Re: Attention -- Massachusetts caregivers...

[Guest guest]

Here's the link to watch last night's interview with Dr.

Graboys, a retired cardiologist with Parkinson's & LBD:

http://wbztv.com/video?cid=155

Here's a link to an excerpt of his upcoming book:

http://wbztv.com/reference/Alzheimers.Disease.Book.2.607549.html

(ps - how deceiving, he says he has PD & LBD in the interview, but

WBZ still writes " alzheimers disease book " in their link... tut tut

tut... no wonder everyone's confused by what we tell them - they

don't listen)

They mentioned another part of the interview will be on tonight's

news -- not sure if this means every night this week, or just one

more segment. Will email that link to.

> >

> > Heard through the grapevine that on Monday, 12/10 at 11 PM on the

WBZ

> > Channel 4 News station, a person with LBD will be interviewed.

After

> > the interview a link should be available on their website for

viewing

> > after 12/10... so will post it when it's there... in the

meantime, if

> > you're in MA you may want to watch the 11 PM News on 12/10 to

view

> the

> > interview yourself.

> >

>

[Guest guest]

Thank you . It is always enlightening to hear the first hand

explanation of dealing

with PDD/LBD, the fear, anger, feeling the need to hide symptoms, be the best

you can be,

fear of being out in a social gathering, of dealing with everyday activities. I

look forward

to reading his book.

> > >

> > > Heard through the grapevine that on Monday, 12/10 at 11 PM on the

> WBZ

> > > Channel 4 News station, a person with LBD will be interviewed.

> After

> > > the interview a link should be available on their website for

> viewing

> > > after 12/10... so will post it when it's there... in the

> meantime, if

> > > you're in MA you may want to watch the 11 PM News on 12/10 to

> view

> > the

> > > interview yourself.

> > >

> >

>

[Guest guest]

,

Thanks. Very interesting interview. The piece mentions that the

couple's story will be told on Tuesday night. Can you give us that

link as well (tomorrow)?

Thanks,

Robin

> > >

> > > Heard through the grapevine that on Monday, 12/10 at 11 PM on

the

> WBZ

> > > Channel 4 News station, a person with LBD will be interviewed.

> After

> > > the interview a link should be available on their website for

> viewing

> > > after 12/10... so will post it when it's there... in the

> meantime, if

> > > you're in MA you may want to watch the 11 PM News on 12/10 to

> view

> > the

> > > interview yourself.

> > >

> >

>

[Guest guest]

This is a must have book, . The beginning is just like my poor Don

displays.

The Excerpt kept my attention. Yes, a lot of people still have a lot to

learn, and do I.

Thank you so much,

Love all around,

Imogene

In a message dated 12/11/2007 4:43:04 AM Central Standard Time,

octoryrose@... writes:

Here's the link to watch last night's interview with Dr.

Graboys, a retired cardiologist with Parkinson's & LBD:

http://wbztv.com/video?cid=155

Here's a link to an excerpt of his upcoming book:

http://wbztv.com/reference/Alzheimers.Disease.Book.2.607549.html

(ps - how deceiving, he says he has PD & LBD in the interview, but

WBZ still writes " alzheimers disease book " in their link... tut tut

tut... no wonder everyone's confused by what we tell them - they

don't listen)

They mentioned another part of the interview will be on tonight's

news -- not sure if this means every night this week, or just one

more segment. Will email that link to.

> >

> > Heard through the grapevine that on Monday, 12/10 at 11 PM on the

WBZ

> > Channel 4 News station, a person with LBD will be interviewed.

After

> > the interview a link should be available on their website for

viewing

> > after 12/10... so will post it when it's there... in the

meantime, if

> > you're in MA you may want to watch the 11 PM News on 12/10 to

view

> the

> > interview yourself.

> >

>

**************************************See AOL's top rated recipes

(http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

[Guest guest]

Thanks for the link . It was very good. Looking forward to seeing the

next part. I found it interesting how he mentioned the fatigue as being a big

part of the disease. I thought it was the medication making my mom tired all

the time, but maybe it's the disease.

Doris, daughter of Ramona, 78yrs old, first diagnosed with AD in Sep 2004, then

changed to LBD in March of 2005. Living independently with much support until

now. On waiting list for NH. Meds: Reminyl, Wellbutrin and Seroquel.

(Mississauga, Canada)

Re: Attention -- Massachusetts caregivers...

Here's the link to watch last night's interview with Dr.

Graboys, a retired cardiologist with Parkinson's & LBD:

http://wbztv. com/video? cid=155

Here's a link to an excerpt of his upcoming book:

http://wbztv. com/reference/ Alzheimers. Disease.Book. 2.607549. html

(ps - how deceiving, he says he has PD & LBD in the interview, but

WBZ still writes " alzheimers disease book " in their link... tut tut

tut... no wonder everyone's confused by what we tell them - they

don't listen)

They mentioned another part of the interview will be on tonight's

news -- not sure if this means every night this week, or just one

more segment. Will email that link to.

> >

> > Heard through the grapevine that on Monday, 12/10 at 11 PM on the

WBZ

> > Channel 4 News station, a person with LBD will be interviewed.

After

> > the interview a link should be available on their website for

viewing

> > after 12/10... so will post it when it's there... in the

meantime, if

> > you're in MA you may want to watch the 11 PM News on 12/10 to

view

> the

> > interview yourself.

> >

>

[Guest guest]

What I'd love to know is what medications he's on... Him being a

doctor and knowing other doctors in the field would make you think

he's in good hands... I wonder if his doctor is Dr. Growdon --

he's the big doctor in town for those with dementia (considering he's

the director of MGH Memory Disorders Unit... I think I'll email

the news station and thank them for the segment -- letting them know

that by airing this piece they've helped spread awareness about this

disease that afflicts more people than they know...

>

> Thanks for the link . It was very good. Looking forward

to seeing the next part. I found it interesting how he mentioned the

fatigue as being a big part of the disease. I thought it was the

medication making my mom tired all the time, but maybe it's the

disease.

>

>

> Doris, daughter of Ramona, 78yrs old, first diagnosed with AD in

Sep 2004, then changed to LBD in March of 2005. Living independently

with much support until now. On waiting list for NH. Meds: Reminyl,

Wellbutrin and Seroquel. (Mississauga, Canada)

>

>

[Guest guest]

Very good going, ,

Love.Imogene

In a message dated 12/11/2007 10:18:25 AM Central Standard Time,

octoryrose@... writes:

What I'd love to know is what medications he's on... Him being a

doctor and knowing other doctors in the field would make you think

he's in good hands... I wonder if his doctor is Dr. Growdon --

he's the big doctor in town for those with dementia (considering he's

the director of MGH Memory Disorders Unit... I think I'll email

the news station and thank them for the segment -- letting them know

that by airing this piece they've helped spread awareness about this

disease that afflicts more people than they know...

**************************************See AOL's top rated recipes

(http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

[Guest guest]

Thanks for the links, . It will be good to see the second part. It was

an interesting interview. His book looks insightful--I've especially noticed my

dad's behavior in social settings. Most of the time he's withdrawn with the

mask like face. I'd look forward to reading the entire thing.

Dianne P

daughter of Bill, 84

wrote:

Here's the link to watch last night's interview with Dr.

Graboys, a retired cardiologist with Parkinson's & LBD:

http://wbztv.com/video?cid=155

Here's a link to an excerpt of his upcoming book:

http://wbztv.com/reference/Alzheimers.Disease.Book.2.607549.html

(ps - how deceiving, he says he has PD & LBD in the interview, but

WBZ still writes " alzheimers disease book " in their link... tut tut

tut... no wonder everyone's confused by what we tell them - they

don't listen)

They mentioned another part of the interview will be on tonight's

news -- not sure if this means every night this week, or just one

more segment. Will email that link to.

> >

> > Heard through the grapevine that on Monday, 12/10 at 11 PM on the

WBZ

> > Channel 4 News station, a person with LBD will be interviewed.

After

> > the interview a link should be available on their website for

viewing

> > after 12/10... so will post it when it's there... in the

meantime, if

> > you're in MA you may want to watch the 11 PM News on 12/10 to

view

> the

> > interview yourself.

> >

>

---------------------------------

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Girl you Go! Great !

Love a bunch,

Imogene

In a message dated 12/16/2007 10:43:29 AM Central Standard Time,

octoryrose@... writes:

PS - I wanted to share with you all that I heard back from WBZ after

I emailed after the first segment...

I wrote:

Subject: Thank You to

I just want to take a moment of your time and THANK YOU for the

interview you had last night with Dr. Graboys. It was very

well done. You showed your care and compassion towards him, yet at

the same time kept the tone very positive.

My mother passed away in September 2006 from Lewy Body Dementia

(LBD.) Eventhough LBD is the 2nd leading cause of dementia, it's

still relatively unknown and your interview has at least changed that

in the Boston area.

I look forward to watching tonight's interview. I've passed on the

links to your interview to other caregivers of those with LBD. I've

chosen to continue the fight and I'm a volunteer with both LBDA (Lewy

Body Dementia Association - www.lbda.org) and LBDCaregivers (a Yahoo

online support group)

Should you speak with Dr. Grayboys again, please pass on my best

wishes to him. That he continues to do as well as he's doing for as

long as possible.

Thank you again -- what you've done is huge for our small world of

caregivers of those with LBD.

---

The response from (Interviewer):

Subject: Hello, !

Thanks so much for your message.

Before I met Dr. Graboys, I'd never heard of LBD. And my eyes have

been opened.

What's interesting and sad is that the person who introduced me to

Dr. Graboys lost his father to LBD.

I'm really sorry about your mom. And I commend you on your decision

to keep up the fight.

It was a meaningful experience for me to be able to share Dr.

Graboys' story…a privilege.

And I was touched to get your message.

Thanks for reaching out!

All the best,

WBZ-TV

----

So we have someone in our corner, media type, that's good -- if she

ever has an opportunity to do something re: LBD again, she may do

it!

Welcome to LBDcaregivers.