Walk across America for Chiari

[Guest guest]

Hello All,

Hope everyone is doing as well as you can be. Seems like 2010 isn't giving

much of a break, at least not where I'm concerned. But, guess that's what

this thing is all about.

My health issues have not been very cooperative as far as my being able to

do fundraisers, but I've never been one to " lay down " , so I'm determined

that I'm going to do as much as possible.

I am planning to organize a Walk for Chiari to coincide with the one Chiari

People of PA is having. The way I see it, the more people that can organize

a walk in different states, and have them at the same time, the more likely

we are to be able to get media attention. I realize that there are a lot of

people that are just unable to do such a thing, so that's one thing I want

to do different with our walk --- I want to include those that can't walk,

and welcome them to bring their chairs and join in on the walk. Fact is, I

am probably going to have to use mine as well, but I am just not willing to

let it stop me.

I will use my walker as much as I can, but I know there's no way I'll make

it around a 2 or so mile trail / path / whatever. So, I'll complete the

walk, rolling if I have to.

We have filed for a proclamation for Sept. to be declared Chiari / SM month

in the state of IN. We have requested to have the governor, or someone of

equal " clout " to make the presentation on behalf of all Chiarians and

SMer's. We haven't received a response as of yet, but I don't see any reason

why it won't go through.

We'll also have several other " rest points " with interesting information

from other professionals as well --- at least, that's my plans.

So, I'm asking that anyone that would be interested in coming, contact me

personally so I'll know if there is enough interest to continue. It doesn't

make any difference where you are, I would love to meet you --- I want to

make an impression on IN for one.

I, along with way too many others, am getting sick and tired of waiting,

hoping someone will come through with treatment, a cure, something ---- I

know I need relief, and the sooner, the better. It's not going to happen

until we start making a lot of noise --- drawing attention to ourselves and

these conditions that have taken over our lives.

So, please ---- join in one this walk, or any other walk and " make noise " .

Please, don't let this Chiari / SM win.

Wishing You Rainbows,

Grammy / Sharon Greenwell

Please visit our website at:

www.wishesandrainbows.org