from joyce---chiari--breathing

[Guest guest]

Hi,

 

the breathing subject stirs things very strong within  me because that is

exactly what happened to my daughter jennifer--- who had  been diagnosed with

chiari for two months then died in ER from a sudden breathing problem---she was

taken to ER because she had drop attack of which she had

experiencing--ataxia--nausa--headache.

two hrs later she suddenly was not able to breath.

 I know----i saw it so not anyone can tel me different. is what caused it where

the issue gets twisted. because no atopsy was done and they blamed migraine for

all her symptoms---ran only one mri even with complaints of leg numbness and the

ataxia.

she suprised them by deteriating so quickly ----is why  i believe things were

covered to protect themselves for not doing more sooner. she had just seen a

neurosurgeon two weeks eairler who said other people are worse than her and it

is only migraine---chiari dosnt cause these symptoms. told her to follow up in

six months (told me they told her three months. it was to late.

 

now we dont have information that was important for the rest of my family--- but

also others who have it and just pure knowledge of exactly what kind of

circumstance and or medications given during treatment of symptoms or at the

ER----mixed with chiari could kill someone.

my belief from watching jennys situation step by step----if you have chiari

circumstances mixed with it can be leathel---this is why i say chiari can kill.

i had to talk because it is my responsibility.

 

Thanks,

Joyce,

s mom and

Jennfers daughter (Madilyns grandmom) (now eight)