YAY!!!!!!!! Charlie Hart's DynaVox V Max got approved!!!!

[Guest guest]

We should be getting it within the week!!! I am so happy because I

have been really frustrated " being " the speech therapist. (Still no

help from the school, but potentially help from an IDEA lawyer, as he

is waiting on all the records from the schools and doctors so he can

review them.)

I did want to add here that the Speech Pathologist has made a

definite determination and stated it on both visits that Charlie

Hart's Apraxia of Speech is directly related to lack of oxygen and

CPR at birth. She also states that the pediatric neurologist will be

able to definitely confirm this when we see her in December.

Additionally, I was correct about the sensory integration disorder

and the ST says he definitely has this, but therapy will help.

She says he has full blown Apraxia of Speech and although he will get

better in his talking (she thinks, with time and therapy), she cannot

guarantee that he will ever talk like the rest of us. It really has

been hard news to hear, but she says she is really glad that he knows

sign language and that is a positive thing for him. She also

confirmed that with Apraxia of Speech, sign language is " essential " .

(I just wanted to pass that on.)

I certainly hope that this V Max will be an extreme help for him and

us. I do not know much about them, but I am trying to learn. The

online training classes, which are free, are good, but we have

encountered " streaming " and " buffering " issues, which we are

oblivious to knowing how to fix.