Guest guest Posted July 30, 2011 Report Share Posted July 30, 2011 Not sure what the problems are so maybe I'm am missing why it is important to know who is an Active member. Sometimes life intercedes and I might be active now, but then will be quite for a while until I can become active again. I was also thinking that maybe we need to get all ACTIVE members to post at least once who they are and let us moderators get an idea of who is really posting most of the time. I was looking at the member list one day because of some of the problems we've had and haven't heard from some in a very long time, and some are bouncing. Mods, Is there anything we can do or should we do anything? , Co-Moderator -- Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2011 Report Share Posted July 30, 2011 I agree with your definition of active member. Just wondering what the value of the list would be. I think an active member should post once in a while. Some on the member lists haven't posted in years. I get quiet now and then too even though I do read posts. I have gone as much as two weeks without saying anything. A while back, I went a couple months without saying anything. I'm more involved now and plan to stay that way. I get good information and have great people to talk to about whatever. , Co-Moderator To: asthma Sent: Saturday, July 30, 2011 4:42 PMSubject: Re: Thoughts Not sure what the problems are so maybe I'm am missing why it is important to know who is an Active member. Sometimes life intercedes and I might be active now, but then will be quite for a while until I can become active again. I was also thinking that maybe we need to get all ACTIVE members to post at least once who they are and let us moderators get an idea of who is really posting most of the time. I was looking at the member list one day because of some of the problems we've had and haven't heard from some in a very long time, and some are bouncing. Mods, Is there anything we can do or should we do anything? , Co-Moderator -- Take care, -- Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2011 Report Share Posted July 30, 2011 Hi ,I don't know how 'active' I've been, but I'll jump in and re-introduce myself as some thing s have changed with my situation lately. I had 2 asthma attacks as a kid, but really no problems until 1991 when I was exposed to ethylene glycol. I was 34 at the time. Since then, I've been treated for asthma with almost everything available. I was eventually told I had mod/severe asthma. Last June I went to National Jewish and after a week of testing was told that I have very mild asthma, if I even have that. I was diagnosed with Tracheal and Bronchial Malacia as well as Pulmonary Hypertension. I've been removed from all my asthma meds, including Xolair and only have itchy eyes due to allergies to show for the change. I am hoping that my treatment for the other conditions will start soon and that my energy and shortness of breath issues will both improve. In the mean time, I am enjoying what isleft of our all-to-brief Alaskan summer. Fall will be here in another month or so, and winter not long after. I'll probably hang around as there are a lot of good folks here. Mike McBrideLive without pretending, love without depending, listen without defending and speak without offending. Anon.To: "asthma " <asthma >Sent: Saturday, July 30, 2011 6:50 AMSubject: Thoughts I was also thinking that maybe we need to get all ACTIVE members to post at least once who they are and let us moderators get an idea of who is really posting most of the time. I was looking at the member list one day because of some of the problems we've had and haven't heard from some in a very long time, and some are bouncing. Mods, Is there anything we can do or should we do anything?, Co-Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2011 Report Share Posted July 30, 2011 Hi ,I don't know how 'active' I've been, but I'll jump in and re-introduce myself as some thing s have changed with my situation lately. I had 2 asthma attacks as a kid, but really no problems until 1991 when I was exposed to ethylene glycol. I was 34 at the time. Since then, I've been treated for asthma with almost everything available. I was eventually told I had mod/severe asthma. Last June I went to National Jewish and after a week of testing was told that I have very mild asthma, if I even have that. I was diagnosed with Tracheal and Bronchial Malacia as well as Pulmonary Hypertension. I've been removed from all my asthma meds, including Xolair and only have itchy eyes due to allergies to show for the change. I am hoping that my treatment for the other conditions will start soon and that my energy and shortness of breath issues will both improve. In the mean time, I am enjoying what isleft of our all-to-brief Alaskan summer. Fall will be here in another month or so, and winter not long after. I'll probably hang around as there are a lot of good folks here. Mike McBrideLive without pretending, love without depending, listen without defending and speak without offending. Anon.To: "asthma " <asthma >Sent: Saturday, July 30, 2011 6:50 AMSubject: Thoughts I was also thinking that maybe we need to get all ACTIVE members to post at least once who they are and let us moderators get an idea of who is really posting most of the time. I was looking at the member list one day because of some of the problems we've had and haven't heard from some in a very long time, and some are bouncing. Mods, Is there anything we can do or should we do anything?, Co-Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2011 Report Share Posted July 30, 2011 Hey Mike. I'm glad National Jewish was able to help you. I have a friend who lives here in my town who's from Palmer, Alaska. One of these days, I'd love to visit Alaska. I've now seen several mentions of pulmonary hypertension, so I have to look that up. I don't know exactly what it is., Co-ModeratorTo: "asthma " <asthma >Sent: Saturday, July 30, 2011 8:10 PMSubject: Re: Thoughts Hi ,I don't know how 'active' I've been, but I'll jump in and re-introduce myself as some thing s have changed with my situation lately. I had 2 asthma attacks as a kid, but really no problems until 1991 when I was exposed to ethylene glycol. I was 34 at the time. Since then, I've been treated for asthma with almost everything available. I was eventually told I had mod/severe asthma. Last June I went to National Jewish and after a week of testing was told that I have very mild asthma, if I even have that. I was diagnosed with Tracheal and Bronchial Malacia as well as Pulmonary Hypertension. I've been removed from all my asthma meds, including Xolair and only have itchy eyes due to allergies to show for the change. I am hoping that my treatment for the other conditions will start soon and that my energy and shortness of breath issues will both improve. In the mean time, I am enjoying what isleft of our all-to-brief Alaskan summer. Fall will be here in another month or so, and winter not long after. I'll probably hang around as there are a lot of good folks here. Mike McBrideLive without pretending, love without depending, listen without defending and speak without offending. Anon.To: "asthma " <asthma >Sent: Saturday, July 30, 2011 6:50 AMSubject: Thoughts I was also thinking that maybe we need to get all ACTIVE members to post at least once who they are and let us moderators get an idea of who is really posting most of the time. I was looking at the member list one day because of some of the problems we've had and haven't heard from some in a very long time, and some are bouncing. Mods, Is there anything we can do or should we do anything?, Co-Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2011 Report Share Posted July 30, 2011 I am one of the ones who doesn't post much. For this I apologize. I will contribute more in the future.For those who wonder who the heck I am, I am retired due to cough variant asthma. I developed adult onset asthma following a respiratory infection. I live in the St.Louis area and most of my problems are due to irritants rather than allergies. I am 63 and have had asthma for about 5 years. Sorry for not participating.Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2011 Report Share Posted July 31, 2011 Those of you that post whenever you can, don't worry about my post about "active" members. I was considering some in the list who haven't posted at all in a loooong time, like more than a year or longer. , Co-Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2011 Report Share Posted July 31, 2011 I do believe that, I think that is what happens to me also. It is amazing how all of the body systems work together, all along with one another, unfortunately sometimes. LOLTo: asthma Sent: Sunday, July 31, 2011 3:03 PMSubject: Re: Thoughts I have found out that if I eat something that disagrees with me, my asthma gets worse. One of the things I do to keep my Asthma under control is watch what I eat very carefully. I have suddenly developed food allergies alsoLou. Subject: Re: ThoughtsTo: "asthma " <asthma >Date: Sunday, July 31, 2011, 9:56 AM Oh, I understand. There are so many little other maladies that come with asthma. One at a time is a real pain, but when they all gang up on us at one time, it really is miserable. It seems like we never get a day off, always dealing with one or the other. To: asthma Sent: Saturday, July 30, 2011 11:31 PMSubject: Re: Thoughts I don't post too often but I read all of the emails and feel like I "know" a lot of you. I guess I have "severe steroid-dependent asthma" along with a whole boat load of other conditions. In the past 13 years the lowest my prednisone dose has been is 30. My average dose is 40 mg a day. I have tried most asthma meds. I was on Xolair for about 9 months before having insurance issues. I did not see any benefits but heard it frequently takes up to a year. My pulmonologist REALLY wants me to try again but we keep hitting walls in that quest. We have discussed many other options as well but feel with all my other health stuff there is too much risk. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2011 Report Share Posted July 31, 2011 I totally agree with both of you. As of this past year I've had the worst acid reflux and burning in my mouth and throat and then the worst kind of burning all the way down my esophagus and I'm on 40mg. of Nexium. Yes, the gerd/acid reflux, asthma and IBS are all tied in together somehow - ugh ---SharonFrom:"willothewispl@..." Subject:Re: ThoughtsDate:July 31, 2011 4:18:08 PM EDTTo:"asthma " <asthma >I do believe that, I think that is what happens to me also. It is amazing how all of the body systems work together, all along with one another, unfortunately sometimes. LOLTo: asthma Sent: Sunday, July 31, 2011 3:03 PMSubject: Re: Thoughts I have found out that if I eat something that disagrees with me, my asthma gets worse. One of the things I do to keep my Asthma under control is watch what I eat very carefully. I have suddenly developed food allergies alsoLou. Subject: Re: ThoughtsTo: "asthma " <asthma >Date: Sunday, July 31, 2011, 9:56 AM Oh, I understand. There are so many little other maladies that come with asthma. One at a time is a real pain, but when they all gang up on us at one time, it really is miserable. It seems like we never get a day off, always dealing with one or the other.To: asthma Sent: Saturday, July 30, 2011 11:31 PMSubject: Re: Thoughts I don't post too often but I read all of the emails and feel like I "know" a lot of you. I guess I have "severe steroid-dependent asthma" along with a whole boat load of other conditions. In the past 13 years the lowest my prednisonedose has been is 30. My average dose is 40 mg a day. I have tried most asthma meds. I was on Xolair for about 9 months before having insurance issues. I did not see any benefits but heard it frequently takes up to a year. My pulmonologist REALLY wants me to try again but we keep hitting walls in that quest. We have discussed many other options as well but feel with all my other health stuff there is too much risk. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2011 Report Share Posted July 31, 2011 Yep, I get all that, and then it goes up to my sinuses, and then I get all stuffed up and cannot breathe, and then with my gerd acting up, I end up throwing up. I have always thought that this was weird for me, I guess not so weird after all.To: asthma ; "asthma " <asthma >Sent: Sunday, July 31, 2011 4:21 PMSubject: Re: Thoughts I totally agree with both of you. As of this past year I've had the worst acid reflux and burning in my mouth and throat and then the worst kind of burning all the way down my esophagus and I'm on 40mg. of Nexium. Yes, the gerd/acid reflux, asthma and IBS are all tied in together somehow - ugh ---SharonFrom:"willothewispl@..." Subject:Re: ThoughtsDate:July 31, 2011 4:18:08 PM EDTTo:"asthma " <asthma >I do believe that, I think that is what happens to me also. It is amazing how all of the body systems work together, all along with one another, unfortunately sometimes. LOLTo: asthma Sent: Sunday, July 31, 2011 3:03 PMSubject: Re: Thoughts I have found out that if I eat something that disagrees with me, my asthma gets worse. One of the things I do to keep my Asthma under control is watch what I eat very carefully. I have suddenly developed food allergies alsoLou. Subject: Re: ThoughtsTo: "asthma " <asthma >Date: Sunday, July 31, 2011, 9:56 AM Oh, I understand. There are so many little other maladies that come with asthma. One at a time is a real pain, but when they all gang up on us at one time, it really is miserable. It seems like we never get a day off, always dealing with one or the other.To: asthma Sent: Saturday, July 30, 2011 11:31 PMSubject: Re: Thoughts I don't post too often but I read all of the emails and feel like I "know" a lot of you. I guess I have "severe steroid-dependent asthma" along with a whole boat load of other conditions. In the past 13 years the lowest my prednisonedose has been is 30. My average dose is 40 mg a day. I have tried most asthma meds. I was on Xolair for about 9 months before having insurance issues. I did not see any benefits but heard it frequently takes up to a year. My pulmonologist REALLY wants me to try again but we keep hitting walls in that quest. We have discussed many other options as well but feel with all my other health stuff there is too much risk. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2011 Report Share Posted July 31, 2011 A question.. how you know you are developing a food allergy? I mean, before going to the doctors what are the signs you have to look up?? Ishia Yep, I get all that, and then it goes up to my sinuses, and then I get all stuffed up and cannot breathe, and then with my gerd acting up, I end up throwing up. I have always thought that this was weird for me, I guess not so weird after all. To: asthma ; " asthma " <asthma > Sent: Sunday, July 31, 2011 4:21 PMSubject: Re: Thoughts I totally agree with both of you. As of this past year I've had the worst acid reflux and burning in my mouth and throat and then the worst kind of burning all the way down my esophagus and I'm on 40mg. of Nexium. Yes, the gerd/acid reflux, asthma and IBS are all tied in together somehow - ugh --- Sharon Subject: Re: ThoughtsDate: July 31, 2011 4:18:08 PM EDT To: " asthma " <asthma > I do believe that, I think that is what happens to me also. It is amazing how all of the body systems work together, all along with one another, unfortunately sometimes. LOL From: Violet Eudy To: asthma Sent: Sunday, July 31, 2011 3:03 PM Subject: Re: Thoughts I have found out that if I eat something that disagrees with me, my asthma gets worse. One of the things I do to keep my Asthma under control is watch what I eat very carefully. I have suddenly developed food allergies also Lou. --- On Sun, 7/31/11, willothewispl@... wrote: Subject: Re: ThoughtsTo: " asthma " <asthma > Date: Sunday, July 31, 2011, 9:56 AM Oh, I understand. There are so many little other maladies that come with asthma. One at a time is a real pain, but when they all gang up on us at one time, it really is miserable. It seems like we never get a day off, always dealing with one or the other. From: To: asthma Sent: Saturday, July 30, 2011 11:31 PM Subject: Re: Thoughts I don't post too often but I read all of the emails and feel like I " know " a lot of you. I guess I have " severe steroid-dependent asthma " along with a whole boat load of other conditions. In the past 13 years the lowest my prednisonedose has been is 30. My average dose is 40 mg a day. I have tried most asthma meds. I was on Xolair for about 9 months before having insurance issues. I did not see any benefits but heard it frequently takes up to a year. My pulmonologist REALLY wants me to try again but we keep hitting walls in that quest. We have discussed many other options as well but feel with all my other health stuff there is too much risk. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2011 Report Share Posted July 31, 2011 I'm wondering about something; someone else from another group has been having the same problems that you're having and her doctor seems to think that she may have a hiatal (sp) hernia and she's being tested for that. Maybe you should ask your doctor if my some chance you might have one.Something strange has been going on with me for months on end. I get the burning in my mouth and on top of that the back of my tongue is what feels like it's burning ... not the front part of my tongue. I said to myself that the acid is hitting my tongue in the back???? Wish I had an answer. My tongue is not discolored BUT it always has the thickest white stuff on it. From:"willothewispl@..." Subject:Re: ThoughtsDate:July 31, 2011 4:31:05 PM EDTTo:"asthma " <asthma >Yep, I get all that, and then it goes up to my sinuses, and then I get all stuffed up and cannot breathe, and then with my gerd acting up, I end up throwing up. I have always thought that this was weird for me, I guess not so weird after all.To: asthma ; "asthma " <asthma >Sent: Sunday, July 31, 2011 4:21 PMSubject: Re: Thoughts I totally agree with both of you. As of this past year I've had the worst acid reflux and burning in my mouth and throat and then the worst kind of burning all the way down my esophagus and I'm on 40mg. of Nexium. Yes, the gerd/acid reflux, asthma and IBS are all tied in together somehow - ugh ---SharonFrom:"willothewispl@..." Subject:Re: ThoughtsDate:July 31, 2011 4:18:08 PM EDTTo:"asthma " <asthma >I do believe that, I think that is what happens to me also. It is amazing how all of the body systems work together, all along with one another, unfortunately sometimes. LOLTo: asthma@yah oogroups.comSent: Sunday, July 31, 2011 3:03 PMSubject: Re: Thoughts I have found out that if I eat something that disagrees with me, my asthma gets worse. One of the things I do to keep my Asthma under control is watch what I eat very carefully. I have suddenly developed food allergies alsoLou. Subject: Re: ThoughtsTo: "asthma " <asthma >Date: Sunday, July 31, 2011, 9:56 AM Oh, I understand. There are so many little other maladies that come with asthma. One at a time is a real pain, but when they all gang up on us at one time, it really is miserable. It seems like we never get a day off, always dealing with one or the other.To: asthma Sent: Saturday, July 30, 2011 11:31 PMSubject: Re: Thoughts I don't post too often but I read all of the emails and feel like I "know" a lot of you. I guess I have "severe steroid-dependent asthma" along with a whole boat load of other conditions. In the past 13 years the lowest my prednisonedose has been is 30. My average dose is 40 mg a day. I have tried most asthma meds. I was on Xolair for about 9 months before having insurance issues. I did not see any benefits but heard it frequently takes up to a year. My pulmonologist REALLY wants me to try again but we keep hitting walls in that quest. We have discussed many other options as well but feel with all my other health stuff there is too much risk.< /div> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2011 Report Share Posted July 31, 2011 I also forgot to mention - I use Nasacort AQ once a day and that keeps my nose open for the entire day. Nasacort is a prescription.SharonFrom:"willothewispl@..." Subject:Re: ThoughtsDate:July 31, 2011 4:31:05 PM EDTTo:"asthma " <asthma >Yep, I get all that, and then it goes up to my sinuses, and then I get all stuffed up and cannot breathe, and then with my gerd acting up, I end up throwing up. I have always thought that this was weird for me, I guess not so weird after all.To: asthma ; "asthma " <asthma >Sent: Sunday, July 31, 2011 4:21 PMSubject: Re: Thoughts I totally agree with both of you. As of this past year I've had the worst acid reflux and burning in my mouth and throat and then the worst kind of burning all the way down my esophagus and I'm on 40mg. of Nexium. Yes, the gerd/acid reflux, asthma and IBS are all tied in together somehow - ugh ---SharonFrom:"willothewispl@..." Subject:Re: ThoughtsDate:July 31, 2011 4:18:08 PM EDTTo:"asthma " <asthma >I do believe that, I think that is what happens to me also. It is amazing how all of the body systems work together, all along with one another, unfortunately sometimes. LOLTo: asthma@yah oogroups.comSent: Sunday, July 31, 2011 3:03 PMSubject: Re: Thoughts I have found out that if I eat something that disagrees with me, my asthma gets worse. One of the things I do to keep my Asthma under control is watch what I eat very carefully. I have suddenly developed food allergies alsoLou. Subject: Re: ThoughtsTo: "asthma " <asthma >Date: Sunday, July 31, 2011, 9:56 AM Oh, I understand. There are so many little other maladies that come with asthma. One at a time is a real pain, but when they all gang up on us at one time, it really is miserable. It seems like we never get a day off, always dealing with one or the other.To: asthma Sent: Saturday, July 30, 2011 11:31 PMSubject: Re: Thoughts I don't post too often but I read all of the emails and feel like I "know" a lot of you. I guess I have "severe steroid-dependent asthma" along with a whole boat load of other conditions. In the past 13 years the lowest my prednisonedose has been is 30. My average dose is 40 mg a day. I have tried most asthma meds. I was on Xolair for about 9 months before having insurance issues. I did not see any benefits but heard it frequently takes up to a year. My pulmonologist REALLY wants me to try again but we keep hitting walls in that quest. We have discussed many other options as well but feel with all my other health stuff there is too much risk.< /div> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2011 Report Share Posted July 31, 2011 Ishia, it's by trial and error. Buy a notebook and date each page and keep a food diary so that when your symptoms occur you can look back to see what you ate and possibly eliminate it for a few days or weeks and see what happens ....SharonFrom:"Ishia Alma Ruiz" Subject:Re: ThoughtsDate:July 31, 2011 5:11:19 PM EDTTo:asthma A question.. how you know you are developing a food allergy? I mean, before going to the doctors what are the signs you have to look up??Ishia Yep, I get all that, and then it goes up to my sinuses, and then I get all stuffed up and cannot breathe, and then with my gerd acting up, I end up throwing up. I have always thought that this was weird for me, I guess not so weird after all.To: asthma ; "asthma " <asthma >Sent: Sunday, July 31, 2011 4:21 PMSubject: Re: Thoughts I totally agree with both of you. As of this past year I've had the worst acid reflux and burning in my mouth and throat and then the worst kind of burning all the way down my esophagus and I'm on 40mg. of Nexium. Yes, the gerd/acid reflux, asthma and IBS are all tied in together somehow - ugh ---SharonFrom:"willothewispl@..." Subject:Re: ThoughtsDate:July 31, 2011 4:18:08 PM EDTTo:"asthma " <asthma >I do believe that, I think that is what happens to me also. It is amazing how all of the body systems work together, all along with one another, unfortunately sometimes. LOLTo: asthma Sent: Sunday, July 31, 2011 3:03 PMSubject: Re: Thoughts I have found out that if I eat something that disagrees with me, my asthma gets worse. One of the things I do to keep my Asthma under control is watch what I eat very carefully. I have suddenly developed food allergies alsoLou. Subject: Re: ThoughtsTo: "asthma " <asthma >Date: Sunday, July 31, 2011, 9:56 AM Oh, I understand. There are so many little other maladies that come with asthma. One at a time is a real pain, but when they all gang up on us at one time, it really is miserable. It seems like we never get a day off, always dealing with one or the other.To: asthma Sent: Saturday, July 30, 2011 11:31 PMSubject: Re: Thoughts I don't post too often but I read all of the emails and feel like I "know" a lot of you. I guess I have "severe steroid-dependent asthma" along with a whole boat load of other conditions. In the past 13 years the lowest my prednisonedose has been is 30. My average dose is 40 mg a day. I have tried most asthma meds. I was on Xolair for about 9 months before having insurance issues. I did not see any benefits but heard it frequently takes up to a year. My pulmonologist REALLY wants me to try again but we keep hitting walls in that quest. We have discussed many other options as well but feel with all my other health stuff there is too much risk. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2011 Report Share Posted July 31, 2011 When I get a severe allergy I start to itch or face swells, my tongue will feel funny. A time or two my throat began to close. I keep liquid Benadryl and take about three tsp when I get it. Then go to ER. I carry Benadryl tablets in my purse. I get sick at my stomach and throw up when its a minor allergy. When my stomach is empty, I am fine. I can't eat gravy at a restaurant because I still get the same reaction. Any package gravy or anything that has food preservatives. Sometimes its hard to find out what it is that is bothering me. In this case I write down what I eat for several days to isolate the allergy. Sometimes it takes a long time find the cause. Sounds really bad, but its just being aware of your body and why it reacts the way it does. I know I'm rambling but hope it makes sense. Lou Subject: Re: ThoughtsTo: "asthma " <asthma >Date: Sunday, July 31, 2011, 9:56 AM Oh, I understand. There are so many little other maladies that come with asthma. One at a time is a real pain, but when they all gang up on us at one time, it really is miserable. It seems like we never get a day off, always dealing with one or the other. To: asthma Sent: Saturday, July 30, 2011 11:31 PMSubject: Re: Thoughts I don't post too often but I read all of the emails and feel like I "know" a lot of you. I guess I have "severe steroid-dependent asthma" along with a whole boat load of other conditions. In the past 13 years the lowest my prednisonedose has been is 30. My average dose is 40 mg a day. I have tried most asthma meds. I was on Xolair for about 9 months before having insurance issues. I did not see any benefits but heard it frequently takes up to a year. My pulmonologist REALLY wants me to try again but we keep hitting walls in that quest. We have discussed many other options as well but feel with all my other health stuff there is too much risk. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2011 Report Share Posted July 31, 2011 I think we all of have different symptoms. My throat and scalp itch. I too take Benedryl. The challenge is our bodies change and what is fine for a time, might not be later. When I took the flu shot this year, there was something in there I was allergic to. My hands started itching immediately and then went away. Then I started having trouble breathing so took an inhalation of Xopenex. Wrong thing to do. Called the doctor and they said take Benedryl. That worked. When I get a severe allergy I start to itch or face swells, my tongue will feel funny. A time or two my throat began to close. I keep liquid Benadryl and take about three tsp when I get it. Then go to ER. I carry Benadryl tablets in my purse. I get sick at my stomach and throw up when its a minor allergy. When my stomach is empty, I am fine. I can't eat gravy at a restaurant because I still get the same reaction. Any package gravy or anything that has food preservatives. Sometimes its hard to find out what it is that is bothering me. In this case I write down what I eat for several days to isolate the allergy. Sometimes it takes a long time find the cause. Sounds really bad, but its just being aware of your body and why it reacts the way it does. I know I'm rambling but hope it makes sense. Lou Subject: Re: ThoughtsTo: " asthma " <asthma > Date: Sunday, July 31, 2011, 9:56 AM Oh, I understand. There are so many little other maladies that come with asthma. One at a time is a real pain, but when they all gang up on us at one time, it really is miserable. It seems like we never get a day off, always dealing with one or the other. From: To: asthma Sent: Saturday, July 30, 2011 11:31 PMSubject: Re: Thoughts I don't post too often but I read all of the emails and feel like I " know " a lot of you. I guess I have " severe steroid-dependent asthma " along with a whole boat load of other conditions. In the past 13 years the lowest my prednisonedose has been is 30. My average dose is 40 mg a day. I have tried most asthma meds. I was on Xolair for about 9 months before having insurance issues. I did not see any benefits but heard it frequently takes up to a year. My pulmonologist REALLY wants me to try again but we keep hitting walls in that quest. We have discussed many other options as well but feel with all my other health stuff there is too much risk. -- Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2011 Report Share Posted July 31, 2011 Have you been checked for thrush? If the white coating doesnt go away no matter what you do, you could possibly have thrush. This is a website that explains the symptoms of thrush for both a child and an adult...anyone using inhaled corticosteroids is at risk for this. http://www.webmd.com/oral-health/tc/thrush-symptoms Ann Re: Thoughts I don't post too often but I read all of the emails and feel like I "know" a lot of you. I guess I have "severe steroid-dependent asthma" along with a whole boat load of other conditions. In the past 13 years the lowest my prednisonedose has been is 30. My average dose is 40 mg a day. I have tried most asthma meds. I was on Xolair for about 9 months before having insurance issues. I did not see any benefits but heard it frequently takes up to a year. My pulmonologist REALLY wants me to try again but we keep hitting walls in that quest. We have discussed many other options as well but feel with all my other health stuff there is too much risk. < /div> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2011 Report Share Posted July 31, 2011 thank you for the tips girls!!! I will also carry benadryl in my bag. Have you been checked for thrush? If the white coating doesnt go away no matter what you do, you could possibly have thrush. This is a website that explains the symptoms of thrush for both a child and an adult...anyone using inhaled corticosteroids is at risk for this. http://www.webmd.com/oral-health/tc/thrush-symptoms Ann Re: Thoughts I don't post too often but I read all of the emails and feel like I " know " a lot of you. I guess I have " severe steroid-dependent asthma " along with a whole boat load of other conditions. In the past 13 years the lowest my prednisonedose has been is 30. My average dose is 40 mg a day. I have tried most asthma meds. I was on Xolair for about 9 months before having insurance issues. I did not see any benefits but heard it frequently takes up to a year. My pulmonologist REALLY wants me to try again but we keep hitting walls in that quest. We have discussed many other options as well but feel with all my other health stuff there is too much risk. < /div> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2011 Report Share Posted August 1, 2011 Ann might be on to something. I had thrush once and don't ever want it again. My mouth felt horrid till I got rid of it., Co-ModeratorTo: asthma Sent: Sunday, July 31, 2011 11:02 PMSubject: Re: Thoughts Have you been checked for thrush? If the white coating doesnt go away no matter what you do, you could possibly have thrush. This is a website that explains the symptoms of thrush for both a child and an adult...anyone using inhaled corticosteroids is at risk for this. http://www.webmd.com/oral-health/tc/thrush-symptoms Ann Re: Thoughts I don't post too often but I read all of the emails and feel like I "know" a lot of you. I guess I have "severe steroid-dependent asthma" along with a whole boat load of other conditions. In the past 13 years the lowest my prednisonedose has been is 30. My average dose is 40 mg a day. I have tried most asthma meds. I was on Xolair for about 9 months before having insurance issues. I did not see any benefits but heard it frequently takes up to a year. My pulmonologist REALLY wants me to try again but we keep hitting walls in that quest. We have discussed many other options as well but feel with all my other health stuff there is too much risk. < /div> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2011 Report Share Posted August 1, 2011 The fluticasone is what got my sinuses open so I could smell and taste again. I tried the nasal wash but it didn't help me so I stopped trying it. I only had to use the fluticasone for a couple of weeks and I've been off of it for almost 6 weeks now. I keep it handy in case I need it again.Kathy/Iowa To: "asthma " <asthma >Sent: Monday, August 1, 2011 9:18 AMSubject: Re: Thoughts I use fluticasone, to open up my sinuses, usually when I have a really bad cold, or the allergies are really bad. Other times I use saline nasal spray. I have also noticed, that early morning air, or late at night, the dampness, like between 12:00 p.m., and the early morning hours till about 5 or 6am, will make me sick really fast, either my sinus get all stuffed up, or my chest goes haywire. Doesn't matter the time of year. I also have lots of sinus infections, or sinusitis too, I think the sinus problems, the asthma, and the gerd are all connected, it is miserable sometimes.To: asthma ; "asthma " <asthma >Sent: Sunday, July 31, 2011 5:28 PMSubject: Re: Thoughts I also forgot to mention - I use Nasacort AQ once a day and that keeps my nose open for the entire day. Nasacort is a prescription.SharonFrom:"willothewispl@..." Subject:Re: ThoughtsDate:July 31, 2011 4:31:05 PM EDTTo:"asthma " <asthma >Yep, I get all that, and then it goes up to my sinuses, and then I get all stuffed up and cannot breathe, and then with my gerd acting up, I end up throwing up. I have always thought that this was weird for me, I guess not so weird after all.To: asthma ; "asthma " <asthma >Sent: Sunday, July 31, 2011 4:21 PMSubject: Re: Thoughts I totally agree with both of you. As of this past year I've had the worst acid reflux and burning in my mouth and throat and then the worst kind of burning all the way down my esophagus and I'm on 40mg. of Nexium. Yes, the gerd/acid reflux, asthma and IBS are all tied in together somehow - ugh ---SharonOn Jul 31, 2011, at 4:18:08 PM, "willothewispl@..." wrote:From:"willothewispl@..." Subject:Re: ThoughtsDate:July 31, 2011 4:18:08 PM EDTTo:"asthma " <asthma >I do believe that, I think that is what happens to me also. It is amazing how all of the body systems work together, all along with one another, unfortunately sometimes. LOLTo: asthma@yah oogroups.comSent: Sunday, July 31, 2011 3:03 PMSubject: Re: Thoughts I have found out that if I eat something that disagrees with me, my asthma gets worse. One of the things I do to keep my Asthma under control is watch what I eat very carefully. I have suddenly developed food allergies alsoLou. Subject: Re: ThoughtsTo: "asthma " <asthma >Date: Sunday, July 31, 2011, 9:56 AM Oh, I understand. There are so many little other maladies that come with asthma. One at a time is a real pain, but when they all gang up on us at one time, it really is miserable. It seems like we never get a day off, always dealing with one or the other.To: asthma Sent: Saturday, July 30, 2011 11:31 PMSubject: Re: Thoughts I don't post too often but I read all of the emails and feel like I "know" a lot of you. I guess I have "severe steroid-dependent asthma" along with a whole boat load of other conditions. In the past 13 years the lowest my prednisonedose has been is 30. My average dose is 40 mg a day. I have tried most asthma meds. I was on Xolair for about 9 months before having insurance issues. I did not see any benefits but heard it frequently takes up to a year. My pulmonologist REALLY wants me to try again but we keep hitting walls in that quest. We have discussed many other options as well but feel with all my other health stuff there is too much risk.< /div> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2011 Report Share Posted August 1, 2011 Yes, I only use the flutacasone when I absolutely need it. In between the saline nasal keeps my nose soft and it does not get so sore from blowing my nose.To: "asthma " <asthma >Sent: Monday, August 1, 2011 3:40 PMSubject: Re: Thoughts The fluticasone is what got my sinuses open so I could smell and taste again. I tried the nasal wash but it didn't help me so I stopped trying it. I only had to use the fluticasone for a couple of weeks and I've been off of it for almost 6 weeks now. I keep it handy in case I need it again.Kathy/Iowa To: "asthma " <asthma >Sent: Monday, August 1, 2011 9:18 AMSubject: Re: Thoughts I use fluticasone, to open up my sinuses, usually when I have a really bad cold, or the allergies are really bad. Other times I use saline nasal spray. I have also noticed, that early morning air, or late at night, the dampness, like between 12:00 p.m., and the early morning hours till about 5 or 6am, will make me sick really fast, either my sinus get all stuffed up, or my chest goes haywire. Doesn't matter the time of year. I also have lots of sinus infections, or sinusitis too, I think the sinus problems, the asthma, and the gerd are all connected, it is miserable sometimes.To: asthma ; "asthma " <asthma >Sent: Sunday, July 31, 2011 5:28 PMSubject: Re: Thoughts I also forgot to mention - I use Nasacort AQ once a day and that keeps my nose open for the entire day. Nasacort is a prescription.SharonFrom:"willothewispl@..." Subject:Re: ThoughtsDate:July 31, 2011 4:31:05 PM EDTTo:"asthma " <asthma >Yep, I get all that, and then it goes up to my sinuses, and then I get all stuffed up and cannot breathe, and then with my gerd acting up, I end up throwing up. I have always thought that this was weird for me, I guess not so weird after all.To: asthma ; "asthma " <asthma >Sent: Sunday, July 31, 2011 4:21 PMSubject: Re: Thoughts I totally agree with both of you. As of this past year I've had the worst acid reflux and burning in my mouth and throat and then the worst kind of burning all the way down my esophagus and I'm on 40mg. of Nexium. Yes, the gerd/acid reflux, asthma and IBS are all tied in together somehow - ugh ---SharonOn Jul 31, 2011, at 4:18:08 PM, "willothewispl@..." wrote:From:"willothewispl@..." Subject:Re: ThoughtsDate:July 31, 2011 4:18:08 PM EDTTo:"asthma " <asthma >I do believe that, I think that is what happens to me also. It is amazing how all of the body systems work together, all along with one another, unfortunately sometimes. LOLTo: asthma@yah oogroups.comSent: Sunday, July 31, 2011 3:03 PMSubject: Re: Thoughts I have found out that if I eat something that disagrees with me, my asthma gets worse. One of the things I do to keep my Asthma under control is watch what I eat very carefully. I have suddenly developed food allergies alsoLou. Subject: Re: ThoughtsTo: "asthma " <asthma >Date: Sunday, July 31, 2011, 9:56 AM Oh, I understand. There are so many little other maladies that come with asthma. One at a time is a real pain, but when they all gang up on us at one time, it really is miserable. It seems like we never get a day off, always dealing with one or the other.To: asthma Sent: Saturday, July 30, 2011 11:31 PMSubject: Re: Thoughts I don't post too often but I read all of the emails and feel like I "know" a lot of you. I guess I have "severe steroid-dependent asthma" along with a whole boat load of other conditions. In the past 13 years the lowest my prednisonedose has been is 30. My average dose is 40 mg a day. I have tried most asthma meds. I was on Xolair for about 9 months before having insurance issues. I did not see any benefits but heard it frequently takes up to a year. My pulmonologist REALLY wants me to try again but we keep hitting walls in that quest. We have discussed many other options as well but feel with all my other health stuff there is too much risk.< /div> Quote Link to comment Share on other sites More sharing options...
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