Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 Malcolm Thanks for the note. We know that there are other options if PC plus fails you. I am on a phase 2 vaccination trial at a London hospital and a registrar there said the object should be to keep those who feel well felling well. I.e. use the options that give minimum side effects. I was not happy with this situation so since Oct 2003 I have self treated myself with PC Plus. Results Nov PSA 3.1, Dec PSA 2.62, A good indication keeping my fingers crossed. I am again in the process of changing consultant. I Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 After abut 12 months with PSA bouncing between 13 and 7, I now have a PSA of 16. we are hoping this will go down again when I go on the 7th if it suddenly starts doubling we will be looking for another option. There is another complication that is I have been on Casoidex 150mg monotherapy with the vaccinations, this is now out of favour and my York consultant wants to change me to Zoledex. I will chat this through at St 's on the 7th Happy New Year all Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 L I was not aware of the Epcel list, have you more info? One other option is low dose chemo, I gather. Hope you have a good 2004 too Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 Thanks for the info re the group. I'm not too clued up yet about low dose chemo, only that it has few side effects. One anti view I heard was will this preclude use of the larger dose later? I'll try to find out more. -----Original Message-----From: Lancaster Sent: 31 December 2003 08:21To: ProstateCancerSupport Subject: Re: Hormone RefractoryHere is the link for epcel: the moderator is Sammy Bates http://groups.yahoo.com/group/epcel/Is the low dose chemo another of T. M. Beer's protocols? I've heard of his "pulsing" with Taxotere which I believe is like IHT but with chemotherapy.Bwww Lancaster On Tuesday, December 30, 2003, at 03:23 pm, Metcalf wrote: L I was not aware of the Epcel list, have you more info? One other option is low dose chemo, I gather. Hope you have a good 2004 too <image.tiff> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 Have you seen the Epcel list where the chat is about the use of high dose testosterone a la Leibowitz and ? If you've never had Zoladex it will most likely reduce your disease burden and your PSA. Other options are estrogen patches, DES if it returns to the market, Ketoconazole and Prostasol. Good luck and a Happy 2004 to you Lancaster On Tuesday, December 30, 2003, at 02:21 pm, Metcalf wrote: > > > After abut 12 months with PSA bouncing between 13 and 7, I now have a > PSA of 16. we are hoping this will go down again when I go on the 7th > if it suddenly starts doubling we will be looking for another option. > > There is another complication that is I have been on Casoidex 150mg > monotherapy with the vaccinations, this is now out of favour and my > York consultant wants to change me to Zoledex. I will chat this > through at St 's on the 7th > > Happy New Year all > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 Here is the link for epcel: the moderator is Sammy Bates > http://groups.yahoo.com/group/epcel/ Is the low dose chemo another of T. M. Beer's protocols? I've heard of his " pulsing " with Taxotere which I believe is like IHT but with chemotherapy. Bwww Lancaster On Tuesday, December 30, 2003, at 03:23 pm, Metcalf wrote: > L > > I was not aware of the Epcel list, have you more info? > > One other option is low dose chemo, I gather. > > Hope you have a good 2004 too > > > > > > <image.tiff> > > Quote Link to comment Share on other sites More sharing options...
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