Guest guest Posted June 22, 2009 Report Share Posted June 22, 2009 So last Monday we went to UCSF and Dr. Gupta said he would take her case,would be on vacation for a week and would get in touch with her nsg here. I also let her current neurosurgeon here know how it went. Last Tuesday called the neurosurgery clinic and asked if Maddy could be seen and or given intermitent diamox. They said no they were waiting for callback from UCSF and wouldnt see her or give diamox so her pediatrician wrote for a med that was an antihistamine that he said has helped some people with headaches and stimulate appetites so we tried it. She slept all the time and her headaches and appetite didnt improve. I called the pediatricians office and asked if we can stop the med and if I could give her itermitent diamox until Dr. Gupta is back next monday and her pediatrician doesnt feel comfortable giving her diamox and to call neurosurgery. I explained to him that they refuse to see her and wont write for it. So if she is like this tomorrow I am taking her to the er,the good part is her pediatrician is the in house dr @hospital. I am so frustrated because I feel like Maddy is beng punished because we got another opinion and we don't know how long it will be before we go to UCSF again. The lortab isnt even helping her pain and the wont even see her to give her anything stronger. Please keep Maddy in your prayers. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.