Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 Gosh - I was just reading about a minimal invasive surgery done on a gentleman recently - who'd had hiccups for several years now caused by a tumor in the brainstem ===and found links /info to a " center of excelence " team of neurosurgeons in NY - doing min invasive surgerys on the skull base problems such as ours /( they mention csf fluid leaks amoungst the areas they have expertise in =and quite often this location tumor can lead to aquired acm == other clues in their website they may have acm experience beyond some -most too ), maxilary sinus tummors ( one current member I can recall now has both acm and this sort of tumor acting up ) === what I DON " T know = is a thing about this center or these doctors =-posting it in the hopes we may have a member or two who can tell us anything at all about them = are they perhaps a good resource for us ? http://www.cranialbasecenter.org/about_us/index.htm I'm also going to check into a couple other teams /sites I found linked =see if this isn't an area of neurosurgery starting to grow in numbers of locations ect = I " ve NOT heard about any of the acm guru's beyond two possible , starting to use these techniques and this sort of approach in acm cases ( Dr Jho is the one I've read about more recently -but Dr Oro I believe has started using some bits in some cases as well IF I'm remembering accuratly ) ... it does make soo much sense to me IN some ways = but I also wonder if seeing with eye's ON the area , may not be wise in at least some of the acm sitations given the neurosurgeons discussion at prior asap confrences saying they DO run into very unexpected sitations in a smaller percentage of cases /where those eye's on make ALL the differance in knowing how to approach that unexpected spot .... that said , I " d guess this could well have advantages as an approach for those of us with connective tissue disorder entwinment too == Gosh , and I tend to feel medicine is bogged down in advancing acm care , == sure does show me how WRONG I am to think that way too = LOL . Can anyone add to these thoughts now ? in Paradise Quote Link to comment Share on other sites More sharing options...
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