Re: Re: another quick question...

[Guest guest]

Hello all, Just wanted to add my mom too was diagnosed with parkinsons several

years ago.Just got much worse earlier this year and they found out it was

lbd.Ive havent told her cuz she would just get upset.She is the kind of person

that always would over worry about things till it gets her upset. Hope you all

are doin well. Best of luck Ron

stimtimminss wrote: Hi Gladys, and welcome! Headaches

can be a symptom of Lewy Body. My mom developed

them, we put her on Tylenol during the day and they disappeared. That was before

her

diagnosis of Lewy Body but it was there. By the time she was diagnosed she was

so far

into it that I never did tell her, admitted to a nh, wheelchair bound. She had

thought for

years she had Parkinsons. The meds for that really took her down and she

crashed, ended

up in hospital until a nh bed was available. With the dementia diagnosis I just

could not

hit her with any more worry. Aricept then brought her back to me significantly,

but I still

never told her. Had she been more capable when the diagnosis was made, I would

have.

Difficult decisions.

, Oakville Ont.

Mother, age 92, died Aug. 12/06 after 13 year decline from PDD

>

> .....and my deepest thanks.....

>

> How many of your LO's have been told they have LewyBody? My mother has

> always has (and still does) a thirst for knowledge about all things medical.

> As recently as last week she took a news article to the doctor that she

> thought described some pains she was having in her head (that we think are

> TMJ). I feel that I want to sit down (after consult with the neuro) and

> explain to her exactly what is happening and what we can except. I think it

> is the wondering what is wrong with her that is making this much harder on

> her.

>

> Gladys

>

>

[Guest guest]

Ron,

I'm still waiting for an appointment with her neuro but, how did they

determine it was LBD rather than PD?

Glady6s

-- Re: Re: another quick question...

Hello all, Just wanted to add my mom too was diagnosed with parkinsons

several years ago.Just got much worse earlier this year and they found out

it was lbd.Ive havent told her cuz she would just get upset.She is the kind

of person that always would over worry about things till it gets her upset.

Hope you all are doin well. Best of luck Ron

stimtimminss wrote: Hi Gladys, and welcome!

Headaches can be a symptom of Lewy Body. My mom developed

them, we put her on Tylenol during the day and they disappeared. That was

before her

diagnosis of Lewy Body but it was there. By the time she was diagnosed she

was so far

into it that I never did tell her, admitted to a nh, wheelchair bound. She

had thought for

years she had Parkinsons. The meds for that really took her down and she

crashed, ended

up in hospital until a nh bed was available. With the dementia diagnosis I

just could not

hit her with any more worry. Aricept then brought her back to me

significantly, but I still

never told her. Had she been more capable when the diagnosis was made, I

would have.

Difficult decisions.

, Oakville Ont.

Mother, age 92, died Aug. 12/06 after 13 year decline from PDD

>

> .....and my deepest thanks.....

>

> How many of your LO's have been told they have LewyBody? My mother has

> always has (and still does) a thirst for knowledge about all things

medical.

> As recently as last week she took a news article to the doctor that she

> thought described some pains she was having in her head (that we think are

> TMJ). I feel that I want to sit down (after consult with the neuro) and

> explain to her exactly what is happening and what we can except. I think

it

> is the wondering what is wrong with her that is making this much harder on

> her.

>

> Gladys

>

>

[Guest guest]

Thanks, !

I wouldn't call what Mom is experiencing headaches exactly. They are more

like shooting pains going from one side of her head over the top to the

other.

Gladys

-- Re: another quick question...

Hi Gladys, and welcome! Headaches can be a symptom of Lewy Body. My mom

developed

them, we put her on Tylenol during the day and they disappeared. That was

before her

diagnosis of Lewy Body but it was there. By the time she was diagnosed she

was so far

into it that I never did tell her, admitted to a nh, wheelchair bound. She

had thought for

years she had Parkinsons. The meds for that really took her down and she

crashed, ended

up in hospital until a nh bed was available. With the dementia diagnosis I

just could not

hit her with any more worry. Aricept then brought her back to me

significantly, but I still

never told her. Had she been more capable when the diagnosis was made, I

would have.

Difficult decisions.

, Oakville Ont.

Mother, age 92, died Aug. 12/06 after 13 year decline from PDD

>

> .....and my deepest thanks.....

>

> How many of your LO's have been told they have LewyBody? My mother has

> always has (and still does) a thirst for knowledge about all things

medical.

> As recently as last week she took a news article to the doctor that she

> thought described some pains she was having in her head (that we think are

> TMJ). I feel that I want to sit down (after consult with the neuro) and

> explain to her exactly what is happening and what we can except. I think

it

> is the wondering what is wrong with her that is making this much harder on

> her.

>

> Gladys

>

>

[Guest guest]

Hi , She was diagnosed with pd about 4 years ago and just within the past year

she started with hallucinations emotional swings not sleeping etc. So we went

back to nuero and they did mri and cat scans and saw no signs of stroke and that

was there 'new diagnosis " that it was lbd. I then got more familier with the

disease and realized that its a mistake drs make quite often.I only wish we

could have treated it as lbd earlier so the advancement would have slowed.

Take care and keep in touch ron

Gladys Stefany wrote: Ron,

I'm still waiting for an appointment with her neuro but, how did they

determine it was LBD rather than PD?

Glady6s

-- Re: Re: another quick question...

Hello all, Just wanted to add my mom too was diagnosed with parkinsons

several years ago.Just got much worse earlier this year and they found out

it was lbd.Ive havent told her cuz she would just get upset.She is the kind

of person that always would over worry about things till it gets her upset.

Hope you all are doin well. Best of luck Ron

stimtimminss wrote: Hi Gladys, and welcome!

Headaches can be a symptom of Lewy Body. My mom developed

them, we put her on Tylenol during the day and they disappeared. That was

before her

diagnosis of Lewy Body but it was there. By the time she was diagnosed she

was so far

into it that I never did tell her, admitted to a nh, wheelchair bound. She

had thought for

years she had Parkinsons. The meds for that really took her down and she

crashed, ended

up in hospital until a nh bed was available. With the dementia diagnosis I

just could not

hit her with any more worry. Aricept then brought her back to me

significantly, but I still

never told her. Had she been more capable when the diagnosis was made, I

would have.

Difficult decisions.

, Oakville Ont.

Mother, age 92, died Aug. 12/06 after 13 year decline from PDD

>

> .....and my deepest thanks.....

>

> How many of your LO's have been told they have LewyBody? My mother has

> always has (and still does) a thirst for knowledge about all things

medical.

> As recently as last week she took a news article to the doctor that she

> thought described some pains she was having in her head (that we think are

> TMJ). I feel that I want to sit down (after consult with the neuro) and

> explain to her exactly what is happening and what we can except. I think

it

> is the wondering what is wrong with her that is making this much harder on

> her.

>

> Gladys

>

>