Guest guest Posted November 29, 2010 Report Share Posted November 29, 2010 Hi Everyone, I have lots of questions this week; again thanks for all who answered coq10 question. Does anyone have motility issues. It feels like food sits in my esophagus. When I swallow or drink; even if it's 10 hours after I have eaten, it gets worse. I have had so many tests done. The worst part is that somehow - when the food is in a certain position - my heart gets fast and it is very scary. I cannot take beta blockers. It makes it worse. The cardiologist says that this is systemic; that is it not a cardiac issue, that something systemic is wreaking havoc on my heart. I initially lost 20 pounds in a month last January and was admitted into hospital. I am so frightened. I know hashis effects everything, but could it be part of this whole motility problem. I see three different doctors this week. Every time I leave a doctor I feel so defeated and depressed. They do believe and know something is wrong but can't figure it out. I don't know how much more of this I can take. If anyone has experience with motility issues and/or has knowledge about whether this can be thyroid related, I would love to hear from you. Best to all, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2010 Report Share Posted November 29, 2010 hi is this your main symptom??? " It feels like food sits in my esophagus. When I swallow or drink; even if it's 10 hours after I have eaten, it gets worse. " if that is really your only symptom + the heart-feelings? Hashis can affect this but so can being hypot or Adrenal Fatiuged /high or low cortisol// the upregulated stress response affects our digestive tract any where and in any way basically ? what Tests did the doctor do and did they confirm ANY thing??? what did their lab results state? cuz if your only symptom is feeling like food got stuck in your esophagus =where? throat or in chest region above stomach?? the Adrenal Fatiuge process /stress system/ affects the Valves in the body ! cortisol and stress hormones AND the stress effect on our nervsous system 'neurochemicals = like Acetylcholine! can LOOSEN our valves including valves in the digestive tracts.. and ligaments too.. all over the body . and having food or gas in certain places in the digestive system can and does affec tour heart and sensations of beating as well as pulse (dont' drink carbonated drinks on an AIrplane either i would have 'panic feeling and heart beating scary ; until i burped = have you done thorought thryoid tests and antibody tests ? have you read up no Adrenal Fatiuge including LIfestyle and diet changes? done 24hr Cortisol Saliva test (4xday)???? -Carol and are you using good quality Celtic Sea Salt brand every day? if hashis/ have yo stopped eating all wehat and gluten products?? > > Hi Everyone, > I have lots of questions this week; again thanks for all who answered > coq10 question. > > Does anyone have motility issues. It feels like food sits in my esophagus. When I swallow or drink; even if it's 10 hours after I have eaten, it gets worse. I have had so many tests done. The worst part is > that somehow - when the food is in a certain position - my heart gets > fast and it is very scary. I cannot take beta blockers. It makes it > worse. The cardiologist says that this is systemic; that is it not a > cardiac issue, that something systemic is wreaking havoc on my heart. > I initially lost 20 pounds in a month last January and was admitted into > hospital. I am so frightened. I know hashis effects everything, but > could it be part of this whole motility problem. > > I see three different doctors this week. Every time I leave a doctor I > feel so defeated and depressed. They do believe and know something is > wrong but can't figure it out. I don't know how much more of this I can > take. > > If anyone has experience with motility issues and/or has knowledge about > whether this can be thyroid related, I would love to hear from you. > > Best to all, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2010 Report Share Posted November 30, 2010 Hi Carol, I was diagnosed with hashis about 8 years ago; antibodies were >2000. My TSH, T4 and T3 had been "in range" for the most part but I was definitely hypo and I never felt like me again. I have felt so poorly over the years. I did not get treated because I was could not tolerate any of the drugs. Because of my heart, I was afraid to try Armour. I just started 12.5 micrograms every other day because I have no choice now as I am getting severely hypo. I've had every lab done. Today the gastro doctor looked at me and said, "even tho you tested negative for lupus, I am sure that you have it. I can spot it a mile away." I am distraught right now. The stomach thing started in January and is getting worse. It moves around in chest and throat. The gastro dr said today that I probably have something called chronic intestinal pseudo obstruction. I've been hoping and praying that I did not have lupus or scleroderma or any other autoimmune aside from the Hashi's (which is enough in itself). My hope was that I could take the tiny dose of Levoxyl and magically I would get better. I will have my TSH, T4, T3 tested on Thursday (the first time since I started tiny dose several weeks ago). this is all really really hard; i know i don't have to tell you that. Thank you for all your knowledge. hi is this your main symptom??? " It feels like food sits in my esophagus. When I swallow or drink; even if it's 10 hours after I have eaten, it gets worse. " if that is really your only symptom + the heart-feelings? Hashis can affect this but so can being hypot or Adrenal Fatiuged /high or low cortisol// the upregulated stress response affects our digestive tract any where and in any way basically ? what Tests did the doctor do and did they confirm ANY thing??? what did their lab results state? cuz if your only symptom is feeling like food got stuck in your esophagus =where? throat or in chest region above stomach?? the Adrenal Fatiuge process /stress system/ affects the Valves in the body ! cortisol and stress hormones AND the stress effect on our nervsous system 'neurochemicals = like Acetylcholine! can LOOSEN our valves including valves in the digestive tracts.. and ligaments too.. all over the body . and having food or gas in certain places in the digestive system can and does affec tour heart and sensations of beating as well as pulse (dont' drink carbonated drinks on an AIrplane either i would have 'panic feeling and heart beating scary ; until i burped = have you done thorought thryoid tests and antibody tests ? have you read up no Adrenal Fatiuge including LIfestyle and diet changes? done 24hr Cortisol Saliva test (4xday)???? -Carol and are you using good quality Celtic Sea Salt brand every day? if hashis/ have yo stopped eating all wehat and gluten products?? > > Hi Everyone, > I have lots of questions this week; again thanks for all who answered > coq10 question. > > Does anyone have motility issues. It feels like food sits in my esophagus. When I swallow or drink; even if it's 10 hours after I have eaten, it gets worse. I have had so many tests done. The worst part is > that somehow - when the food is in a certain position - my heart gets > fast and it is very scary. I cannot take beta blockers. It makes it > worse. The cardiologist says that this is systemic; that is it not a > cardiac issue, that something systemic is wreaking havoc on my heart. > I initially lost 20 pounds in a month last January and was admitted into > hospital. I am so frightened. I know hashis effects everything, but > could it be part of this whole motility problem. > > I see three different doctors this week. Every time I leave a doctor I > feel so defeated and depressed. They do believe and know something is > wrong but can't figure it out. I don't know how much more of this I can > take. > > If anyone has experience with motility issues and/or has knowledge about > whether this can be thyroid related, I would love to hear from you. > > Best to all, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 hi i am not a doctor but i would suggest to you that if your Doctors are running tests /labs on you and Those labs are not testing positive for lupus + but you already know you have been fighting both HypoT and Autoimmune Thryoid disease for YEars with !NO treatment! then its very very possible that all of your symptoms can be from being Hypothryoid and/or AUtoimmune thryroid disease/ hashimoto's! ** doctors are really just clueless about how profoundly important all 5 thryoid hormones are to our health and well being and quality of life. remember Hypothyroidism is called the " Great Pretender " because Doctors always misdiagnosis so many of us with many other disease/s! its just a fact that doctors are absolutely clueless about how profoundly both hypOT and the autoimmune THyroid process is to our brain and body and mind and health and nervous system and our 'stress system' here is a fun test for your doctor ;^) ask your doctors to explain to you ALL the Nongenmic biologic actions of T2 , and T4 and T1 and Reverse T3 and T3 see what little info he can tell you. heck ;ask your doctor to explain the process of Nongenomics thoroughly cuz it happens with ALL of our hormones ,not just thryoid. (ask him after you have Wiki'd and Googled it your self ofocurse ~* you must pursue the testing and learning about Hypot Hashis and " Adrenal Fatigue " ! so that you don't get mislabeled and mistreated now or ever! : the only way you can properly assess is to learn how the body works and what the Good thryodi doctors are noting: those factors must be asssessed before you consign yourself to taking the word of 1 doctor who admits that your tests for lupus were NEgative! i would suggest to you that you are sensitive to your thryoid hormone for the same reasons that MANY of us hashis/ and HypoT patients are and the short answer is the processes of Lower- " NOrmal " Ferritin and the real meaning behindg " Adrenal Fatigue " you must do the right tests and Please note specifics! :)below your wrote that you want to test your T3 and T4 wrong please get your FREE t3 and FREE T4 and REVERSE T3 tested those are the tests that should be used to help assess your status and your treatment...tho it can't hurt to test the T3 and T4 tests they can cause problems =because doctors will look at them instead of the FREE Ts which tell us how much hormone is Available and free for your cells to actually use! -Carol PS you have hashis and *digestive problems: you should also stop the following foods for some months and see how you feel NOTE: hashis patients should not eat Gluten/wheat foods period. but think of it as a trial for now ;0 if that helps you get used to this ; its not bad i promise - gluten/wheat - dairy/cassein - probably the top 10 common allergens: wheat dairy soy Eggs Corn and i can't remember the others - avoid junk chemicals preservatives and bad FATS; Hydrogenated. sounds hard i know :/ but there are a noticable number of people who feel some relief within weeks of giving up those foods NOTE: besides the Wheat/gluten foods,, many Hashis patients can heal their Digestive tract as they cure their Hypot Levels AND cure their " Adrenal Fatigue process!! which means many folks can go back to eating healthy grains and dairy products > > > > > > Hi Everyone, > > > I have lots of questions this week; again thanks for all who answered > > > coq10 question. > > > > > > Does anyone have motility issues. > > > > It feels like food sits in my esophagus. When I swallow or drink; even > > if it's 10 hours after I have eaten, it gets worse. > > > > I have had so many tests done. The worst part is > > > that somehow - when the food is in a certain position - my heart gets > > > fast and it is very scary. I cannot take beta blockers. It makes it > > > worse. The cardiologist says that this is systemic; that is it not a > > > cardiac issue, that something systemic is wreaking havoc on my heart. > > > I initially lost 20 pounds in a month last January and was admitted > > into > > > hospital. I am so frightened. I know hashis effects everything, but > > > could it be part of this whole motility problem. > > > > > > I see three different doctors this week. Every time I leave a doctor I > > > feel so defeated and depressed. They do believe and know something is > > > wrong but can't figure it out. I don't know how much more of this I can > > > take. > > > > > > If anyone has experience with motility issues and/or has knowledge > > about > > > whether this can be thyroid related, I would love to hear from you. > > > > > > Best to all, > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 Hi Carol, I am really puzzled and curious why you think Hashis can go back to consuming gluten and/or dairy foods once they fix their gut and AF? Please share a link or where you got info on this. If one has Celiac then definitely NOT. If we have the gluten intolerance genes for DQ -HLA genes - DQ1, 3, 5, 6, 7 (DQ2/8 are for celiac disease) and DQ4 is usually not considered gluten intolerant. In other words, any Hashi would definitely need to have the DQ4 gene or NO DQ gene (which BTW I have - but think it is a lab error) then MAYBE (and I am stretching MAYBE here) it could be possible to eat gluten/wheat and dairy for these Hashis. My health is fairly good now but there is NO WAY I can ever eat wheat/gluten or dairy products. Hashis is an autoimmune disease not a thyroid disease therefore adding gluten/dairy back into our bodies will likely launch and agitate our immune systems to go on high alert even launching new attacks elsewhere. Bottom line for me, I am NOT willing to give up my current good health. If you or anyone else does, I'd like to know how it goes for you or them. In Wellness, ~Bj > > > > > > > > Hi Everyone, > > > > I have lots of questions this week; again thanks for all who answered > > > > coq10 question. > > > > > > > > Does anyone have motility issues. > > > > > > It feels like food sits in my esophagus. When I swallow or drink; even > > > if it's 10 hours after I have eaten, it gets worse. > > > > > > I have had so many tests done. The worst part is > > > > that somehow - when the food is in a certain position - my heart gets > > > > fast and it is very scary. I cannot take beta blockers. It makes it > > > > worse. The cardiologist says that this is systemic; that is it not a > > > > cardiac issue, that something systemic is wreaking havoc on my heart. > > > > I initially lost 20 pounds in a month last January and was admitted > > > into > > > > hospital. I am so frightened. I know hashis effects everything, but > > > > could it be part of this whole motility problem. > > > > > > > > I see three different doctors this week. Every time I leave a doctor I > > > > feel so defeated and depressed. They do believe and know something is > > > > wrong but can't figure it out. I don't know how much more of this I can > > > > take. > > > > > > > > If anyone has experience with motility issues and/or has knowledge > > > about > > > > whether this can be thyroid related, I would love to hear from you. > > > > > > > > Best to all, > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 Dr. K.explains the connection between gluten and the immune system very well. He says that the gluten molecule and the thyroid cell molecule are similar and when the immune system finds gluten in the blood stream, bc. of a leaky gut, then it attacks the gluten, and the thyroid by mistake.If anyone her would explained this to me in such a manner than I would have gotten gf earlier.Anyway, I don't think I have celiac dis. I may be sensitive to gluten, which I never ever noticed in any way. But bc. of the above explanation, I will never eat gluten on purpose again. To: Thyroiditis From: beckyjov@...Date: Wed, 1 Dec 2010 21:42:53 +0000Subject: Re: Motility Hi Carol, I am really puzzled and curious why you think Hashis can go back to consuming gluten and/or dairy foods once they fix their gut and AF? Please share a link or where you got info on this. If one has Celiac then definitely NOT. If we have the gluten intolerance genes for DQ -HLA genes - DQ1, 3, 5, 6, 7 (DQ2/8 are for celiac disease) and DQ4 is usually not considered gluten intolerant. In other words, any Hashi would definitely need to have the DQ4 gene or NO DQ gene (which BTW I have - but think it is a lab error) then MAYBE (and I am stretching MAYBE here) it could be possible to eat gluten/wheat and dairy for these Hashis. My health is fairly good now but there is NO WAY I can ever eat wheat/gluten or dairy products. Hashis is an autoimmune disease not a thyroid disease therefore adding gluten/dairy back into our bodies will likely launch and agitate our immune systems to go on high alert even launching new attacks elsewhere. Bottom line for me, I am NOT willing to give up my current good health. If you or anyone else does, I'd like to know how it goes for you or them. In Wellness, ~Bj > > > > > > > > Hi Everyone, > > > > I have lots of questions this week; again thanks for all who answered > > > > coq10 question. > > > > > > > > Does anyone have motility issues. > > > > > > It feels like food sits in my esophagus. When I swallow or drink; even > > > if it's 10 hours after I have eaten, it gets worse. > > > > > > I have had so many tests done. The worst part is > > > > that somehow - when the food is in a certain position - my heart gets > > > > fast and it is very scary. I cannot take beta blockers. It makes it > > > > worse. The cardiologist says that this is systemic; that is it not a > > > > cardiac issue, that something systemic is wreaking havoc on my heart. > > > > I initially lost 20 pounds in a month last January and was admitted > > > into > > > > hospital. I am so frightened. I know hashis effects everything, but > > > > could it be part of this whole motility problem. > > > > > > > > I see three different doctors this week. Every time I leave a doctor I > > > > feel so defeated and depressed. They do believe and know something is > > > > wrong but can't figure it out. I don't know how much more of this I can > > > > take. > > > > > > > > If anyone has experience with motility issues and/or has knowledge > > > about > > > > whether this can be thyroid related, I would love to hear from you. > > > > > > > > Best to all, > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 it sounds like we are on the same page actually: if you don't test as having the GEnes for Celiac disease /4 of them as listed on UCSD site/ you can't have " Celiac Disease " the autoimmune disease. --tho your verbiage below gives more leeway than the UCSD site seems to re: which Genes truly mean CD as you know, there are other things that can cause the gut to become unhealthy and react to Caseine or Glutens = including permeable = Leaky Gut. Leaky gut can be caused by NSAIDS or antibiotics OR " gluten Sensitivity " ...which then kicks off the immune response to those and OTher foods ;unique possibilites for eadch person :0 which is different than the Autoimmune disease CD. in fact UCSD *used to have link to verbiage on gluten Sensitivity and its differences from CD .. but since they redesigned their website a few years ago;;AFAIK their only reference now to gluten sensitivity is on the link to their TV presentation.. seems to me they are now avoiding the topic alltogether :^\ anyway: people can have Leaky Gut damage =which can be healed!! then they can tolerate most foods which /while sick/ made them Sensitized. =NOTE: most of us hashis have NEver had any (let alone all 4+) CD Genes tested to see if we have 1 or some of those genes! therefore i leave room for the possibility that many of us merely have 'leaky gut damage " which is causing " temporary " sensitivity to Dairy/cassein and/or Gluten foods. temporary but only if we resolve our underlying problems And heal our leaky gut now and keep it healthy in the future (beware of antibiotics and junk foods and NSAIDS and etc) and basically i no longer take everything doctors write as gospel :^/ simply put ;they have not tested most of the Hashis population ; i would venture to say far less than 1% ; to see if the majority of us have 1 or all of the CD GEnes.. -Carol NOTE: i am gluten free now; but not because i tested positive on any 'Celiac tests.. i have no money to do those tests ! for ME it was a no brainer and no 'problem' to stop eating it.. but some day i will do those tests so i will actually KNOW 1 way or another if i have ANY of those genes ] and btw ;i am thinking to go Caseine free soon because going gluten free has not changed anything NOticable for me at all! but again; if i have leaky gut damage (why wouldn't I ? then i must stop the Caseine and ALL other of MY food-sensitivies (if only i knew what they all were > > > > > > > > > > Hi Everyone, > > > > > I have lots of questions this week; again thanks for all who answered > > > > > coq10 question. > > > > > > > > > > Does anyone have motility issues. > > > > > > > > It feels like food sits in my esophagus. When I swallow or drink; even > > > > if it's 10 hours after I have eaten, it gets worse. > > > > > > > > I have had so many tests done. The worst part is > > > > > that somehow - when the food is in a certain position - my heart gets > > > > > fast and it is very scary. I cannot take beta blockers. It makes it > > > > > worse. The cardiologist says that this is systemic; that is it not a > > > > > cardiac issue, that something systemic is wreaking havoc on my heart. > > > > > I initially lost 20 pounds in a month last January and was admitted > > > > into > > > > > hospital. I am so frightened. I know hashis effects everything, but > > > > > could it be part of this whole motility problem. > > > > > > > > > > I see three different doctors this week. Every time I leave a doctor I > > > > > feel so defeated and depressed. They do believe and know something is > > > > > wrong but can't figure it out. I don't know how much more of this I can > > > > > take. > > > > > > > > > > If anyone has experience with motility issues and/or has knowledge > > > > about > > > > > whether this can be thyroid related, I would love to hear from you. > > > > > > > > > > Best to all, > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 Do endoscopy biopsies rule in or out celiac? Is that endoscopy an adequate diagnostic test to diagnose celiac? thanks. it sounds like we are on the same page actually: if you don't test as having the GEnes for Celiac disease /4 of them as listed on UCSD site/ you can't have "Celiac Disease" the autoimmune disease. --tho your verbiage below gives more leeway than the UCSD site seems to re: which Genes truly mean CD as you know, there are other things that can cause the gut to become unhealthy and react to Caseine or Glutens = including permeable = Leaky Gut. Leaky gut can be caused by NSAIDS or antibiotics OR "gluten Sensitivity" ...which then kicks off the immune response to those and OTher foods ;unique possibilites for eadch person :0 which is different than the Autoimmune disease CD. in fact UCSD *used to have link to verbiage on gluten Sensitivity and its differences from CD .. but since they redesigned their website a few years ago;;AFAIK their only reference now to gluten sensitivity is on the link to their TV presentation.. seems to me they are now avoiding the topic alltogether :^\ anyway: people can have Leaky Gut damage =which can be healed!! then they can tolerate most foods which /while sick/ made them Sensitized. =NOTE: most of us hashis have NEver had any (let alone all 4+) CD Genes tested to see if we have 1 or some of those genes! therefore i leave room for the possibility that many of us merely have 'leaky gut damage" which is causing "temporary" sensitivity to Dairy/cassein and/or Gluten foods. temporary but only if we resolve our underlying problems And heal our leaky gut now and keep it healthy in the future (beware of antibiotics and junk foods and NSAIDS and etc) and basically i no longer take everything doctors write as gospel :^/ simply put ;they have not tested most of the Hashis population ; i would venture to say far less than 1% ; to see if the majority of us have 1 or all of the CD GEnes.. -Carol NOTE: i am gluten free now; but not because i tested positive on any 'Celiac tests.. i have no money to do those tests ! for ME it was a no brainer and no 'problem' to stop eating it.. but some day i will do those tests so i will actually KNOW 1 way or another if i have ANY of those genes ] and btw ;i am thinking to go Caseine free soon because going gluten free has not changed anything NOticable for me at all! but again; if i have leaky gut damage (why wouldn't I ? then i must stop the Caseine and ALL other of MY food-sensitivies (if only i knew what they all were > > > > > > > > > > Hi Everyone, > > > > > I have lots of questions this week; again thanks for all who answered > > > > > coq10 question. > > > > > > > > > > Does anyone have motility issues. > > > > > > > > It feels like food sits in my esophagus. When I swallow or drink; even > > > > if it's 10 hours after I have eaten, it gets worse. > > > > > > > > I have had so many tests done. The worst part is > > > > > that somehow - when the food is in a certain position - my heart gets > > > > > fast and it is very scary. I cannot take beta blockers. It makes it > > > > > worse. The cardiologist says that this is systemic; that is it not a > > > > > cardiac issue, that something systemic is wreaking havoc on my heart. > > > > > I initially lost 20 pounds in a month last January and was admitted > > > > into > > > > > hospital. I am so frightened. I know hashis effects everything, but > > > > > could it be part of this whole motility problem. > > > > > > > > > > I see three different doctors this week. Every time I leave a doctor I > > > > > feel so defeated and depressed. They do believe and know something is > > > > > wrong but can't figure it out. I don't know how much more of this I can > > > > > take. > > > > > > > > > > If anyone has experience with motility issues and/or has knowledge > > > > about > > > > > whether this can be thyroid related, I would love to hear from you. > > > > > > > > > > Best to all, > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2010 Report Share Posted December 2, 2010 NO it is not.The best test is a gene test / enterolabs offer them and they are a reliable company. The celiac test alone costs 100$.When they do a biopsy it can happen that they only take samples from "healthy" gut lining and then the diagnosis would befalls, if you have celiac. And you have to go under / with the gene test, you just send in a stool test / much easier. To: Thyroiditis From: cathylk@...Date: Wed, 1 Dec 2010 20:28:10 -0500Subject: Re: Re: Motility Do endoscopy biopsies rule in or out celiac? Is that endoscopy an adequate diagnostic test to diagnose celiac? thanks. it sounds like we are on the same page actually: if you don't test as having the GEnes for Celiac disease /4 of them as listed on UCSD site/ you can't have "Celiac Disease" the autoimmune disease. --tho your verbiage below gives more leeway than the UCSD site seems to re: which Genes truly mean CD as you know, there are other things that can cause the gut to become unhealthy and react to Caseine or Glutens = including permeable = Leaky Gut. Leaky gut can be caused by NSAIDS or antibiotics OR "gluten Sensitivity" ...which then kicks off the immune response to those and OTher foods ;unique possibilites for eadch person :0 which is different than the Autoimmune disease CD. in fact UCSD *used to have link to verbiage on gluten Sensitivity and its differences from CD .. but since they redesigned their website a few years ago;;AFAIK their only reference now to gluten sensitivity is on the link to their TV presentation.. seems to me they are now avoiding the topic alltogether :^\ anyway: people can have Leaky Gut damage =which can be healed!! then they can tolerate most foods which /while sick/ made them Sensitized. =NOTE: most of us hashis have NEver had any (let alone all 4+) CD Genes tested to see if we have 1 or some of those genes! therefore i leave room for the possibility that many of us merely have 'leaky gut damage" which is causing "temporary" sensitivity to Dairy/cassein and/or Gluten foods. temporary but only if we resolve our underlying problems And heal our leaky gut now and keep it healthy in the future (beware of antibiotics and junk foods and NSAIDS and etc) and basically i no longer take everything doctors write as gospel :^/ simply put ;they have not tested most of the Hashis population ; i would venture to say far less than 1% ; to see if the majority of us have 1 or all of the CD GEnes.. -Carol NOTE: i am gluten free now; but not because i tested positive on any 'Celiac tests.. i have no money to do those tests ! for ME it was a no brainer and no 'problem' to stop eating it.. but some day i will do those tests so i will actually KNOW 1 way or another if i have ANY of those genes ] and btw ;i am thinking to go Caseine free soon because going gluten free has not changed anything NOticable for me at all! but again; if i have leaky gut damage (why wouldn't I ? then i must stop the Caseine and ALL other of MY food-sensitivies (if only i knew what they all were > > > > > > > > > > Hi Everyone, > > > > > I have lots of questions this week; again thanks for all who answered > > > > > coq10 question. > > > > > > > > > > Does anyone have motility issues. > > > > > > > > It feels like food sits in my esophagus. When I swallow or drink; even > > > > if it's 10 hours after I have eaten, it gets worse. > > > > > > > > I have had so many tests done. The worst part is > > > > > that somehow - when the food is in a certain position - my heart gets > > > > > fast and it is very scary. I cannot take beta blockers. It makes it > > > > > worse. The cardiologist says that this is systemic; that is it not a > > > > > cardiac issue, that something systemic is wreaking havoc on my heart. > > > > > I initially lost 20 pounds in a month last January and was admitted > > > > into > > > > > hospital. I am so frightened. I know hashis effects everything, but > > > > > could it be part of this whole motility problem. > > > > > > > > > > I see three different doctors this week. Every time I leave a doctor I > > > > > feel so defeated and depressed. They do believe and know something is > > > > > wrong but can't figure it out. I don't know how much more of this I can > > > > > take. > > > > > > > > > > If anyone has experience with motility issues and/or has knowledge > > > > about > > > > > whether this can be thyroid related, I would love to hear from you. > > > > > > > > > > Best to all, > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2010 Report Share Posted December 2, 2010 Hi Carol, A difference is that you seem to believe that once leaky gut is fixed a Hashi patient can resume eating problematic foods. I DO NOT think this is possible in the majority of Hashis! Perhaps a rare few but NOT most Hashis. Also, I notice that you wrote that there are FOUR Celiac genes; so, again, please share a link or explain where you get this info, as I have NOT seen that anywhere. All the research I have seen says the TWO HLA-DQ genes associated with Celiac disease are DQ2 and DQ8. I don't think UCSD is avoiding gluten intolerance per say their research focus is strictly on Celiac disease – they are the Medical Research Center for Celiac Disease. Often in other places researches only use the term Celiac are also inferring gluten intolerance. I interpret that UCSD is pretty much doing this as well. Remember that gluten, a wheat protein, and the thyroid gland tissue have very similar molecule structure. Biologists believe that the immune system can easily confuse the two; so I really don't see where a Hashi can stay healthy by reintroducing gluten or ANY gut antigen. To Wellness, ~Bj > > > > > > > > > > > > Hi Everyone, > > > > > > I have lots of questions this week; again thanks for all who answered > > > > > > coq10 question. > > > > > > > > > > > > Does anyone have motility issues. > > > > > > > > > > It feels like food sits in my esophagus. When I swallow or drink; even > > > > > if it's 10 hours after I have eaten, it gets worse. > > > > > > > > > > I have had so many tests done. The worst part is > > > > > > that somehow - when the food is in a certain position - my heart gets > > > > > > fast and it is very scary. I cannot take beta blockers. It makes it > > > > > > worse. The cardiologist says that this is systemic; that is it not a > > > > > > cardiac issue, that something systemic is wreaking havoc on my heart. > > > > > > I initially lost 20 pounds in a month last January and was admitted > > > > > into > > > > > > hospital. I am so frightened. I know hashis effects everything, but > > > > > > could it be part of this whole motility problem. > > > > > > > > > > > > I see three different doctors this week. Every time I leave a doctor I > > > > > > feel so defeated and depressed. They do believe and know something is > > > > > > wrong but can't figure it out. I don't know how much more of this I can > > > > > > take. > > > > > > > > > > > > If anyone has experience with motility issues and/or has knowledge > > > > > about > > > > > > whether this can be thyroid related, I would love to hear from you. > > > > > > > > > > > > Best to all, > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2010 Report Share Posted December 2, 2010 Hi , I agree that there are better ways to test for Celiac than having to go through multiple intestinal biopsies, which may or may not be helpful. Perhaps EnteroLab may be helpful to some. They sure didn't help me back in 2002, I tested as having HLA-DQ4, which is generally negative for Celiac as well as gluten intolerance. After I researched this extensively it just didn't make any sense. My best guess is that my test was mixed up with someone else, because DQ4 mainly are from non-Caucasian race and from Eastern Asia, South Africa plus a few in South America - places that none of my ancestors have ever inhabited. Anyway, after the negative EnteroLab testing, I suffered for four more long years until I found my current doctor who is also a biochemist about four years ago. He took a quick look at old Diagnos-Techs ASI saliva tests and said I had a big gluten problem and possibly dairy. My Total Salivary SlgA was severely depressed. Later my kids and I did the food sensitivity testing from US BioTek Labs and found more food issues. This link explains the different testing methods for Celiac disease. However, the blood and small intestine biopsies will be negative if you have gluten sensitivity / intolerance. The EnteroLabs.com HLA-DQ gene testing should provide gluten sensitivity results. http://consensus.nih.gov/2004/2004CeliacDisease118html.htm You can find info on gluten intolerance at http://www.thefooddoc.comDr. Scot Lewey, is "The Food Doc". I have an article link (not sure if it is still good) called – Understanding the Genetics of Gluten Sensitivity.http://www.ibduk.com/understanding-the-genetics-of-gluten-sensitivity.html I hope this is helpful to you, ~Bj > > > > > > >> > > > > > > Hi Everyone,> > > > > > > I have lots of questions this> week; again thanks for all who answered> > > > > > > coq10 question.> > > > > > >> > > > > > > Does anyone have motility issues.> > > > > >> > > > > > It feels like food sits in my> esophagus. When I swallow or drink; even > > > > > > if it's 10 hours after I have eaten,> it gets worse.> > > > > >> > > > > > I have had so many tests done. The> worst part is> > > > > > > that somehow - when the food is> in a certain position - my heart gets> > > > > > > fast and it is very scary. I> cannot take beta blockers. It makes it> > > > > > > worse. The cardiologist says that> this is systemic; that is it not a> > > > > > > cardiac issue, that something> systemic is wreaking havoc on my heart.> > > > > > > I initially lost 20 pounds in a> month last January and was admitted > > > > > > into> > > > > > > hospital. I am so frightened. I> know hashis effects everything, but> > > > > > > could it be part of this whole> motility problem.> > > > > > >> > > > > > > I see three different doctors> this week. Every time I leave a doctor I> > > > > > > feel so defeated and depressed.> They do believe and know something is> > > > > > > wrong but can't figure it out. I> don't know how much more of this I can> > > > > > > take.> > > > > > >> > > > > > > If anyone has experience with> motility issues and/or has knowledge > > > > > > about> > > > > > > whether this can be thyroid> related, I would love to hear from you.> > > > > > >> > > > > > > Best to all,> > > > > > >> > > > > > > > > > > > > >> > > > > >> > > > > >> > > > >> > > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2010 Report Share Posted December 2, 2010 Thanks Bj. it's been awhile. Hope you are feeling healthy and have a nice holiday. I will definitely check out links. Just as an FYI, when I got sick last January with stomach/heart I had been gluten free for about a year. When I ended up in the hospital my labs were slightly HYPER. For me, they were severely hyper. It was the first time I was hyper since being diagnosed about 8 years ago with Hashis. I could not sleep, my heart was racing, etc. I lost 20 pounds. I started eating gluten and it put me right to sleep, I gained all weight back and to a degree my heart slowed. However, I am very sick right now and we trying so hard to figure all this out. I intentionally ate the gluten to slow myself down. I can barely move now. I know that gluten has a REAL effect on me. When I get healthy again, I will go off it 100 percent. When I first went gluten free my TSH after one month went from 5 to 1.8 and I felt great; this was with zero medication. anyway all my best to you and all those out there who have been so helpful to me. I really appreciate all the support. Hi , I agree that there are better ways to test for Celiac than having to go through multiple intestinal biopsies, which may or may not be helpful. Perhaps EnteroLab may be helpful to some. They sure didn't help me back in 2002, I tested as having HLA-DQ4, which is generally negative for Celiac as well as gluten intolerance. After I researched this extensively it just didn't make any sense. My best guess is that my test was mixed up with someone else, because DQ4 mainly are from non-Caucasian race and from Eastern Asia, South Africa plus a few in South America - places that none of my ancestors have ever inhabited. Anyway, after the negative EnteroLab testing, I suffered for four more long years until I found my current doctor who is also a biochemist about four years ago. He took a quick look at old Diagnos-Techs ASI saliva tests and said I had a big gluten problem and possibly dairy. My Total Salivary SlgA was severely depressed. Later my kids and I did the food sensitivity testing from US BioTek Labs and found more food issues. This link explains the different testing methods for Celiac disease. However, the blood and small intestine biopsies will be negative if you have gluten sensitivity / intolerance. The EnteroLabs.com HLA-DQ gene testing should provide gluten sensitivity results. http://consensus.nih.gov/2004/2004CeliacDisease118html.htm You can find info on gluten intolerance at http://www.thefooddoc.com Dr. Scot Lewey, is "The Food Doc". I have an article link (not sure if it is still good) called – Understanding the Genetics of Gluten Sensitivity. http://www.ibduk.com/understanding-the-genetics-of-gluten-sensitivity.html I hope this is helpful to you, ~Bj > > > > > > > > > > > > > > Hi Everyone, > > > > > > > I have lots of questions this > week; again thanks for all who answered > > > > > > > coq10 question. > > > > > > > > > > > > > > Does anyone have motility issues. > > > > > > > > > > > > It feels like food sits in my > esophagus. When I swallow or drink; even > > > > > > if it's 10 hours after I have eaten, > it gets worse. > > > > > > > > > > > > I have had so many tests done. The > worst part is > > > > > > > that somehow - when the food is > in a certain position - my heart gets > > > > > > > fast and it is very scary. I > cannot take beta blockers. It makes it > > > > > > > worse. The cardiologist says that > this is systemic; that is it not a > > > > > > > cardiac issue, that something > systemic is wreaking havoc on my heart. > > > > > > > I initially lost 20 pounds in a > month last January and was admitted > > > > > > into > > > > > > > hospital. I am so frightened. I > know hashis effects everything, but > > > > > > > could it be part of this whole > motility problem. > > > > > > > > > > > > > > I see three different doctors > this week. Every time I leave a doctor I > > > > > > > feel so defeated and depressed. > They do believe and know something is > > > > > > > wrong but can't figure it out. I > don't know how much more of this I can > > > > > > > take. > > > > > > > > > > > > > > If anyone has experience with > motility issues and/or has knowledge > > > > > > about > > > > > > > whether this can be thyroid > related, I would love to hear from you. > > > > > > > > > > > > > > Best to all, > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2010 Report Share Posted December 2, 2010 Thanks Bj. it's been awhile. Hope you are feeling healthy and have a nice holiday. I will definitely check out links. Just as an FYI, when I got sick last January with stomach/heart I had been gluten free for about a year. When I ended up in the hospital my labs were slightly HYPER. For me, they were severely hyper. It was the first time I was hyper since being diagnosed about 8 years ago with Hashis. I could not sleep, my heart was racing, etc. I lost 20 pounds. I started eating gluten and it put me right to sleep, I gained all weight back and to a degree my heart slowed. However, I am very sick right now and we trying so hard to figure all this out. I intentionally ate the gluten to slow myself down. I can barely move now. I know that gluten has a REAL effect on me. When I get healthy again, I will go off it 100 percent. When I first went gluten free my TSH after one month went from 5 to 1.8 and I felt great; this was with zero medication. anyway all my best to you and all those out there who have been so helpful to me. I really appreciate all the support. Hi , I agree that there are better ways to test for Celiac than having to go through multiple intestinal biopsies, which may or may not be helpful. Perhaps EnteroLab may be helpful to some. They sure didn't help me back in 2002, I tested as having HLA-DQ4, which is generally negative for Celiac as well as gluten intolerance. After I researched this extensively it just didn't make any sense. My best guess is that my test was mixed up with someone else, because DQ4 mainly are from non-Caucasian race and from Eastern Asia, South Africa plus a few in South America - places that none of my ancestors have ever inhabited. Anyway, after the negative EnteroLab testing, I suffered for four more long years until I found my current doctor who is also a biochemist about four years ago. He took a quick look at old Diagnos-Techs ASI saliva tests and said I had a big gluten problem and possibly dairy. My Total Salivary SlgA was severely depressed. Later my kids and I did the food sensitivity testing from US BioTek Labs and found more food issues. This link explains the different testing methods for Celiac disease. However, the blood and small intestine biopsies will be negative if you have gluten sensitivity / intolerance. The EnteroLabs.com HLA-DQ gene testing should provide gluten sensitivity results. http://consensus.nih.gov/2004/2004CeliacDisease118html.htm You can find info on gluten intolerance at http://www.thefooddoc.com Dr. Scot Lewey, is "The Food Doc". I have an article link (not sure if it is still good) called – Understanding the Genetics of Gluten Sensitivity. http://www.ibduk.com/understanding-the-genetics-of-gluten-sensitivity.html I hope this is helpful to you, ~Bj > > > > > > > > > > > > > > Hi Everyone, > > > > > > > I have lots of questions this > week; again thanks for all who answered > > > > > > > coq10 question. > > > > > > > > > > > > > > Does anyone have motility issues. > > > > > > > > > > > > It feels like food sits in my > esophagus. When I swallow or drink; even > > > > > > if it's 10 hours after I have eaten, > it gets worse. > > > > > > > > > > > > I have had so many tests done. The > worst part is > > > > > > > that somehow - when the food is > in a certain position - my heart gets > > > > > > > fast and it is very scary. I > cannot take beta blockers. It makes it > > > > > > > worse. The cardiologist says that > this is systemic; that is it not a > > > > > > > cardiac issue, that something > systemic is wreaking havoc on my heart. > > > > > > > I initially lost 20 pounds in a > month last January and was admitted > > > > > > into > > > > > > > hospital. I am so frightened. I > know hashis effects everything, but > > > > > > > could it be part of this whole > motility problem. > > > > > > > > > > > > > > I see three different doctors > this week. Every time I leave a doctor I > > > > > > > feel so defeated and depressed. > They do believe and know something is > > > > > > > wrong but can't figure it out. I > don't know how much more of this I can > > > > > > > take. > > > > > > > > > > > > > > If anyone has experience with > motility issues and/or has knowledge > > > > > > about > > > > > > > whether this can be thyroid > related, I would love to hear from you. > > > > > > > > > > > > > > Best to all, > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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