Guest guest Posted February 17, 2000 Report Share Posted February 17, 2000 , is adopted and was institutionalized from infancy till the age of 51/2. When he came to us at the age of 51/2 he was the size of a 2 year old, had a g-tube yet, knew less than 10 words in sign, could not walk unassisted, couldn't chew food, and was still in diapers. We got him in May and started him in a diagnostic classroom in Sept. Over that first summer we worked on potty training, walking, sign language, eating along with allot of transition issues. He was and still is my miracle kid. By Sept. he was eating, allllmost potty trained, walking in-between falling down ;O), knew the alphabet, colors, counting to 20, and many new words in sign. I kept telling them he should go right into the hearing impairment classroom but they did not agree with me until about 3 weeks into the start of the diagnostic classroom. The g-tube and the schools red tape keep him in the diagnostic class for the rest of the school year. The g-tube was removed by Nov. of the first year. He was almost 7 when he started kindergarten in the hearing impairment program. He did real well until 4th grade at which time he hit overload. From the age of 51/2 to 11 he took so much information in that he needed a break. The teachers where great and picked up on the fact that was not absorbing information anymore. He was overwhelmed and needed a break so we all agreed to have him repeat 4th grade. That's all he needed and got back onto schedule. Then in the 8th grade the only option given to us was either to bring him back to our home school with an interpreter or the deaf school. I'm still trying to figure this one out but the hearing impairment program only existed up till the 8th grade. I had researched the requirements for interpreters hired through the school district and found that they didn't have to hire a certified interpreter. They would only pay minimum wage and I felt wouldn't get adequate and fair schooling in the home district. He was lonely at home as it was. How would it be for him in a school where the only one he could communicate (maybe) with would be an adult interpreter. Soooooo the teachers and I both agreed that since had the right to attend school through the year of his 21st birthday that we had the time to let him repeat 8th grade in the hearing impairment program and I would work with some other parents at canvassing to get a senior high program started for hearing impairment. We were successful but threw me a curve ball in that he decided to attend the School for the Deaf over that years time. We realized in time that did have some issues with independent living skills that weren't going away. Because of this did not go on to college. Instead he spent a year at Helen Keller National Center for Deaf /Bind Youths and Adults in New York State. There he went through job and life skill evaluation and training. It's been determined that will always need support in independent living. He is high functioning but does not have all the skills he needs to live independently safely. Currently he is living here with us, working 2 days a week, and has some deaf support in the community. With God's help we will have a home up and running sometime this summer for and three of his friends who are also deaf. I've gotten allot of help from the deaf community in making the idea of this home into a reality. The home will be supported by people who are deaf or hearing people with proper skills in ASL signing. It will the first home of its' kind here in PA through waiver funding. It hasn't been easy but it has been well worth the fight. Vicki mom to (24) Quote Link to comment Share on other sites More sharing options...
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