Re: another chaotic week/Courage

[Guest guest]

HI Courage,

I too think because we are married, I was able to work it out without a POA.

I was worried when Jim was first admitted to the Nursing Home that I would

have no say in his well-being since Jim's daughter has the Health Directive POA

for Jim and she has no clue about his medications or about LBD, even though I

sent her everything about it. I mentioned to both the hospital staff and the

nursing home staff that Jim's daughter knew nothing about Jim's disease and

couldn't answer any of their questions if she was asked and the first few times

the emergency doctors called her they found out she was of no help and a few

times she even got angry with them for calling her in the wee hours of the

morning when Jim was in emergency, because they interrupted her sleep. They no

longer call her except for in a real extreme emergency, it must be noted in the

charts that she has attitude, because in the beginning the emergency doctors

would always say they would have to call her to make sure she is agreeable to

what is going on and I would say, that's fine, knowing

they would be frustrated when they returned to tell me about her attitude. LOL

They never telll me they have to call her anymore. I remember when I was

admitting Jim to the nursing home and contacted the hospital social worker, she

and a doctor and nurse made plans to include Jim's daughter in the plans to

transition Jim to the nursing home and when they called Jim's daughter, she was

a little abrupt with them and said she had to work. They came to me and said you

are right, she is hard to get hold of, we will work this out without her and we

did.

gaat wrote:

Thanks for the response Jan. I wasn't sure if someone without POA could

arrange placement in a NH but your story illustrates that this can be done.

Perhaps because you are a married couple?

Hope you and Jim are well.

Courage

[Guest guest]

Courage, I fogot to mention, Jim and I are well. Jim is still on antibiotics for

a UTI. He has a bacteria called, Proteus Mirabilis. First the emergency doctor

put him on Cipro and then I brought Jim back to emergency, I wrote about that

and he was put on 2 Cipro two times a day and then we visited the Urologist that

decided to put him on Septra and now he is on Septra. Jim still has a catheter,

because he has retention. The Urologist took the catheter off last Monday and

Jim still has retention, so it went back on. The Urologist says it is not Jim's

prostate. He thought it was a blood clot blocking the passage, but there are no

blood clots now. I am wondering if the muscles used to urinate just aren't

working for Jim anymore. The Urologist thinks it is because Jim is dehydrated,

but he drinks really well on the weekends at home and they say he drinks at the

Home too and they are watching his intake. Poor guy! Anyway, we were just in to

see the Urologist yesterday,

Monday, and they put the bag back on Jim and they told me to remove the

catheter in the morning before he goes in for his next appointment. HUH?!

Shouldn't they do that? It's a Foly Catheter. I told her I saw that commercial

with the doctor that tells the guy to do his own surgery with a scalpel and

guides him through it over the phone tellilng him it's easy and he, the doctor,

said he would be back next week. That is how I felt. The nurse said oh it's

easy, just snip off the little tubing and it will deflate and then pull it out

and have Jim cough while pulling it out. OMG! Are we to the point now where we

are doing the doctor's work?! I can change the bag fine, but pull out the

catheter!?

gaat wrote:

Thanks for the response Jan. I wasn't sure if someone without POA could

arrange placement in a NH but your story illustrates that this can be done.

Perhaps because you are a married couple?

Hope you and Jim are well.

Courage

[Guest guest]

Jan,

I can't believe they told you to remove the cath. I wouldn't touch that with a

10 foot pole. That is something someone else would have to do if it were me.

You are right about that commercial. Were they serious?

Hugs,

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in

a nh.

She was almost 89 when she died in '02. No dx other than mine.

Re: another chaotic week/Courage

Courage, I fogot to mention, Jim and I are well. Jim is still on antibiotics for

a UTI. He has a bacteria called, Proteus Mirabilis. First the emergency doctor

put him on Cipro and then I brought Jim back to emergency, I wrote about that

and he was put on 2 Cipro two times a day and then we visited the Urologist that

decided to put him on Septra and now he is on Septra. Jim still has a catheter,

because he has retention. The Urologist took the catheter off last Monday and

Jim still has retention, so it went back on. The Urologist says it is not Jim's

prostate. He thought it was a blood clot blocking the passage, but there are no

blood clots now. I am wondering if the muscles used to urinate just aren't

working for Jim anymore. The Urologist thinks it is because Jim is dehydrated,

but he drinks really well on the weekends at home and they say he drinks at the

Home too and they are watching his intake. Poor guy! Anyway, we were just in to

see the Urologist yesterday,

Monday, and they put the bag back on Jim and they told me to remove the

catheter in the morning before he goes in for his next appointment. HUH?!

Shouldn't they do that? It's a Foly Catheter. I told her I saw that commercial

with the doctor that tells the guy to do his own surgery with a scalpel and

guides him through it over the phone tellilng him it's easy and he, the doctor,

said he would be back next week. That is how I felt. The nurse said oh it's

easy, just snip off the little tubing and it will deflate and then pull it out

and have Jim cough while pulling it out. OMG! Are we to the point now where we

are doing the doctor's work?! I can change the bag fine, but pull out the

catheter!?

gaat wrote:

Thanks for the response Jan. I wasn't sure if someone without POA could

arrange placement in a NH but your story illustrates that this can be done.

Perhaps because you are a married couple?

Hope you and Jim are well.

Courage

[Guest guest]

You know Jan I just don't get it. Don't these people ever stop to think about

what they are doing or in this case what they aren't doing? On my meaner days I

wish for them what they are doing to their family member and on better days I

just hope they go away. I so hear you about people being made to take on more

of the medical procedure part of our health care. Even having babies have

changed. I stayed in hospital for a week when I had mine and today they send

you home the next day. I told my daughter that pretty soon they are going to

have the mothers deliver in the parking lot with a camera trained on them - a

drive through delivery. Strength to you and Jim.

Courage

[Guest guest]

Hello All,

Re: the Catherer post from Janet don't we all know that

expect US THE CAREGIVER to do it all.

Re: another chaotic week/Courage

Courage, I fogot to mention, Jim and I are well. Jim is still on antibiotics for

a UTI. He has a bacteria called, Proteus Mirabilis. First the emergency doctor

put him on Cipro and then I brought Jim back to emergency, I wrote about that

and he was put on 2 Cipro two times a day and then we visited the Urologist that

decided to put him on Septra and now he is on Septra. Jim still has a catheter,

because he has retention. The Urologist took the catheter off last Monday and

Jim still has retention, so it went back on. The Urologist says it is not Jim's

prostate. He thought it was a blood clot blocking the passage, but there are no

blood clots now. I am wondering if the muscles used to urinate just aren't

working for Jim anymore. The Urologist thinks it is because Jim is dehydrated,

but he drinks really well on the weekends at home and they say he drinks at the

Home too and they are watching his intake. Poor guy! Anyway, we were just in to

see the Urologist

yesterday,

Monday, and they put the bag back on Jim and they told me to remove the catheter

in the morning before he goes in for his next appointment. HUH?! Shouldn't they

do that? It's a Foly Catheter. I told her I saw that commercial with the doctor

that tells the guy to do his own surgery with a scalpel and guides him through

it over the phone tellilng him it's easy and he, the doctor, said he would be

back next week. That is how I felt. The nurse said oh it's easy, just snip off

the little tubing and it will deflate and then pull it out and have Jim cough

while pulling it out. OMG! Are we to the point now where we are doing the

doctor's work?! I can change the bag fine, but pull out the catheter!?

gaat <gaatrogers (DOT) com> wrote:

Thanks for the response Jan. I wasn't sure if someone without POA could arrange

placement in a NH but your story illustrates that this can be done. Perhaps

because you are a married couple?

Hope you and Jim are well.

Courage