Guest guest Posted April 1, 2010 Report Share Posted April 1, 2010 Dear Friends, I have pseudotumor cerebri and a shunt. I was decompressed twice. My first decompression failed because I needed a shunt at that point but my first doctor did not realize this. I was underdecompressed and my pressure was chronically high due to the pseudotumor. I have had a few LP's now with Dr. Bolognese and his staff. I usually have high pressure at the LP so taking off some fluid helps me but only for a day or a little more. With pseudotumor, my system is so tight that I notice the slightest increase as soon as it starts again. But when my pressure is raised due to a shunt problem and the fluid is removed, I feel better instantly. My eyes will stop hurting and the noises in my ears stop and the headache subsides. But as the fluid is remade, the symptoms come right back. My shunt is my lifeline. High pressure for me seems to be about 190 and up. I think my highest pressure was 230 and that was at my very first LP. I had a pseudomenengeocele then from raised pressure and the CSF was pooling under the patch from my first decompression. So, when the fluid was removed, I felt like a new person. But, the symptoms returned so I started taking Diamox again which for me helps provide the same relief as an LP. I used to wonder about herniation from the LP's even after I was decompressed but they use a very tiny needle and it is a highly controlled procedure. You have to trust the person performing the LP. Dana Quote Link to comment Share on other sites More sharing options...
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