Guest guest Posted August 11, 2009 Report Share Posted August 11, 2009 Maddy is still having the headaches,seizures,sleeping alot at times,not eating or drinking much. We have only been doing motrin 3 doses per week. I gave her a dose yesterday and she said it didnt help her. She lies down all the time,or walks around with her head cocked to the side or will rest her head on whatever. We were supposed to see the local nsg today as well as pediatrician. Nsg cancelled the receptionist for her said she has too many surgical cases and is too busy to see her and will see her next week. We saw the pediatrician and he didnt do anything except make sure she sees local nsg next week and to keep encouraging her to eat and drink. The MRI is on friday,so we are anxious to see what is going on. I left a message with the NP for Dr. Gupta @ UCSF,but then I was told he is gone for 2 weeks. I just want one of these docs to step up and help Maddy. Im waiting to hear back from local neurologist regarding the video eeg,but it wont be for a few weeks,but what about in the meantime. please keep Maddy in your prayers. Quote Link to comment Share on other sites More sharing options...
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