Guest guest Posted August 19, 2011 Report Share Posted August 19, 2011 I agree with you. I already put a call in to ENT's receptionist and asked if I can come in on Monday and hopefully she will say yes. But now that I'm thinking about it I wanted to see this ENT on Monday morning of last week and I think she said that he's in the hospital on Mondays' visiting patients or else doing surgery and doesn't have office hours. If that's the case then I will ask to see someone else this coming Monday.Also I decided that if I like this new pulm. hypertension specialist who is in a different hospital I may ask her if there are reputable rheumy's who have expertise in all of my problems and if so then I may see someone else and then decide whether I will change doctors or not.Thanks again,SharonFrom:" Canter" Subject:Re: Re: quick questionDate:August 19, 2011 7:02:05 PM EDTTo:"asthma " <asthma >Sharon, It might be time for a trip to the ER again unfortunately. Then it might be time for new doctors. The way they treated you is crap.Feel better soon,To: asthma ; "asthma " <asthma >Sent: Friday, August 19, 2011 5:34 PMSubject: Re: Re: quick question I will only be on here for a minute because I am still very sick. When I came home from er & hospital apparently I caught something that turned into a very bad throat (strep) and every single gland swelled. Thought after antibiotics for 3 days that I would be able to shake it but am just as bad. caught strep throat from me and was also put on the z pack and apparently germs are in apartment and can't shake it..... You won't believe this but when I complained to rheumy that I was still sick last week she told me to go to an ENT and I did but the day I saw ENT he told me that throat looked much better to him and he sent that note back to rheumy. Well, today I have 99.1 at 4pm and hope it doesn't go up more by tonight but infection is in mouth, glands, throat and chest again. I can't believe this.... Rheumy doesn't have hours on Friday and receptionist had to fax her about my 99.1 and rheumy faxed or called her back to tell her to tell me that I should go back to the ENT. What B.LLS!!!! I can't believe it. Thought she would be telling me to be in Rheumy's office Monday morning but that didn't happen ....SharonFrom:" Canter" Subject:Re: Re: quick questionDate:August 19, 2011 11:48:51 AM EDTTo:"asthma " <asthma >I got my flu shot yesterday. I have been doing well today. I had a rough time with it last year because the seasonal vaccine was combined with the H1N1 vaccine. This year, so far, no problems with feeling bad.To: asthma Sent: Friday, August 19, 2011 11:35 AMSubject: Re: Re: quick question Thanks again Jean. Sorry if you get this message twice. My doctor is very sensitive to my concerns. She said she would give me a small test to see if I responded. Then I would only get 1/2 and we would wait 30 minutes before we a dministered the next 30 minutes if everything went okay. I appreciate your prayers and thoughts! hi .I just responded to your email..I am the one with a dd who also got frequent resp. infections and who is so much better now after the pneuvax shot....ok...I just read this about your reaction to the flu shot....flu vaccines have thimerosal (a mercury-containing preservative) in them..or they use to(not sure if they still do)...could it be you reacted to this? the pneumvax doesnt have this presvative..maybe something you can ask you dr. please note, although my dd who tested possitive to mercury on an allergy test she did not have any reaction to the flu vaccine..you may be more sensitive to things like this...just thought I mention the presvative in case you want to ck into. Ill keep you in my thoughts and prayers...I know how hard it is to be sick all the time. jean>> Thanks. I think the reason I'm a little shy is because I too had the flu> shot this year and my body went into rejection mode. I'm a little skittish> now. I used to have no trouble with shots or medication but after really> getting sick, my body has become super sensitive to medication.-- Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2011 Report Share Posted August 19, 2011 Hi Sharon,I would be so frustrated in your shoes. Sounds like it is time to bring in a different doc. Maybe an internal specialist as they tend to look at the whole picture and not just the pieces.Hugs.MadelineTo: asthma ; "asthma " <asthma >Sent: Friday, August 19, 2011 5:34 PMSubject: Re: Re: quick question I will only be on here for a minute because I am still very sick. When I came home from er & hospital apparently I caught something that turned into a very bad throat (strep) and every single gland swelled. Thought after antibiotics for 3 days that I would be able to shake it but am just as bad. caught strep throat from me and was also put on the z pack and apparently germs are in apartment and can't shake it..... You won't believe this but when I complained to rheumy that I was still sick last week she told me to go to an ENT and I did but the day I saw ENT he told me that throat looked much better to him and he sent that note back to rheumy. Well, today I have 99.1 at 4pm and hope it doesn't go up more by tonight but infection is in mouth, glands, throat and chest again. I can't believe this.... Rheumy doesn't have hours on Friday and receptionist had to fax her about my 99.1 and rheumy faxed or called her back to tell her to tell me that I should go back to the ENT. What B.LLS!!!! I can't believe it. Thought she would be telling me to be in Rheumy's office Monday morning but that didn't happen ....SharonFrom:" Canter" Subject:Re: Re: quick questionDate:August 19, 2011 11:48:51 AM EDTTo:"asthma " <asthma >I got my flu shot yesterday. I have been doing well today. I had a rough time with it last year because the seasonal vaccine was combined with the H1N1 vaccine. This year, so far, no problems with feeling bad.To: asthma Sent: Friday, August 19, 2011 11:35 AMSubject: Re: Re: quick question Thanks again Jean. Sorry if you get this message twice. My doctor is very sensitive to my concerns. She said she would give me a small test to see if I responded. Then I would only get 1/2 and we would wait 30 minutes before we administered the next 30 minutes if everything went okay. I appreciate your prayers and thoughts! hi .I just responded to your email..I am the one with a dd who also got frequent resp. infections and who is so much better now after the pneuvax shot....ok...I just read this about your reaction to the flu shot....flu vaccines have thimerosal (a mercury-containing preservative) in them..or they use to(not sure if they still do)...could it be you reacted to this? the pneumvax doesnt have this presvative..maybe something you can ask you dr. please note, although my dd who tested possitive to mercury on an allergy test she did not have any reaction to the flu vaccine..you may be more sensitive to things like this...just thought I mention the presvative in case you want to ck into. Ill keep you in my thoughts and prayers...I know how hard it is to be sick all the time. jean>> Thanks. I think the reason I'm a little shy is because I too had the flu> shot this year and my body went into rejection mode. I'm a little skittish> now. I used to have no trouble with shots or medication but after really> getting sick, my body has become super sensitive to medication.-- Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2011 Report Share Posted August 19, 2011 Hi Madeline,That's just it -- that's my point because my rheumy is both my primary and rheumatologist ... Also she IS an internist so go figure! I will never be told the truth but what I think happened is that when I started with her going on 15 years ago she was a practicing rheumy who offered to be my primary also and felt that it would be less complicated if she would have all of my records and if/when necessary would refer me to other doctors or testing but in these last couple of years I know she became a Professor of Rheumatology in the NYU Medical school and then for all I know, she may be in line to become the head of the department. She used to call me at home anytime I needed her but now her phoning patients at home is only a memory. What really made up my mind to start looking for someone else was when I was in the ER and then was told to stay overnight I asked the head nurse on the floor if she could notify her that I was in the hospital, hoping for a phone call but that never happened. Then after I came home I called her office, left a message and all I said was that I was just calling to touch base with her and receptionist only said that all she can do is take messages. Meanwhile, she never did call me which I feel is so wrong it isn't funny. I know not to take this personally because it seems that she is devoting her time and practice to other things that are more lucrative for her????Thanks again Madeline,SharonFrom:"Madeline Ingram" Subject:Re: Re: quick questionDate:August 19, 2011 7:35:36 PM EDTTo:"asthma " <asthma >Hi Sharon,I would be so frustrated in your shoes. Sounds like it is time to bring in a different doc. Maybe an internal specialist as they tend to look at the whole picture and not just the pieces.Hugs.MadelineTo: asthma ; "asthma " <asthma >Sent: Friday, August 19, 2011 5:34 PMSubject: Re: Re: quick question I will only be on here for a minute because I am still very sick. When I came home from er & hospital apparently I caught something that turned into a very bad throat (strep) and every single gland swelled. Thought after antibiotics for 3 days that I would be able to shake it but am just as bad. caught strep throat from me and was also put on the z pack and apparently germs are in apartment and can't shake it..... You won't believe this but when I complained to rheumy that I was still sick last week she told me to go to an ENT and I did but the day I saw ENT he told me that throat looked much better to him and he sent that note back to rheumy. Well, today I have 99.1 at 4pm and hope it doesn't go up more by tonight but infection is in mouth, glands, throat and chest again. I can't believe this.... Rheumy doesn't have hours on Friday and receptionist had to fax her about my 99.1 and rheumy faxed or called her back to tell her to tell me that I should go back to the ENT. What B.LLS!!!! I can't believe it. Thought she would be telling me to be in Rheumy's office Monday morning but that didn't happen ....SharonFrom:" Canter" Su bject:Re: Re: quick questionDate:August 19, 2011 11:48:51 AM EDTTo:"asthma " <asthma >I got my flu shot yesterday. I have been doing well today. I had a rough time with it last year because the seasonal vaccine was combined with the H1N1 vaccine. This year, so far, no problems with feeling bad.To: asthma Sent: Friday, August 19, 2011 11:35 AMSubject: Re: Re: quick question Thanks again Jean. Sorry if you get this message twice. My doctor is very sensitive to my concerns. She said she would give me a small test to see if I responded. Then I would only get 1/2 and we would wait 30 minutes before we administered the next 30 minutes if everything went okay. I appreciate your prayers and thoughts! hi .I just responded to your email..I am the one with a dd who also got frequent resp. infections and who is so much better now after the pneuvax shot....ok...I just read this about your reaction to the flu shot....flu vaccines have thimerosal (a mercury-containing preservative) in them..or they use to(not sure if they still do)...could it be you reacted to this? the pneumvax doesnt have this presvative..maybe something you can ask you dr. please note, although my dd who tested possitive to mercury on an allergy test she did not have any reaction to the flu vaccine..you may be more sensitive to things like this...just thought I mention the presvative in case you want to ck into. Ill keep you in my thoughts and prayers...I know how hard it is to be sick all the time. jean>> Thanks. I think the reason I'm a little shy is because I too had the flu> shot this year and my body went into rejection mode. I'm a little skittish> now. I used to have no trouble with shots or medication but after really> getting sick, my body has become super sensitive to medication.-- Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2011 Report Share Posted August 19, 2011 - so sorry you are going through this. It seems like the doctors need to work better together for your best interest. Can you have that conversation with them once you feel better? 2011/8/19 piaybyear  I will only be on here for a minute because I am still very sick.  When I came home from er & hospital apparently I caught something that turned into a very bad throat (strep) and every single gland swelled.  Thought after antibiotics for 3 days that I would be able to shake it but am just as bad.  caught strep throat from me and was also put on the z pack and apparently germs are in apartment and can't shake it.....   You won't believe this but when I complained to rheumy that I was still sick last week she told me to go to an ENT and I did but the day I saw ENT he told me that throat looked much better to him and he sent that note back to rheumy.  Well, today I have 99.1 at 4pm and hope it doesn't go up more by tonight but infection is in mouth, glands, throat and chest again.  I can't believe this.... Rheumy doesn't have hours on Friday and receptionist had to fax her about my 99.1 and rheumy faxed or called her back to tell her to tell me that I should go back to the ENT.  What B.LLS!!!!  I can't believe it.  Thought she would be telling me to be in Rheumy's office Monday morning but that didn't happen .... Sharon Subject: Re: Re: quick question Date:August 19, 2011 11:48:51 AM EDT To: " asthma " <asthma > I got my flu shot yesterday. I have been doing well today. I had a rough time with it last year because the seasonal vaccine was combined with the H1N1 vaccine. This year, so far, no problems with feeling bad. From: Wolf To: asthma Sent: Friday, August 19, 2011 11:35 AMSubject: Re: Re: quick question Thanks again Jean. Sorry if you get this message twice. My doctor is very sensitive to my concerns. She said she would give me a small test to see if I responded. Then I would only get 1/2 and we would wait 30 minutes before we administered the next 30 minutes if everything went okay. I appreciate your prayers and thoughts!On Fri, Aug 19, 2011 at 7:20 AM, gigles_1955  wrote:  hi .I just responded to your email..I am the one with a dd who also got frequent resp. infections and who is so much better now after the pneuvax shot....ok...I just read this about your reaction to the flu shot....flu vaccines have thimerosal (a mercury-containing preservative) in them..or they use to(not sure if they still do)...could it be you reacted to this? the pneumvax doesnt have this presvative..maybe something you can ask you dr. please note, although my dd who tested possitive to mercury on an allergy test she did not have any reaction to the flu vaccine..you may be more sensitive to things like this...just thought I mention the presvative in case you want to ck into. Ill keep you in my thoughts and prayers...I know how hard it is to be sick all the time. jean >> Thanks. I think the reason I'm a little shy is because I too had the flu> shot this year and my body went into rejection mode. I'm a little skittish> now. I used to have no trouble with shots or medication but after really > getting sick, my body has become super sensitive to medication.-- Take care, -- Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2011 Report Share Posted August 19, 2011 Thats great that you have a dr like this..a keeper:) let me know how things go..I hope you have success with it. have a nice weekend. jean > > Thanks again Jean. Sorry if you get this message twice. > My doctor is very sensitive to my concerns. She said she would give me a > small test to see if I responded. Then I would only get 1/2 and we would > wait 30 minutes before we administered the next 30 minutes if everything > went okay. > I appreciate your prayers and thoughts! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2011 Report Share Posted August 19, 2011 And while they're bouncing you back and forth, you are probably paying them a co-pay for each visit.To: asthma ; "asthma " <asthma >Sent: Friday, August 19, 2011 5:34 PMSubject: Re: Re: quick question I will only be on here for a minute because I am still very sick. When I came home from er & hospital apparently I caught something that turned into a very bad throat (strep) and every single gland swelled. Thought after antibiotics for 3 days that I would be able to shake it but am just as bad. caught strep throat from me and was also put on the z pack and apparently germs are in apartment and can't shake it..... You won't believe this but when I complained to rheumy that I was still sick last week she told me to go to an ENT and I did but the day I saw ENT he told me that throat looked much better to him and he sent that note back to rheumy. Well, today I have 99.1 at 4pm and hope it doesn't go up more by tonight but infection is in mouth, glands, throat and chest again. I can't believe this.... Rheumy doesn't have hours on Friday and receptionist had to fax her about my 99.1 and rheumy faxed or called her back to tell her to tell me that I should go back to the ENT. What B.LLS!!!! I can't believe it. Thought she would be telling me to be in Rheumy's office Monday morning but that didn't happen ....SharonFrom:" Canter" Subject:Re: Re: quick questionDate:August 19, 2011 11:48:51 AM EDTTo:"asthma " <asthma >I got my flu shot yesterday. I have been doing well today. I had a rough time with it last year because the seasonal vaccine was combined with the H1N1 vaccine. This year, so far, no problems with feeling bad.To: asthma Sent: Friday, August 19, 2011 11:35 AMSubject: Re: Re: quick question Thanks again Jean. Sorry if you get this message twice. My doctor is very sensitive to my concerns. She said she would give me a small test to see if I responded. Then I would only get 1/2 and we would wait 30 minutes before we administered the next 30 minutes if everything went okay. I appreciate your prayers and thoughts! hi .I just responded to your email..I am the one with a dd who also got frequent resp. infections and who is so much better now after the pneuvax shot....ok...I just read this about your reaction to the flu shot....flu vaccines have thimerosal (a mercury-containing preservative) in them..or they use to(not sure if they still do)...could it be you reacted to this? the pneumvax doesnt have this presvative..maybe something you can ask you dr. please note, although my dd who tested possitive to mercury on an allergy test she did not have any reaction to the flu vaccine..you may be more sensitive to things like this...just thought I mention the presvative in case you want to ck into. Ill keep you in my thoughts and prayers...I know how hard it is to be sick all the time. jean>> Thanks. I think the reason I'm a little shy is because I too had the flu> shot this year and my body went into rejection mode. I'm a little skittish> now. I used to have no trouble with shots or medication but after really> getting sick, my body has become super sensitive to medication.-- Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2011 Report Share Posted August 20, 2011 There is never an excuse for putting yourself and your personal goals ahead of others. Especially for a doctor. It is definitely time for you to move on. I know how bad it feels to be without a good physician you trust. I have recently found someone (not local - an hour away from my house) who I trust. It has been a long long search.MadelineTo: asthma ; "asthma " <asthma >Sent: Friday, August 19, 2011 8:34 PMSubject: Re: Re: quick question Hi Madeline,That's just it -- that's my point because my rheumy is both my primary and rheumatologist ... Also she IS an internist so go figure! I will never be told the truth but what I think happened is that when I started with her going on 15 years ago she was a practicing rheumy who offered to be my primary also and felt that it would be less complicated if she would have all of my records and if/when necessary would refer me to other doctors or testing but in these last couple of years I know she became a Professor of Rheumatology in the NYU Medical school and then for all I know, she may be in line to become the head of the department. She used to call me at home anytime I needed her but now her phoning patients at home is only a memory. What really made up my mind to start looking for someone else was when I was in the ER and then was told to stay overnight I asked the head nurse on the floor if she could notify her that I was in the hospital, hoping for a phone call but that never happened. Then after I came home I called her office, left a message and all I said was that I was just calling to touch base with her and receptionist only said that all she can do is take messages. Meanwhile, she never did call me which I feel is so wrong it isn't funny. I know not to take this personally because it seems that she is devoting her time and practice to other things that are more lucrative for her????Thanks again Madeline,SharonFrom:"Madeline Ingram" Subject:Re: Re: quick questionDate:August 19, 2011 7:35:36 PM EDTTo:"asthma " <asthma >Hi Sharon,I would be so frustrated in your shoes. Sounds like it is time to bring in a different doc. Maybe an internal specialist as they tend to look at the whole picture and not just the pieces.Hugs.MadelineTo: asthma ; "asthma " <asthma >Sent: Friday, August 19, 2011 5:34 PMSubject: Re: Re: quick question I will only be on here for a minute because I am still very sick. When I came home from er & hospital apparently I caught something that turned into a very bad throat (strep) and every single gland swelled. Thought after antibiotics for 3 days that I would be able to shake it but am just as bad. caught strep throat from me and was also put on the z pack and apparently germs are in apartment and can't shake it..... You won't believe this but when I complained to rheumy that I was still sick last week she told me to go to an ENT and I did but the day I saw ENT he told me that throat looked much better to him and he sent that note back to rheumy. Well, today I have 99.1 at 4pm and hope it doesn't go up more by tonight but infection is in mouth, glands, throat and chest again. I can't believe this.... Rheumy doesn't have hours on Friday and receptionist had to fax her about my 99.1 and rheumy faxed or called her back to tell her to tell me that I should go back to the ENT. What B.LLS!!!! I can't believe it. Thought she would be telling me to be in Rheumy's office Monday morning but that didn't happen ....SharonFrom:" Canter" Su bject:Re: Re: quick questionDate:August 19, 2011 11:48:51 AM EDTTo:"asthma " <asthma >I got my flu shot yesterday. I have been doing well today. I had a rough time with it last year because the seasonal vaccine was combined with the H1N1 vaccine. This year, so far, no problems with feeling bad.To: asthma Sent: Friday, August 19, 2011 11:35 AMSubject: Re: Re: quick question Thanks again Jean. Sorry if you get this message twice. My doctor is very sensitive to my concerns. She said she would give me a small test to see if I responded. Then I would only get 1/2 and we would wait 30 minutes before we administered the next 30 minutes if everything went okay. I appreciate your prayers and thoughts! hi .I just responded to your email..I am the one with a dd who also got frequent resp. infections and who is so much better now after the pneuvax shot....ok...I just read this about your reaction to the flu shot....flu vaccines have thimerosal (a mercury-containing preservative) in them..or they use to(not sure if they still do)...could it be you reacted to this? the pneumvax doesnt have this presvative..maybe something you can ask you dr. please note, although my dd who tested possitive to mercury on an allergy test she did not have any reaction to the flu vaccine..you may be more sensitive to things like this...just thought I mention the presvative in case you want to ck into. Ill keep you in my thoughts and prayers...I know how hard it is to be sick all the time. jean>> Thanks. I think the reason I'm a little shy is because I too had the flu> shot this year and my body went into rejection mode. I'm a little skittish> now. I used to have no trouble with shots or medication but after really> getting sick, my body has become super sensitive to medication.-- Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2011 Report Share Posted August 20, 2011 Sounds like a plan to me.To: asthma ; "asthma " <asthma >Sent: Friday, August 19, 2011 7:15 PMSubject: Re: Re: quick question I agree with you. I already put a call in to ENT's receptionist and asked if I can come in on Monday and hopefully she will say yes. But now that I'm thinking about it I wanted to see this ENT on Monday morning of last week and I think she said that he's in the hospital on Mondays' visiting patients or else doing surgery and doesn't have office hours. If that's the case then I will ask to see someone else this coming Monday.Also I decided that if I like this new pulm. hypertension specialist who is in a different hospital I may ask her if there are reputable rheumy's who have expertise in all of my problems and if so then I may see someone else and then decide whether I will change doctors or not.Thanks again,SharonFrom:" Canter" Subject:Re: Re: quick questionDate:August 19, 2011 7:02:05 PM EDTTo:"asthma " <asthma >Sharon, It might be time for a trip to the ER again unfortunately. Then it might be time for new doctors. The way they treated you is crap.Feel better soon,To: asthma ; "asthma " <asthma >Sent: Friday, August 19, 2011 5:34 PMSubject: Re: Re: quick question I will only be on here for a minute because I am still very sick. When I came home from er & hospital apparently I caught something that turned into a very bad throat (strep) and every single gland swelled. Thought after antibiotics for 3 days that I would be able to shake it but am just as bad. caught strep throat from me and was also put on the z pack and apparently germs are in apartment and can't shake it..... You won't believe this but when I complained to rheumy that I was still sick last week she told me to go to an ENT and I did but the day I saw ENT he told me that throat looked much better to him and he sent that note back to rheumy. Well, today I have 99.1 at 4pm and hope it doesn't go up more by tonight but infection is in mouth, glands, throat and chest again. I can't believe this.... Rheumy doesn't have hours on Friday and receptionist had to fax her about my 99.1 and rheumy faxed or called her back to tell her to tell me that I should go back to the ENT. What B.LLS!!!! I can't believe it. Thought she would be telling me to be in Rheumy's office Monday morning but that didn't happen ....SharonFrom:" Canter" Subject:Re: Re: quick questionDate:August 19, 2011 11:48:51 AM EDTTo:"asthma " <asthma >I got my flu shot yesterday. I have been doing well today. I had a rough time with it last year because the seasonal vaccine was combined with the H1N1 vaccine. This year, so far, no problems with feeling bad.To: asthma Sent: Friday, August 19, 2011 11:35 AMSubject: Re: Re: quick question Thanks again Jean. Sorry if you get this message twice. My doctor is very sensitive to my concerns. She said she would give me a small test to see if I responded. Then I would only get 1/2 and we would wait 30 minutes before we a dministered the next 30 minutes if everything went okay. I appreciate your prayers and thoughts! hi .I just responded to your email..I am the one with a dd who also got frequent resp. infections and who is so much better now after the pneuvax shot....ok...I just read this about your reaction to the flu shot....flu vaccines have thimerosal (a mercury-containing preservative) in them..or they use to(not sure if they still do)...could it be you reacted to this? the pneumvax doesnt have this presvative..maybe something you can ask you dr. please note, although my dd who tested possitive to mercury on an allergy test she did not have any reaction to the flu vaccine..you may be more sensitive to things like this...just thought I mention the presvative in case you want to ck into. Ill keep you in my thoughts and prayers...I know how hard it is to be sick all the time. jean>> Thanks. I think the reason I'm a little shy is because I too had the flu> shot this year and my body went into rejection mode. I'm a little skittish> now. I used to have no trouble with shots or medication but after really> getting sick, my body has become super sensitive to medication.-- Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2011 Report Share Posted August 20, 2011 I totally agree with finding a new doctor. And don't get discouraged if it takes a little while to find the right one, because when you do, you will be so much happier and possibly healthier.  There is never an excuse for putting yourself and your personal goals ahead of others.  Especially for a doctor.  It is definitely time for you to move on.  I know how bad it feels to be without a good physician you trust.  I have recently found someone (not local - an hour away from my house) who I trust.  It has been a long long search. Madeline To: asthma ; " asthma " <asthma > Sent: Friday, August 19, 2011 8:34 PMSubject: Re: Re: quick question  Hi Madeline,That's just it -- that's my point because my rheumy is both my primary and rheumatologist ... Also she IS an internist so go figure!   I will never be told the truth but what I think happened is that when I started with her going on 15 years ago she was a practicing rheumy who offered to be my primary also and felt that it would be less complicated if she would have all of my records and if/when necessary would refer me to other doctors or testing but in these last couple of years I know she became a Professor of Rheumatology in the NYU Medical school and then for all I know, she may be in line to become the head of the department.  She used to call me at home anytime I needed her but now her phoning patients at home is only a memory.   What really made up my mind to start looking for someone else was when I was in the ER and then was told to stay overnight I asked the head nurse on the floor if she could notify her that I was in the hospital, hoping for a phone call but that never happened.  Then after I came home I called her office, left a message and all I said was that I was just calling to touch base with her and receptionist only said that all she can do is take messages.  Meanwhile, she never did call me which I feel is so wrong it isn't funny.   I know not to take this personally because it seems that she is devoting her time and practice to other things that are more lucrative for her???? Thanks again Madeline,Sharon Subject: Re: Re: quick questionDate: August 19, 2011 7:35:36 PM EDTTo: " asthma " <asthma > Hi Sharon,I would be so frustrated in your shoes.  Sounds like it is time to bring in a different doc.  Maybe an internal specialist as they tend to look at the whole picture and not just the pieces. Hugs.Madeline From: piaybyear To: asthma ; " asthma " <asthma > Sent: Friday, August 19, 2011 5:34 PMSubject: Re: Re: quick question I will only be on here for a minute because I am still very sick.  When I came home from er & hospital apparently I caught something that turned into a very bad throat (strep) and every single gland swelled.  Thought after antibiotics for 3 days that I would be able to shake it but am just as bad.  caught strep throat from me and was also put on the z pack and apparently germs are in apartment and can't shake it.....   You won't believe this but when I complained to rheumy that I was still sick last week she told me to go to an ENT and I did but the day I saw ENT he told me that throat looked much better to him and he sent that note back to rheumy.  Well, today I have 99.1 at 4pm and hope it doesn't go up more by tonight but infection is in mouth, glands, throat and chest again.  I can't believe this.... Rheumy doesn't have hours on Friday and receptionist had to fax her about my 99.1 and rheumy faxed or called her back to tell her to tell me that I should go back to the ENT.  What B.LLS!!!!  I can't believe it.  Thought she would be telling me to be in Rheumy's office Monday morning but that didn't happen ....Sharon From: " Canter " Su bject:Re: Re: quick question Date:August 19, 2011 11:48:51 AM EDT To: " asthma " <asthma > I got my flu shot yesterday. I have been doing well today. I had a rough time with it last year because the seasonal vaccine was combined with the H1N1 vaccine. This year, so far, no problems with feeling bad. From: Wolf To: asthma Sent: Friday, August 19, 2011 11:35 AM Subject: Re: Re: quick question Thanks again Jean. Sorry if you get this message twice. My doctor is very sensitive to my concerns. She said she would give me a small test to see if I responded. Then I would only get 1/2 and we would wait 30 minutes before we administered the next 30 minutes if everything went okay. I appreciate your prayers and thoughts!On Fri, Aug 19, 2011 at 7:20 AM, gigles_1955  wrote:  hi .I just responded to your email..I am the one with a dd who also got frequent resp. infections and who is so much better now after the pneuvax shot....ok...I just read this about your reaction to the flu shot....flu vaccines have thimerosal (a mercury-containing preservative) in them..or they use to(not sure if they still do)...could it be you reacted to this? the pneumvax doesnt have this presvative..maybe something you can ask you dr. please note, although my dd who tested possitive to mercury on an allergy test she did not have any reaction to the flu vaccine..you may be more sensitive to things like this...just thought I mention the presvative in case you want to ck into. Ill keep you in my thoughts and prayers...I know how hard it is to be sick all the time. jean >> Thanks. I think the reason I'm a little shy is because I too had the flu> shot this year and my body went into rejection mode. I'm a little skittish> now. I used to have no trouble with shots or medication but after really > getting sick, my body has become super sensitive to medication.-- Take care, -- Take care, Quote Link to comment Share on other sites More sharing options...
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