out my lips and wailed, you don't love me no more. " (grin) I

came home. Feels good. And I am glad to read your mail, and relax.

Love to all of you,

Imogene

Caregiver for my True Texas Gentleman husband of 35 years. He has LBD with

Parkinsonism.

In a message dated 7/1/2006 3:01:03 PM Central Daylight Time,

twomido@... writes:

Imogene,

Sorry about your long hours up and hope by now you have shut the computer

off and are asleep. You can read this when you wake up.

Have a good sleep my friend, so you can be ready to return and take care of

that " true Texas Gentleman. "

Hugs and prays coming your way.

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th

year in a nh.

She was almost 89 when she died in '02

No dx other than mine.

-----Original Message-----

From: Iward27663@...

Sent: Saturday, July 1, 2006 3:44 PM

To: LBDcaregivers

Subject: (no subject)

Hello everyone,

Dixie form the Subject heading on so many letters I realize that your

has gone. I am sorry. It is most painful, and I wish you all the strength

love

can bring at this time. I am really sorry.

Now about our events I am so blurred eyed I can hardly write, but wanted to

let you know what happened to us last night.

My Don is in the hospital. He had big time chest pain, so I took him up

there, one mile.

He is still in ER. Arrived there at 1:30 AM, and of course I hadn't even

gone to sleep yet. He is going to be put in the Cardiac unit, but I don't

know

when. I have gone over 30 hours with no sleep at all, and am a zombie. He

is

doing fine, but they think it's one of three stents he has that is acting up

again. I thought he had two stents, but the Doctors assured us today that he

has three. They aren't always explicit at the time of the procedure.

So more test to find the answer. Of course when he is sick he can't answer

questions, or give a correct answer when he does answer. Doctor after

Doctor

came by to talk and ask questions. Such as it is in a huge Teaching

Hospital.

Thank goodness for my printed page of information.

By the way our hospital has been rated in the top 50 of the nation. When

you

think of how many there are, then we hold a pretty high record.

I called the kids and told them I am going to crash, so not to be calling

me.

I am far more sorry for you Dixie. My situation actually pales beside

yours.

It rather puts ours in a whole new perspective.

I guess I am just " Frabby. "

Love a bunch,

Imogene

Caregiver for my True Texas Gentleman husband of 35 years. He has LBD with

Parkinsonism.

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Guest guest]

Hi, I can so relate to what you are saying with the listlessness and lack of

desire to do anything. I have a maid come in to help me get a few things done

twice a week. The only thing that I find that really makes me happy is doing art

online.

 

I get so spacy I told the doctor if I ever got altzeimers no one would catch on.

They would say I had been that way for years! Have asked questions on the site

that I already knew the answer to but was so spacey or stressed at the time I

could not think.

 

There is one thing though and what you are going through is not normal. I would

check into any of the medications you may be taking just to see if the problem

lies in them first. Ask your pharmacist and doctor. Also, sleep is essential. I

know that I hardly ever get any and that makes me really not want to do

anything.

 

Do you get out at all? I know I don't and I also know as I tell you this that we

really should make an extra effort.  Find a place you like to go such as church,

the library, the musuem, whereever it is you can get out and do something. Gosh,

now I will have to do these things too or be called a hypocrit.

 

Bottom line in my life is this. I am very disabled and I think under all of it

at times we feel useless. Not a great place to be so find something even if it

is small that makes you happy. Write a song, draw a picture, volunteer to sort

buttons or some easy thing you can do at some thrift store for a needy cause.

The plus of doing this will first make you feel you are getting in stride again

and also you will get out to meet others. We are beings of action. That is one

thing about the human race. We need to do something to stay in balance.

 

Hope this helps a bit and keep in mind this, that no matter how rough it gets,

this too shall pass. Think happy and possitive thoughts on healing. If you would

like to take up art on line then feel free to drop me an email and I will send

you all the sties to go doodle on. Some of them are really good and a great way

to have fun. God Bless and hoping you feel better soon!