Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 Hi Adrienne- Each time I read your posts I feel a deep honor for your family and how everyone has handled your dad's LBD. I also feel a great respect for your dad and his want and need to be involved in the knowledge of this disease. You must be so proud of him. Thank you for continually sharing your story. Blessings to you and your family- Sandie Des Moines, IA dad, Merle, passed from LBD 9-20-02, age 65 -- Re:What do I tell her about what is going on? Since you know her best, give her as much info as she can successfully process. When the docs told my mother that my father had Alzheimer's, they referred to it as 'his condition' if he was around. He would get mad because he knew they were talking about him and purposely leaving him out of the conversation. We tried to sidestep addressing it head on with him but had to eventually. When one doc finally told him it was Alzheimer's he said " SAYS WHO?!?! " It took a few years and a lot of bad reactions to drugs to figure out he was right. It wasn't Alzheimer's. When we found out about LBD and explained what it does he would nod in agreement about the symptoms and progression of the disease. From time to time he has a quizzical look or asks what's going on. We tell him he has LBD and give him a brief explanation of what it does and the drugs he's taking to slow the progression of it. We also reassure him that we love him, that God is still listening to his prayers even if he can't get his thoughts together and that we will always provide the best care we can find for him. After our little speech he usually nods, relaxes his eyebrows and closes his eyes as though he's in deep thought or prayer. Here lately, I give him the speech once or twice a day. He's very aware that things aren t right in his head and a short, frequent explanation makes him worry less. Getting my mother to talk to him about it was very difficult but after she realized he wanted and needed to know what was happening with his mind, she began discussing it with him openly. See what's new at Figure Photos & Anacostia Fine Art Be my friend on MySpace http://www.myspace.com/figurephotos --------------------------------- Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how. Quote Link to comment Share on other sites More sharing options...
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