Welcome to New Families from the Research Officer

October 31, 2008

Good morning and WELCOME to all of our new families!

My name is Lipscomb Sund and I am a graduate student in Genetic

Counseling and Molecular & Developmental biology. I am also the Research

Chairperson for IMDSA. I am physically located in Northern Kentucky, right

across the river from downtown Cincinnati where I commute to Cincinnati

Childrens Hospital on a daily basis. I joined IMDSA in June of 2007 right

before the last conference. It was a fantastic conference and I think our

2009 will be even better. I hope you are all making plans to attend! In the

meantime, if you have an ideas for research project, or are interested in

getting your child enrolled in a study, please contact me and let me know.

Happy Halloween! Have a great weekend!

On Tue, Oct 28, 2008 at 1:06 PM, brandy hellard wrote:

> Hello,and welcome to our group. Where are you are all of you from? I

> hope that you find this on line form to be helpful to you, and your family,

> as much as I have.

> My name is . and I'm from Ohio. My husband and I have 4 kids 2 boys.

> 8, Hayden 5, and our twin girls Adde and 21 months. We found

> this group when we found out that Adde has mds. We found out that she had it

> when she was just a week old. I felt like that was the biggest slap in the

> face. Why me? How did this happen to me?( I mean after all I was only 28

> when I had them) My husband did the " let's not really talk about it. " So in

> a way he kinda shut down. So like many of you, I needed hope, faith, and

> most importantly encouragement. I needed to know that I wasn't alone, that

> there were others who felt my anger, fears, pain. That's when I found IMDSA.

> Now I'm not alone anymore!

> I also volunteer my time to IMDSA.org. I'm the fund raiser chairperson, and

> the conference coordinator for the 09 conference that is being held here in

> Ohio! Now, I don't post often, but I'm always reading the post to keep up

> with everything. Feel free to ask questions, or if you want to brag, then

> BRAG about it!!! Just remember that YOU are not alone anymore!

>

> Hellard

> mom to Adde 21 months

> brandy@... <brandy%40imdsa.org>

>

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