Re: Brain Donation/unthinking, unkind, words

November 8, 2008

Gladys, and ,

Beloved friends, I can't tell you how sorry I am that you had those terrible

experiences.

We all blunder, but you are so right. Some things should never be said. I

sure hope I remember that in the future. So glad you told us these things.

We all love you very much,

Imogene

In a message dated 11/6/2008 7:46:34 PM Central Standard Time,

agoramom@... writes:

I intended to send this to the individual who approached me via email about

donating Mom's brain. Please forgive me for posting it here, but I lost the

original email so I don't remember who sent it.

I just wanted to say that while I appreciated the intent of the email,

sending it to me while my mother was actively dying was, in my opinion,

tacky and inappropriate. The donation of a parent's brain is not something

to be brought up in an email. It hurt deeply seeing that in my box as if I

was considering donating an old pair of shoes.

In the future, I would suggest that the number of the Brain Bank be placed

in our files section where families can access it if they are interested.

The decision was not mine to make. My mother made it long ago before she

even had LBD. I will not discuss what her decision was because it is hers

and hers alone to make and is no one else's business.

I just want to spare anyone else from going through the pain I went through

when I left my mother's side while she was fighting for every breath to find

that it my email box.

We need to use as much tact as possible and email in that situation was not

the way to go.

Love to all,

Gladys

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