Re: Re: Pain through the roof

[Guest guest]

Yep - my plan is to work. Here in N.C. it's not a holiday - I still teach ...

which is just as well given how many days my students have been out with

illnesses.

Kathy

Re: Pain through the roof

Ended up staying home from work today as my foot gave out on the stairs and

I fell last night. Not having too much 'luck' these days. The pain's been

un-real. When I told my doctor it was at a 9 on Friday his eye brows shot up -

he was quite surprised. Perhaps he asked me all these questions and then some to

make sure I was not drug-seeking. The total irony with that is the drug/alcohol

treatment program for the county is located in the basement of their building.

I'm doing my best at remembering to take my meds on routine schedule, getting

back to this at least.

I'm going to also call the massage therapist who's a friend of my mom's to set

up an evening appointment for either this week or the next. The doctor I saw

(who was covering for mine) suggested this along with CST, accupuncture .. I've

had CST done before and it's helped (cranial-sacral therapy) We shall see. I

managed to meet my friend this afternoon for tea -- and to get some fresh air. I

go back to the 'job' tomorrow. Realizing I may not be able to work FT -- it

takes a toll on me physically.

Thanks for the advice Jenn and Kathy - I will look into both. I see my

Physical therapist (his assistant) on Wednes/Fri of this week. He knows I went

to the doctor's on Friday afternoon as I had to cancel my appointment with him

to do so. I want to begin swimming laps again. There's a YMCA in Portsmouth not

far from where I work. Only thing that bugs me is not getting any answer back

from my doctor about my foot freezing up completely (where-in I cannot move it

at all.)

It's lonely here without my housemate. I do have the pets so I'm not

completely alone ... but still there's energy/presence missing. I was hoping my

brother was coming up this weekend (Columbus Day) but I don't know if he will

alone as his GF is going to Phillie. Anyone else have plans for holiday weekend?

Un-Columbus? .... Warmly, E

>

> Finding it harder to walk & stay balanced. Something strange is going on and

I'm not sure what. Nerve pain is also getting the better of me and think I'm at

an 11 right now. Called my GP to see if I could be seen on Sat a.m. We shall

see. The last time I renewed my Rx it took a week as they kept losing my

paperwork. I was off Rx pain meds for a good 2 months or so maybe 3 even -- but

the neuropathy is shooting pain all the way down to my feet.

>

> Am in too much pain to sleep. Feeling discouraged & like pulling my hair

out. Basta! - E

>

[Guest guest]

You will continue to stay in our thoughts & prayers !

Subject: Re: Pain through the roof

To: tetheredspinalcord

Date: Monday, October 5, 2009, 8:11 PM

 

Ended up staying home from work today as my foot gave out on the stairs and I

fell last night. Not having too much 'luck' these days. The pain's been un-real.

When I told my doctor it was at a 9 on Friday his eye brows shot up - he was

quite surprised. Perhaps he asked me all these questions and then some to make

sure I was not drug-seeking. The total irony with that is the drug/alcohol

treatment program for the county is located in the basement of their building.

I'm doing my best at remembering to take my meds on routine schedule, getting

back to this at least.

I'm going to also call the massage therapist who's a friend of my mom's to set

up an evening appointment for either this week or the next. The doctor I saw

(who was covering for mine) suggested this along with CST, accupuncture .. I've

had CST done before and it's helped (cranial-sacral therapy) We shall see. I

managed to meet my friend this afternoon for tea -- and to get some fresh air. I

go back to the 'job' tomorrow. Realizing I may not be able to work FT -- it

takes a toll on me physically.

Thanks for the advice Jenn and Kathy - I will look into both. I see my Physical

therapist (his assistant) on Wednes/Fri of this week. He knows I went to the

doctor's on Friday afternoon as I had to cancel my appointment with him to do

so. I want to begin swimming laps again. There's a YMCA in Portsmouth not far

from where I work. Only thing that bugs me is not getting any answer back from

my doctor about my foot freezing up completely (where-in I cannot move it at

all.)

It's lonely here without my housemate. I do have the pets so I'm not completely

alone ... but still there's energy/presence missing. I was hoping my brother was

coming up this weekend (Columbus Day) but I don't know if he will alone as his

GF is going to Phillie. Anyone else have plans for holiday weekend? Un-Columbus?

..... Warmly, E

>

> Finding it harder to walk & stay balanced. Something strange is going on and

I'm not sure what. Nerve pain is also getting the better of me and think I'm at

an 11 right now. Called my GP to see if I could be seen on Sat a.m. We shall

see. The last time I renewed my Rx it took a week as they kept losing my

paperwork. I was off Rx pain meds for a good 2 months or so maybe 3 even -- but

the neuropathy is shooting pain all the way down to my feet.

>

> Am in too much pain to sleep. Feeling discouraged & like pulling my hair out.

Basta! - E

>

[Guest guest]

- swimming is a lifesaver for me - one of the few exercises I can do...

that and pilates on the reformer machine. No worries of falling over in the

pool either!

Dee

To: tetheredspinalcord

From: emaher1916@...

Date: Tue, 6 Oct 2009 00:11:07 +0000

Subject: Re: Pain through the roof

Ended up staying home from work today as my foot gave out on

the stairs and I fell last night. Not having too much 'luck' these days. The

pain's been un-real. When I told my doctor it was at a 9 on Friday his eye brows

shot up - he was quite surprised. Perhaps he asked me all these questions and

then some to make sure I was not drug-seeking. The total irony with that is the

drug/alcohol treatment program for the county is located in the basement of

their building. I'm doing my best at remembering to take my meds on routine

schedule, getting back to this at least.

I'm going to also call the massage therapist who's a friend of my mom's to set

up an evening appointment for either this week or the next. The doctor I saw

(who was covering for mine) suggested this along with CST, accupuncture .. I've

had CST done before and it's helped (cranial-sacral therapy) We shall see. I

managed to meet my friend this afternoon for tea -- and to get some fresh air. I

go back to the 'job' tomorrow. Realizing I may not be able to work FT -- it

takes a toll on me physically.

Thanks for the advice Jenn and Kathy - I will look into both. I see my Physical

therapist (his assistant) on Wednes/Fri of this week. He knows I went to the

doctor's on Friday afternoon as I had to cancel my appointment with him to do

so. I want to begin swimming laps again. There's a YMCA in Portsmouth not far

from where I work. Only thing that bugs me is not getting any answer back from

my doctor about my foot freezing up completely (where-in I cannot move it at

all.)

It's lonely here without my housemate. I do have the pets so I'm not completely

alone ... but still there's energy/presence missing. I was hoping my brother was

coming up this weekend (Columbus Day) but I don't know if he will alone as his

GF is going to Phillie. Anyone else have plans for holiday weekend? Un-Columbus?

..... Warmly, E

>

> Finding it harder to walk & stay balanced. Something strange is going on and

I'm not sure what. Nerve pain is also getting the better of me and think I'm at

an 11 right now. Called my GP to see if I could be seen on Sat a.m. We shall

see. The last time I renewed my Rx it took a week as they kept losing my

paperwork. I was off Rx pain meds for a good 2 months or so maybe 3 even -- but

the neuropathy is shooting pain all the way down to my feet.

>

> Am in too much pain to sleep. Feeling discouraged & like pulling my hair out.

Basta! - E

>

_________________________________________________________________

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[Guest guest]

- I think the study that I belong to for the intrathecal pump has started

up your way. If you're truly interested, let me know and I'll get the

information for you at my next fill-up. It gives such a small amount, directly

to where it's needed and works - the spinal cord or there-of. It is my life

saver. It doesn't bring my pain levels down to nothing and I still need to take

oral meds in order to work; however, unlike before where the oral meds only did

so much and not enough to live my life as I wanted, the combination is good

enough.

My pump has gabapentin in it. I could not tolerate this medicine orally and the

small amount I did take, never did a thing for the pain. However, intrathecally

- no side effects and as I wrote above, the back pain is tolerable most days.

You still need to be mindful of over-doing and if the pain gets worse there are

the two options of having the pump delivery increased, oral meds increased or

both - or going to the nsg to see if things are worsening. Right now I'm

dealing with all three because of an initial fall more than a year ago and

three-four more falls after that. Plus I've been traveling a lot lately. My

husband's mother passed away two weeks ago so we had to make an unscheduled trip

to Maine for a week. Without rest before-hand, it was a very tough trip and a

very tough following week, but we all have those and deal with it knowing things

will settle down.

It's not perfect, but I don't have the days you experience/as often as you do,

any longer.

Kathy

Re: Pain through the roof

I am just struggling! I stayed home from work yesterday b/c the nerve pain

was so intense. It's also been keeping me up at night. I believe I was finally

beginning to see some reduction in pain on Sunday b/c the percocet had time to

do it's thing -- cycle through my blood stream. Today I cut back on the meds b/c

of work. The one thing that's hard. I paid for this come 4:30-5:00 -- was nearly

in tears. Dammit! Why does it need/have to be this way? Making a real effort to

keep my stress in check -- as I KNOW for a fact it increases pain levels.

I got to work this morning and almost instanteously regretted my decision of

staying home on Monday. Who knew soooooooo much work can pile up in only a day.

I handled it quite well I thought -- by completing things one at a time and

crossing them off. I psyched myself up after work -- about going to my therapy

appointment. I got there and waited 15 min but my therapist was a no-show. This

is not like her and as she has MS I figured she'd had a flare-up. I scheduled

one appointment this week and another for next Tuesday as I knew having that

support system would be good with my Mom being away. My plan back-fired. I also

was so out of it yesterday I missed my PT appointment as it was for Monday

instead of today. Oh well.

I know exactly what will help bring this insane pain down but as I am

insurance-less -- I cannot afford a sympathetic nerve block. They're now for the

entitled and/or the 'lucky' ones with coverage. I understand that pain

medication will only go so far with neuropathy. I'm at a loss on what to do.

Feeling on edge, anxious, sleep deprived, nightmare plagued ... but at the same

time lucky to have a wonderful lot of friends like you -- for my 'big' brother

calling to 'check up' on me (he's really my 'little' brother, but I refer to him

as 'big' b/c if I had a brother older than I .. he'd be exactly like the one I

have now.) My step-mother continues to over-step her bounds, push limits,

boundaries, be an impossible nasty nudge. It's like the MORE I ignore her the

more manipulative she gets - and when I do 'listen' to her ... she takes that as

a sign to jump in more.'

It's late and I'm tired yet wide awake. Puppy needs me so am signing off.

Thanks for listening .. E

>

> >

>

> > Finding it harder to walk & stay balanced. Something strange is going on

and I'm not sure what. Nerve pain is also getting the better of me and think I'm

at an 11 right now. Called my GP to see if I could be seen on Sat a.m. We shall

see. The last time I renewed my Rx it took a week as they kept losing my

paperwork. I was off Rx pain meds for a good 2 months or so maybe 3 even -- but

the neuropathy is shooting pain all the way down to my feet.

>

> >

>

> > Am in too much pain to sleep. Feeling discouraged & like pulling my hair

out. Basta! - E

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> __________________________________________________________

> Click less, chat more: Messenger on MSN.ca

> http://go.microsoft.com/?linkid=9677404

>

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