Guest guest Posted February 20, 2004 Report Share Posted February 20, 2004 Well I have been getting fed up recently by the requests for membership which I am presuming to be not bone fide. Most of you will have had that awful note I feel I have to write to stop the automatic address searchers. Recently I have been getting very few replies, this week has been the opposite we have quite a few new members. Welcome everyone. I went down to London (St 's at Tooting) on Wednesday and had a chat with Dr Pandha's registrar. You may know that I had a prostatectomy in 1996, the PSA slowly crept up to 9 early 2000 then the PSA shot to 19 in 6 months. I started on Casodex 150mg (have breasts to prove it) but after 18 months the PSA started rising again. The doubling time was held back by Onyvax vaccinations (continuing Casodex) bouncing in the 7 to 13 range from June 2001 to Dec 2003. The vaccination side effects included going round in the LOndon Eye, going to Oxford Street shops, London's museums etc etc. Then the PSA shot up to 29 and we stopped the vaccine. St 's are running trial on low dose chemotherapy and so I have started on 100 mg of Cyclophosphamide today. We will see if a I can get another 18 months on this one with minimal side effects. I am away to the Wye Valley on the borders of South Wales from tomorrow until Wednesday - that will be a pleasant change too Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2004 Report Share Posted February 21, 2004 ken I thank you for the information on advanced prostate cancer as i have been on hormone treatment about two years ago and my psa is now up to about 6.0 and i could start treatment again in march as my psa has never been above 8.2. your information of furture treatment could be very helpful so i thank you. A pleasant change > Well I have been getting fed up recently by the requests for membership > which I am presuming to be not bone fide. Most of you will have had that > awful note I feel I have to write to stop the automatic address searchers. > Recently I have been getting very few replies, this week has been the > opposite we have quite a few new members. Welcome everyone. > > I went down to London (St 's at Tooting) on Wednesday and had a chat > with Dr Pandha's registrar. You may know that I had a prostatectomy in 1996, > the PSA slowly crept up to 9 early 2000 then the PSA shot to 19 in 6 months. > I started on Casodex 150mg (have breasts to prove it) but after 18 months > the PSA started rising again. > > The doubling time was held back by Onyvax vaccinations (continuing Casodex) > bouncing in the 7 to 13 range from June 2001 to Dec 2003. The vaccination > side effects included going round in the LOndon Eye, going to Oxford Street > shops, London's museums etc etc. Then the PSA shot up to 29 and we stopped > the vaccine. St 's are running trial on low dose chemotherapy and so > I have started on 100 mg of Cyclophosphamide today. We will see if a I can > get another 18 months on this one with minimal side effects. > > I am away to the Wye Valley on the borders of South Wales from tomorrow > until Wednesday - that will be a pleasant change too > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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