Re: New poll - favorite docs, favorite supplements

[Guest guest]

Hi ,

To look at blocking TSH receptor antibody activity you need to do testing for

both TSI (stimulating activity of TSHRabs) and also a TBII aka Thyrotropin

Binding Inhibiting Immunoglobulin ((it is known as TRab in some labs), which

tests both blocking and stimulating TSHRabs activity aka total TSHRabs. You need

a doctor that understands what each test shows.

If TBII is high and TSI is low or moderately increased – you have more blocking

TSHRabs activity occurring in your body, so a greater need for thyroid

replacement hormone or lowering anti-thyroid drug. You will want to stay on

MMI/PTU to get rid of these blocking TSHRabs, if they are left untreated (NOT

eliminated) they will go on to damage other tissue.

This is complex, if TSI is high, then TBII will also be high. This result

indicates stimulating TSHRabs are very active and the blocking type TSHRabs are

minimal. I would not recommend doing a TRab or TBII test alone as you will never

know if the TSHRabs activity is stimulating or blocking, all you will know is

that there is TSHRabs activity but not what type. That is where the TSI is

needed for appropriate distinction.

Best wishes,

~Bj

> > >

> > > Dear Members of Thyroiditis -

> > >

> > > I'd like to try an informal poll on two popular topics on our board.

Instead of using Yahoo's poll feature, I'd like to leave the responses

open-ended, so you can answer as you like via e-mail. We'll compile and post the

results.

> > >

> > > Please send your responses to a member who has offered to help,

Konstantine. She has set up a special e-mail for this: hashis411@ (hashis411 at

gmail dot com), please copy me - suuzin@ (suuzin at yahoo dot com). No need to

post your replies to our list.

> > >

> > >

> > >

> > > Please respond to either or both of these questions:

> > >

> > > 1) Do you have a doctor/ practitioner who has been especially helpful

through your Hashimoto's journey? If you'd like to add her/ him to a Thyroiditis

Preferred Practitioners list we're creating, please provide their name, number,

and location - and if you'd like, a short recommendation. All locations around

the world welcome!

> > >

> > > 2) If you take nutritional or other non-thyroid hormone supplements, such

as herbs, vitamins, minerals, adrenal glandulars, etc, which ones have been the

most helpful to your thyroid condition? 

> > >

> > >

> > > Again, please reply to hashis411@ (hashis411 at gmail dot com), and copy

me - suuzin@ (suuzin at yahoo dot com).

> > >

> > > Your feedback is important, and if it can help just one other person, the

information will not be in vain. will be compiling the results and

publishing them in the files section of this group. 

> > >

> > > I asked to write a little about her own, quite challenging story

below. There is good information in there - have a read!

> > >

> > > Thank you!

> > >

> > >

> > > --

> > >

> > > My name is Konstantine, I was diagnosed with Hashimoto's Thyroiditis

in July, 2010 (along with Graves disease, as well) a double whammy. Nevetheless,

the year before my actual diagnosis I was extremely tired (fall asleep at the

wheel tired), my hair was falling out in clumps, I was severely

depressed…just to name a few of the symptoms off the top of my head. 

> > >

> > > The docs said I was pre-menopausal and sent me on my way. I knew something

was terribly wrong, but received no help in diagnosis, let alone treatment. I

was fortunate to come across a functional medicine physician in Covina, CA., Dr.

Privitera, who prescribed Armour and some olive leaf extract along with some

other supplements. 

> > >

> > > My condition didn't really have a chance to  improve much over the next

few months and then my life changed completely, I was rear ended in an auto

accident, and suffered a tremendously painful whiplash. At that time, my thyroid

decided to go the other way. That is when I was eventually diagnosed with acute

onset stress related Graves disease and the revelation that the year before was

actually Hashimoto's Thryoiditis, as proven in an ultra-sound,  not

pre-menopausal symptoms at all. 

> > >

> > > My most recent research and focus efforts have been on stabilizing the

Graves disease. I am currently taking Methimazole (5mg in the evening) and

Levothyroxine (12.5mcg in the morning, on Tue, Thurs, Sat and Sun). This has

kept me from falling back in to the hypo pit of symptoms and is keeping my

Graves auto-antibodies from taking over and destroying more tissue, especially

in relation to my eyes. My thyroid eye disease has calmed down, also. I think

partly because I chew on fennel seeds every day all day and add ground flax

seeds to my daily juices and smoothies, which are primarily carrot based. I take

a " 30 billion, senior care " probiotic formula manufactured by Renew Life, which

I researched and found to be the most effective for me, in between meals to help

with digestion. I also take a lanolin based " non-fish " Vitamin D3 manufactured

by NOW, 5,000 units, daily. When I first started this journey, my 

> > > 25(OH)D, also called 25-hyroxyvitamin D, which is the correct test was 13,

most recently it came back at 32. So, I'm confident this supplement is working.

> > >

> > > Now that I have some stabilization in time and nutrients behind me, and

out of the brainfog this whole disease brings with it, I would like to focus my

attention on giving back to the communities that have helped me in my struggles.

> > >

> >

>

[Guest guest]

Hi everyone - last call for input here. The responses we've gotten are great,

but we haven't received that many. This group is what we make it! So please send

your response if you haven't already to suuzin@... (suuzin at yahoo dot

com) and hashis411@... (hashis411 at gmail dot com). We will publish the

results soon. Thanks!

>

> Dear Members of Thyroiditis -

>

> I'd like to try an informal poll on two popular topics on our board. Instead

of using Yahoo's poll feature, I'd like to leave the responses open-ended, so

you can answer as you like via e-mail. We'll compile and post the results.

>

> Please send your responses to a member who has offered to help,

Konstantine. She has set up a special e-mail for this: hashis411@... (hashis411

at gmail dot com), please copy me - suuzin@... (suuzin at yahoo dot com). No

need to post your replies to our list.

>

>

>

> Please respond to either or both of these questions:

>

> 1) Do you have a doctor/ practitioner who has been especially helpful through

your Hashimoto's journey? If you'd like to add her/ him to a Thyroiditis

Preferred Practitioners list we're creating, please provide their name, number,

and location - and if you'd like, a short recommendation. All locations around

the world welcome!

>

> 2) If you take nutritional or other non-thyroid hormone supplements, such as

herbs, vitamins, minerals, adrenal glandulars, etc, which ones have been the

most helpful to your thyroid condition? 

>

>

> Again, please reply to hashis411@... (hashis411 at gmail dot com), and copy me

- suuzin@... (suuzin at yahoo dot com).

>

> Your feedback is important, and if it can help just one other person, the

information will not be in vain. will be compiling the results and

publishing them in the files section of this group. 

>

> I asked to write a little about her own, quite challenging story below.

There is good information in there - have a read!

>

> Thank you!

>

>

> --

>

> My name is Konstantine, I was diagnosed with Hashimoto's Thyroiditis in

July, 2010 (along with Graves disease, as well) a double whammy. Nevetheless,

the year before my actual diagnosis I was extremely tired (fall asleep at the

wheel tired), my hair was falling out in clumps, I was severely depressed…just

to name a few of the symptoms off the top of my head. 

>

> The docs said I was pre-menopausal and sent me on my way. I knew something was

terribly wrong, but received no help in diagnosis, let alone treatment. I was

fortunate to come across a functional medicine physician in Covina, CA., Dr.

Privitera, who prescribed Armour and some olive leaf extract along with some

other supplements. 

>

> My condition didn't really have a chance to  improve much over the next few

months and then my life changed completely, I was rear ended in an auto

accident, and suffered a tremendously painful whiplash. At that time, my thyroid

decided to go the other way. That is when I was eventually diagnosed with acute

onset stress related Graves disease and the revelation that the year before was

actually Hashimoto's Thryoiditis, as proven in an ultra-sound,  not

pre-menopausal symptoms at all. 

>

> My most recent research and focus efforts have been on stabilizing the Graves

disease. I am currently taking Methimazole (5mg in the evening) and

Levothyroxine (12.5mcg in the morning, on Tue, Thurs, Sat and Sun). This has

kept me from falling back in to the hypo pit of symptoms and is keeping my

Graves auto-antibodies from taking over and destroying more tissue, especially

in relation to my eyes. My thyroid eye disease has calmed down, also. I think

partly because I chew on fennel seeds every day all day and add ground flax

seeds to my daily juices and smoothies, which are primarily carrot based. I take

a " 30 billion, senior care " probiotic formula manufactured by Renew Life, which

I researched and found to be the most effective for me, in between meals to help

with digestion. I also take a lanolin based " non-fish " Vitamin D3 manufactured

by NOW, 5,000 units, daily. When I first started this journey, my 

> 25(OH)D, also called 25-hyroxyvitamin D, which is the correct test was 13,

most recently it came back at 32. So, I'm confident this supplement is working.

>

> Now that I have some stabilization in time and nutrients behind me, and out of

the brainfog this whole disease brings with it, I would like to focus my

attention on giving back to the communities that have helped me in my struggles.

>