The Lewy Body Society newsletter

[Guest guest]

Here's the latest newsletter from The Lewy Body Society in the UK:

Newsletter 8 November 2007

Apologies

Some of you who have viewed the website recently will know that I had

the bad luck to break my ankle a couple of months ago. It has been an

exercise in patience and lesson in empathy. I am happy to say that I

am now back on my feet again. Unfortunately clearing the backlog of

LBS work did not kept pace with my healing and I apologise for any

delays there have been in getting back to you. My time on crutches

taught me that you get there in the end, it just takes a very long

time.

Welcome, Marzena.

The Lewy Body Society is delighted to welcome Marzena Kurzawa,

recently of the University of Warsaw, Poland as the first sponsored

LBS PhD student. Marzena is a 24 year old geneticist who will be

spending the next 4 years working on the molecular genetics and

functional genomics of Dementia with Lewy bodies at Newcastle

University under the supervision of Prof Chinnery and Dr

. Her scientific interests are focused on the molecular

basis of human genetic diseases and the role of genetics in

neurological disorders such as DLB. Earlier this year she received

the prestigious Ernst Schering Foundation Scholarship which enabled

her to carry out a research project at Newcastle.

In her spare time Marzena likes to read thrillers and keeps fit by

jogging. More about Marzena in the next issue.

LBS Christmas cards

Artist Nikky Corker, who is a dedicated member of the LBS, raising

money and serving on the management committee, has designed and

donated two exclusive Christmas cards which we are offering for sale

on the website.

These charming cards come in packets of 12 with 6 of each design. The

message is: Season's Greetings. Price is £4.50, including P & P, on the

website, or £3.50 in person, if possible. Supplies are limited and

going quickly. This is a wonderful way to spread awareness of the

disease.

Clever Nikky not only designed and produced these unique cards, she

persuaded the gallant members of the Wetherby, Yorkshire Lions Club

to pay for the printing. We are much obliged.

Spots for Sale

The first ever Lewy Body Society Auction of Spotty Things is

currently being catalogued and will be online in the next few weeks.

Items for auction include women's clothing and accessories, men's

accessories and things for the home. About 30 " Lewy body " objects

will be on offer, with the winner being the highest bid received by

the closing date,which will be the same for all items.

Jacqui

On Sunday 16 September LBS member Jacqui Cannon ran in the Liverpool

10k Women Challenge and raised nearly £400 for the Lewy Body Society.

Jacqui is also a LBS star. An early and enthusiastic supporter, she

has raised money and distributed brochures and talked to people as

well as literally throwing her body into it the cause. She has just

agreed to be the North West Regional Director of the LBS.

Her account of the Challenge can be found on the website.

Spare Change

Another first for the Lewy Body Society! On Friday 28 and Saturday 29

September LBS members and friends in Bishops' Stortford, Herts

collected for the charity outside the local branch of Waitrose.

Despite some typically miserable wet autumn weather an astonishing

£700 was collected from generous passersby. Although ignorance of DLB

is the challenge we face, it was surprising and heartening to hear

how many people did know of it. It's a start.

Please get in touch if you would like to organise a local collection

day in your area and we will tell you about gaining permission and

supply you with buckets and stickers. It is an easy way to raise

money for the charity. All you need are enough willing people.

The money raised from just this collection will cover the cost of

sending 1000 brochures out to doctors.

Making ourselves known

The LBS has proudly exhibited at 2 important conferences in the past

month. From October 14-18 we had a stall at the International

Psychogeriatric Association's Silver Jubilee Congress in Osaka,

Japan, where our distinctive blue and white spots caught everybody's

eye. 2500 delegates from all over the world attended and probably

half of them came to our display. People from 12 countries around the

world expressed interest in starting Lewy body organisations in their

own countries.

Japan

Members of the LBS Medical and Scientific Advisory Panel, Jane Byrne,

Ian Mc and O'Brien also made an impact with their well-

attended presentations.

We also had a popular stall at the second UK Dementias Conference on

5-7 November in Harrogate, where we were given enthusiastic support

and congratulations by our many visitors.

Harrogate

One final pitch

What about Christmas carolling in aid of the Lewy Body Society this

year? Let us know and we'll send you a collection tin and stickers.

Best wishes to all,

[Guest guest]

, no need to apologize. We are all just glad you are able to get

around again. I am sure

it still gets sore at times with over use, so do continue to let it heal.

You are important first.

Love a bunch,

Imogene

In a message dated 11/18/2007 5:43:07 AM Central Standard Time,

octoryrose@... writes:

Here's the latest newsletter from The Lewy Body Society in the UK:

Newsletter 8 November 2007

Apologies

Some of you who have viewed the website recently will know that I had

the bad luck to break my ankle a couple of months ago. It has been an

exercise in patience and lesson in empathy. I am happy to say that I

am now back on my feet again. Unfortunately clearing the backlog of

LBS work did not kept pace with my healing and I apologise for any

delays there have been in getting back to you. My time on crutches

taught me that you get there in the end, it just takes a very long

time.

************************************** See what's new at http://www.aol.com

[Guest guest]

Thanks Imogene - my leg's fine - this leg is 's leg.. who wrote

the newsletter. We had matching casts though -- yet dressed

hers up w/ blue & white polka dot toes.

>

>

> , no need to apologize. We are all just glad you are able

to get

> around again. I am sure

> it still gets sore at times with over use, so do continue to let

it heal.

> You are important first.

> Love a bunch,

> Imogene

>

> In a message dated 11/18/2007 5:43:07 AM Central Standard Time,

> octoryrose@... writes:

>

> Here's the latest newsletter from The Lewy Body Society in the UK:

>

> Newsletter 8 November 2007

>

> Apologies

>

> Some of you who have viewed the website recently will know that I

had

> the bad luck to break my ankle a couple of months ago. It has been

an

> exercise in patience and lesson in empathy. I am happy to say that

I

> am now back on my feet again. Unfortunately clearing the backlog

of

> LBS work did not kept pace with my healing and I apologise for any

> delays there have been in getting back to you. My time on crutches

> taught me that you get there in the end, it just takes a very long

> time.

>

>

>

>

>

>

>

>

> ************************************** See what's new at

http://www.aol.com

>

>

>