Guest guest Posted September 14, 2008 Report Share Posted September 14, 2008 Hello All I was diagnosed on August 14. I sent my info to Dr. Oro who I will be seeing in November and TCI who I haven't heard back from yet. I also sent it to a friend who has a specialist in LA. This guy from LA came back and said that although I have a malformation of the skull, he doesn't think that chiari is causing my symptoms. He thinks there is enough room in my skull. I am really frustrated because Chiari made sense to me and now I have conflicting results. I have a 7mm herniation-how can this be argued? I also have not had a CINE MRI yet so I don't know the spinal fluid blockage. Would Dr. Oro still see me if he didn't think I had chiari? I just don't know who to believe. I am very frustrated. (If my first post went through, please post that one...my internet went out and I didn't know if it posted or not.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2008 Report Share Posted September 14, 2008 Sometimes doctor's opinions are not the same, or their experience, or their approach. Geez, I was told once by a doctor if I just smiled more the pain would go away. A comment like what you got is almost as ill informed. Consider the opinion from LA to be just that, an opinion. And remember the experience of so many of us, who have been successfully decompressed, there was a real, and treatable problem in there. Has Dr. Oro requested a CINE MRI? If not, you might call their office and ask them when, in their process, do they usually request one? A CINE MRI will certainly tell more of the story than an MRI can tell you. Ask TCI the same, when in the process do they typically request a CINE, and when your records might be seen and responded to. Hang in there, stay on track, with your other appointments, and file those opinions under " thanks for sharing " and move on, Hanna decompressed 2002 Subject: Confusion To: Date: Sunday, September 14, 2008, 12:36 PM Hello All I was diagnosed on August 14. I sent my info to Dr. Oro who I will be seeing in November and TCI who I haven't heard back from yet. I also sent it to a friend who has a specialist in LA. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.