ZAK is HOME

[Guest guest]

Hello Everyone,

We got Zak home last night and it is wonderful. I can finally be at home

with all my children and be with my Tryny and my Zakey at the same time. I

am loving this.

And I have questions for all of you mothers of trached babies (see there is

something medical I don't know about........................). Zak had to

come home on oxygen through the trach collar and we finally got the right mix

I think (he's on 35% and in the hospital 6 liters but at home we find he does

better on 3 liters). He still seems to have congestion especially in the

right lung so he's on nebulizer treatments every 6 hours with the pitty pats

too. We try not to suction to often, but how often is to much. Here's some

questions (and if you all have any answers to questions I haven't thought of

yet, let me know them too).

In the hospital he was on a warm air humidifier on the oxygen tank but at

home we have just regular humidifier and he seems to be less " spity " (he just

uzed with spit in the hospital - all out of his mouth, nose and trach) but on

regular humidifier, not any out the mouth and nose, just the trach. Will

cool air verses warm air make a difference?

I'm really not sure what questions I want or need to ask, I just know that

there is always a question somewhere about something. So I guess what I

really need is any and all answers before I have the questions. Also, how

long does the " trach fear " last (that is what my favorite RT called it).

After Tryny, I didn't think there was anything more to learn or to fear, but

Zak decided to teach me a lesson in " humility " I guess. And besides, he

couldn't let Tryny have all the spot light.

Thanks for all of your good wishes, thoughts and prayers. We are all

grateful and care about each and every one of you.

Love,

The on's:

Debra, , Steph, Kody, Niki, Chas, BJ, Tryny, Seasy, Gabey and Zakarya