Re: OT: IVIG treatment - Allie

[Guest guest]

Hi Marie,

I sent Jenna a message about this... If/when I hear from her, I will send it to

your inbox...

Take care,

Jim

>

> Hi JIm ,

> Do you have a way to contact his friend and ask her if she would accept to

give me th ename and tel of her Dcotor please ?

> THank you Jim ,

> Marie

>

>

> ________________________________

>

> To: Lyme and Rife Group Jim! <Lyme_and_Rife >

> Sent: Tuesday, September 13, 2011 5:39 PM

> Subject: OT: IVIG treatment - Allie

>

>

>  

> Hi Allie,

>

> I just came accross this article written by my friend Jenna , talking

about her

> Lyme treatment journey... She mentions she received IVIG infusions with good

> success... Since I know Jenna to be an honest person, I trust what she wrote

here.

>

> http://www.lymediseaseresource.com/Jennas_Treatment.html

>

> >>>My Lyme Neurologist has diagnosed my life-long illness as “Post-Lyme

Auto-Immune Syndrome with severe immune system deficiencies.†This was my

treatment plan as of fall 2009; however, as of October (19)2010, I began IVIG

infusions every 3 weeks for a 3 month trial) after 9 months of diagnostic

testing which proved my significantly deficient immune system, and severely

depleted IVIG. I was taken off all antibiotics in preparation for this powerful

treatment, and continued with the list of supplements and prescription drugs

below. 

> I was very surprised to experience such a dramatic herx after my first

infusion. This makes sense but I wasn't thinking about herxing...(DUH!) The side

effect of headaches blew rapidly into migraines (which for me are still

preferable to the other symptoms of neuro Lyme.)

> I thought to myself, " If this is the path out of hell, I will gladly suffer

through any number of migraines. " However, it appears that a massive amount of

hydration before during and after will take care of all but 2 or 3 days of

severe migraines and the intensity subsides slightly after each infusion.

> After 3 months, my recovery was remarkable! Of all the protocols I have tried,

nothing has come close to giving me actually MORE energy than I had before my

collapse, I was able to eat dinner in a restaurant with 2 of my children, my 18

month grandchild and husband...the first time out in over 4 years! Without

earplugs or even struggles to " get through " ! I wasn't a ghost watching in pain

from afar, I was having FUN!!

> New tests show my immune system is improving. I am approved for six more

months of infusions before we re-evaluate. I hate to get my hopes up too high

because I am far from symptom free, but even with the migrains and herxing I

feel better than I have in years and years!!<<<<

>

> Take care,

> Jim

>