DISCOURAGED!!!

[Guest guest]

I emailed my daughter's primary doctor with a list of testing our new

DAN! doctors wants done. Now, our primary is great, open minded and

is the one who set us on GFCF path.. HOWEVER- she maintains that

vaccines ARE completely safe (I do NOT agree) and that Autism is NOT

treatable. I figured we could have these differences... until now.

This is the response I just got and I simply do not know what to say

or do...

" Yes, you have some serious questions.

Yes, I do have some reservations.

You are seeking advice from a doctor of chiropractic medicine. A

chiropractor should be well trained in manipulative medicine. Some are

excellent at this. I go to one myself. BUT…. They do not have rigorous

training in chemistry, physiology, pharmacology. Many get their

`education' from questionable sources and it does not have any

scientific support. For this reason, they are prone to put

unwarranted importance on non-standard testing, hence her use of a

specific lab, not one in this community. I have seen many patients,

some desperate to treat their cancer or other fatal illness, spend

thousands on non-standard testing. Never have I seen them benefit from

either the testing, what the test purportedly told them, or the

resulting treatment.

Autism, like many other diseases, can occur in multiple settings. Some

of the tests that were recommended to you are for inborn disorders of

metabolism which are fatal within the first couple of years of life.

Behavior changes, of course, go with an infant who is dying of a

neurologic disease. Kaelainne clearly isn't one of these kids, she is

growing, not dying. Likewise, kids with immune deficiencies, etc.

That being said, a couple of the tests do have merit. This would be a

cmp (comprehensive chemistry panel) and strep antibodies. PANDAS is a

post-strep condition which leads to schizophrenia-type mental illness.

Certainly this is something she could acquire. Unfortunately there is

no specific treatment for it, so I am not certain what this diagnosis

would lead to except knowing the potential is there for other mental

impairment as she ages.

I know that you would like a cure. I would, too. However, I do have to

take these `cures' with a grain of salt. If the person wasn't

adequately tested at the beginning, or isn't really normal at the end

of treatment (no matter whether the parent wishes so hard that normal

is present, so dismisses disease as idiosyncracy and quirks), then

nothing has been proven. When I read the anecdotal statement that

surround a rare `cure' for autism, generally there is no science being

reported, just belief. "

I feel like I just got kicked in the gut. I see all of you, with your

tests giving you the direction to go in.. and my doctor is saying it's

all crap- I DO NOT BELIEVE HER!! I watched Stan's video! I read

's book, I read EVERY post in this group. YOu all are RECOVERING

your children!!! I KNOW YOU ARE. Why is it so damn hard for doctors

to even CONSIDER that there MAY be another way??

I am so P*SSED right now.

I'm sure many of you faced this- what do I do now??