Re: Need some support

[Guest guest]

Hi , Tammy

My name is Jill.

I too have had FM and perhaps CFS since childhood; with insomnia, difficulty

getting and remaining asleep, pains in places that I hadn't done anything to.

I'm 63 now. Undiagnosed except for when a doctor told me I had myagia rheumatica

after the birth of my second child.

I had a flare with the accomanying fog and cognitive problems again this spring

and am now at home. This caused a loss of my job and I had to leave school. I

seem to feel better away from flourescent lights and being able to sleep when I

am tired. My goal is to get myself on the correct schedule for the supplements

and meds that help.

Right now I am struggling with not wanting to eat and that does exacerbate the

problems since I then remain in a state of malnourishment. I have found I do

feel better now that I am off of gluten-containing products. It will take around

6 months for my intestines to heal and then I will see what I can do next.

Resource books I have found useful is The Fibromyalgia Advocate written by Devin

J Starlanyl, MD ( who has the disorder) and Fatigued to Fantastic by

Teitelbaum, MD.

I read and checked what symptoms I had against what was told in the books and

made a list.

Many good wishes for you.

Jill

In fibromyalgiacured , Lorre Hillier wrote:

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> Hi Tammy,

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> My name is Lorrie, I am 54 todayl, I have suffered FM/ME/CFS for to many years

to count. I remember having CFS since I was 15. Then I started to get migraines

since 19, also was very depressed, that is when I started on

anit-depressants,Which at that time they were just learning about depression,

Nothing about FM,  =About 20 years later I was diagnosed with FM. Some people

have been healed from FM, but other times it just goes on, like me.I feel for

you pain, Knowledge is the best medicine, They also have a feew med out there

that may work for you. It is different for everyone, but the symptons can be the

same. I started researching FM 20 years  ago. I have more symptoms than I did

then. The ME/CFS is what gets me the most,I am tired all the time, my low back

and legs hurt all the time. I also have other illness that I am getting treated

for such as restless leg syndrome. It used to drive me crazy, the DR. perscribed

Carbandoba and it works great..

>

> I hope this is helpfull to you  in some way. Somtimes just knowing what is 

wrong is a relief..

>

> You are more than welcome to E-mail me at lorrie4real@... If you have any

questons

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> Lorrie

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> Subject: Re: Need some support

> To: fibromyalgiacured

> Date: Friday, June 12, 2009, 11:36 AM

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> Hi Tammy:

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> I'm Sheryl Ann and I know what you're going through. I'm 48 and I used to

think that I only had this for x number of years. That was until family members

started remembering that as a young girl I had horrid problems with wanting to

sleep in, which of course got me into trouble; but I did begin to remember and

so there is a chance that I've had the chronic fatigue since a young girl.

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> Regardless, this illness is one that changes over time and based on whatever

is going on in your life and the weather. For example, if your stress is high,

if you don't originally have the chronic fatigue part of the illness, continuing

high stress brings on that aspect of it and you might end up with both FM and

ME/CFS. The reason that those of us who've been dealing with this illness for a

length of time use the ME/CFS like this has to do with deep medical wording

ME-Myalgic Encephalomyelitis and the more commonly known name of CFS-Chronic

Fatigue Syndrome; the latter which most people hate and which there was a huge

internet vote on last year, but stayed.

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> I've probably already given you too much information. What I really want to

say is to love yourself just the way you are. Try to ignore anyone who is being

stupid or uneducated about this. Tho if it is a family member or friend etc. I

just finished creating a spot on the Yahoo Groups site for people like this so

that we with the illness can in a kind way educate them, so that they can

understand us better at Yahoo Groups " sofafamily " .

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> Welcome to understanding people on this Group site.

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> > Hi my name is Tammy I am 37yrs old and have been ill for 6yrs. I am so tired

of doctors, meds and surgery. No one understands what FM is like and all the

other problems I have. Just looking for others like me who can understand what I

am going through.

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[Guest guest]

Well Tammy,

We are here for you & others as well. I have had Fibro since I was small I

think & I am 51 now.

I take a lot of different meds. My thyroid is enlarged & doesn't work at all.

Now I am on the real Armour thyroid a lot of my symptoms have gone away. I now

have clear thinking, which I didn't have before. Starting to loose weight again

as well. I think I am around 190 now. I was up to 201 a few months ago. I am

trying to keep working out to . The excersize is gentle, but

vigirious. He does a total workout. I just do a little each day & build up to

it. I am also hoping to get a place with a swimming pool to help with the

excersize as well.

Take Care,

Marie

>

> Hi my name is Tammy I am 37yrs old and have been ill for 6yrs. I am so tired

of doctors, meds and surgery. No one understands what FM is like and all the

other problems I have. Just looking for others like me who can understand what I

am going through.

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[Guest guest]

> >

> > Hi my name is Tammy I am 37yrs old and have been ill for 6yrs. I am so tired

of doctors, meds and surgery. No one understands what FM is like and all the

other problems I have. Just looking for others like me who can understand what I

am going through.

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