Guest guest Posted July 30, 2011 Report Share Posted July 30, 2011 I think an active member should post once in a while. Some on the member lists haven't posted in years. I get quiet now and then too even though I do read posts. I have gone as much as two weeks without saying anything. A while back, I went a couple months without saying anything. I'm more involved now and plan to stay that way. I get good information and have great people to talk to about whatever. , Co-ModeratorTo: asthma Sent: Saturday, July 30, 2011 4:42 PMSubject: Re: Thoughts Not sure what the problems are so maybe I'm am missing why it is important to know who is an Active member. Sometimes life intercedes and I might be active now, but then will be quite for a while until I can become active again. I was also thinking that maybe we need to get all ACTIVE members to post at least once who they are and let us moderators get an idea of who is really posting most of the time. I was looking at the member list one day because of some of the problems we've had and haven't heard from some in a very long time, and some are bouncing. Mods, Is there anything we can do or should we do anything? , Co-Moderator -- Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2011 Report Share Posted July 30, 2011 I try to respond but with kids, home business, a sick mom i just don't have time. . . . I hope no one thinks I don't want to answer. . . time is short. But I do read most all post from everyone.LynneTo: asthma Sent: Saturday, July 30, 2011 3:42 PMSubject: Re: Thoughts Not sure what the problems are so maybe I'm am missing why it is important to know who is an Active member. Sometimes life intercedes and I might be active now, but then will be quite for a while until I can become active again. I was also thinking that maybe we need to get all ACTIVE members to post at least once who they are and let us moderators get an idea of who is really posting most of the time. I was looking at the member list one day because of some of the problems we've had and haven't heard from some in a very long time, and some are bouncing. Mods, Is there anything we can do or should we do anything? , Co-Moderator -- Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2011 Report Share Posted July 30, 2011 That's fine Lynne. You do what you can., Co-ModeratorTo: "asthma " <asthma >Sent: Saturday, July 30, 2011 5:40 PMSubject: Re: Thoughts I try to respond but with kids, home business, a sick mom i just don't have time. . . . I hope no one thinks I don't want to answer. . . time is short. But I do read most all post from everyone.LynneTo: asthma Sent: Saturday, July 30, 2011 3:42 PMSubject: Re: Thoughts Not sure what the problems are so maybe I'm am missing why it is important to know who is an Active member. Sometimes life intercedes and I might be active now, but then will be quite for a while until I can become active again. I was also thinking that maybe we need to get all ACTIVE members to post at least once who they are and let us moderators get an idea of who is really posting most of the time. I was looking at the member list one day because of some of the problems we've had and haven't heard from some in a very long time, and some are bouncing. Mods, Is there anything we can do or should we do anything? , Co-Moderator -- Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2011 Report Share Posted July 30, 2011 Ok scrap the idea for now. We'll see how it goes. It was mostly just thinking with the keyboard., Co-ModeratorTo: asthma Sent: Saturday, July 30, 2011 5:49 PMSubject: Re: Thoughts I agree with your definition of active member. Just wondering what the value of the list would be. I think an active member should post once in a while. Some on the member lists haven't posted in years. I get quiet now and then too even though I do read posts. I have gone as much as two weeks without saying anything. A while back, I went a couple months without saying anything. I'm more involved now and plan to stay that way. I get good information and have great people to talk to about whatever. , Co-Moderator To: asthma Sent: Saturday, July 30, 2011 4:42 PMSubject: Re: Thoughts Not sure what the problems are so maybe I'm am missing why it is important to know who is an Active member. Sometimes life intercedes and I might be active now, but then will be quite for a while until I can become active again. I was also thinking that maybe we need to get all ACTIVE members to post at least once who they are and let us moderators get an idea of who is really posting most of the time. I was looking at the member list one day because of some of the problems we've had and haven't heard from some in a very long time, and some are bouncing. Mods, Is there anything we can do or should we do anything? , Co-Moderator -- Take care, -- Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2011 Report Share Posted July 30, 2011 I don't post too often but I read all of the emails and feel like I " know " a lot of you. I guess I have " severe steroid-dependent asthma " along with a whole boat load of other conditions. In the past 13 years the lowest my prednisone dose has been is 30. My average dose is 40 mg a day. I have tried most asthma meds. I was on Xolair for about 9 months before having insurance issues. I did not see any benefits but heard it frequently takes up to a year. My pulmonologist REALLY wants me to try again but we keep hitting walls in that quest. We have discussed many other options as well but feel with all my other health stuff there is too much risk. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2011 Report Share Posted July 31, 2011 I don't always participate either, but, sometimes I post a lot, then sometimes not at all for a long time. It is nice that we can do that on here. Nice to hear your opinion.To: "asthma " <asthma >Sent: Sunday, July 31, 2011 12:13 AMSubject: Re: Thoughts I am one of the ones who doesn't post much. For this I apologize. I will contribute more in the future.For those who wonder who the heck I am, I am retired due to cough variant asthma. I developed adult onset asthma following a respiratory infection. I live in the St.Louis area and most of my problems are due to irritants rather than allergies. I am 63 and have had asthma for about 5 years. Sorry for not participating.Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2011 Report Share Posted July 31, 2011 Oh, I understand. There are so many little other maladies that come with asthma. One at a time is a real pain, but when they all gang up on us at one time, it really is miserable. It seems like we never get a day off, always dealing with one or the other.To: asthma Sent: Saturday, July 30, 2011 11:31 PMSubject: Re: Thoughts I don't post too often but I read all of the emails and feel like I "know" a lot of you. I guess I have "severe steroid-dependent asthma" along with a whole boat load of other conditions. In the past 13 years the lowest my prednisone dose has been is 30. My average dose is 40 mg a day. I have tried most asthma meds. I was on Xolair for about 9 months before having insurance issues. I did not see any benefits but heard it frequently takes up to a year. My pulmonologist REALLY wants me to try again but we keep hitting walls in that quest. We have discussed many other options as well but feel with all my other health stuff there is too much risk. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2011 Report Share Posted July 31, 2011 Hello,That's a lot of prednisone. I've been on it for about 2 years on/off and worry about the side effects. My twin was on it for over 15 years and had to have both hips replaced before the age of 45. She has Lupus. If she had lived longer, she'd probably have had other parts replaced. She died at the age of 47. Good to hear from you. Love N HugsBarbeeTo: asthma Sent: Saturday, July 30, 2011 11:31 PMSubject: Re: Thoughts I don't post too often but I read all of the emails and feel like I "know" a lot of you. I guess I have "severe steroid-dependent asthma" along with a whole boat load of other conditions. In the past 13 years the lowest my prednisone dose has been is 30. My average dose is 40 mg a day. I have tried most asthma meds. I was on Xolair for about 9 months before having insurance issues. I did not see any benefits but heard it frequently takes up to a year. My pulmonologist REALLY wants me to try again but we keep hitting walls in that quest. We have discussed many other options as well but feel with all my other health stuff there is too much risk. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2011 Report Share Posted July 31, 2011 I have found out that if I eat something that disagrees with me, my asthma gets worse. One of the things I do to keep my Asthma under control is watch what I eat very carefully. I have suddenly developed food allergies alsoLou. Subject: Re: ThoughtsTo: "asthma " <asthma >Date: Sunday, July 31, 2011, 9:56 AM Oh, I understand. There are so many little other maladies that come with asthma. One at a time is a real pain, but when they all gang up on us at one time, it really is miserable. It seems like we never get a day off, always dealing with one or the other. To: asthma Sent: Saturday, July 30, 2011 11:31 PMSubject: Re: Thoughts I don't post too often but I read all of the emails and feel like I "know" a lot of you. I guess I have "severe steroid-dependent asthma" along with a whole boat load of other conditions. In the past 13 years the lowest my prednisone dose has been is 30. My average dose is 40 mg a day. I have tried most asthma meds. I was on Xolair for about 9 months before having insurance issues. I did not see any benefits but heard it frequently takes up to a year. My pulmonologist REALLY wants me to try again but we keep hitting walls in that quest. We have discussed many other options as well but feel with all my other health stuff there is too much risk. Quote Link to comment Share on other sites More sharing options...
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