Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 Happy Good Friday " everyone! My prayer at this special time of year is that we all can hold tight to our blessings, starting with the blessing we have in each other, where we can know there are those who will understand and not judge. That alone can give us the Grace to be tolerant to those who AREN " T so understanding ( we all have some of those " special " ones in our lives! haha) Some of you may have seen my earlier post, I am having troubles with a capital " T " in trying to get in touch with my NSG. No one can get past his PA who acts like a gatekeeper. I have a CD and written report for Brain & Neck MRI that was done last week. I want to find 4 to5 Dr's to send copies to that would be willing to read them and give me their opinion. Please if you know of any who do this, I'd appreciate what info you have. I had decomp last Summer, however for me it has not been a success very much. The upside has been that the radiology report does state that there is flow anterior to the brainstem.However it also says that there is NO CSF flow posterior to the Cerebellum...does anyone know if that is important or not. I thought it was, but I just got an email from the PA, he says that is of " no consequence " hmmmmm. Thank you ahead of time for any information you can share..and have a Wonderful Easter! Bev in Oregon IIH/PTC w/LP Shunt '03'08'09'09 ACM I w/decomp '09 Fibromyalgia dx 93 Far too Blessed to except to live Stressed Quote Link to comment Share on other sites More sharing options...
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