- Oakville, Ont.

[Guest guest]

Hi -

So sorry to read that your mom has progressed

so far into the disease. Thinking of you this

morning and keeping you in my prayers.

With hugs-

Sandie

Des Moines, IA

dad, Merle, passed from LBD 9-20-02, age 65

-- Re: Good Morning

Dear Imogene,

How good to hear from you. I tried answering earlier but my reply got

gobbled up never

to be seen again. Some days I find Yahoo just can't pull it together, then

other days all is

good.

You sure have been through a lot lately, still. I am very sorry to hear of

LO's decline. It is

difficult with an aged parent but how much worse it must be with a husband,

mate,

partner. Thankfully your lump is being seen as not serious and I hope for

you both that

diagnosis continues.

My mom is eating and drinking very little by now, lost 13 1/2 lb in July

when intake was

better than now. I don't know how much longer she can continue, but is not

palliative yet

by her nh standards. She has developed a pressure sore on her heel, despite

being turned

in bed every 2 hours, but the thought is that she doesn't feel it and I tend

to agree, with

the neuropathy she has as well as Hydromorph for pain. With that she seems

comfortable

and relaxed. They will treat it of course.

Once we finish clearing the inlaw's house this week, auction on Wednesday, I

can devote

more time to Mom and her continual decline. This has been a sad, trying

summer, and

with finishing in the house I hope to have some recoup time before school

and work start

up again in September. In that respect, having the summer off, timing for

house clearing

and being there for Mom has cooperated very well.

You take care of you as well as your husband, as you do so well. No need to

reply. I just

wanted you to know I think about you often and do appreciate when you can

drop in.

, Oakville Ont.

Mom 92, 13 years " Parkinsons "

3 1/2 years ago LBD diagnosis, evident much longer in hindsight.

Encouraged to give up her licence 6 years ago.

Eltroxin, Hydromorph twice a day for pain

Off Aricept since Feb./06

On " gentle care " since June 30/06, spoon-fed pureed foods, swallowing very

compromised, needs verbal cueing and throat stroking to initiate swallowing,

congested

>

> Good Morning everyone,

>

> Hope this day proves to be a good day for all of you and your LO's.

>

> I have been busy, very busy, but have been checking the mail. I have not

> seen anything from anyone in about a week it seems. I hope the List

itself isn't

> down, or is it that the mail is just not reaching me?

>

> My darling husband is gradually getting worse, as might be expected.

Little

> things, like last night he was sure I did not go on 410, to I-10 down

town to

> my Pulmonologist. He even got out a map to prove me wrong. I didn't argue

> with him.

>

> But, this is an example of his continuing decline in being able to think

or

> remember.

>

> Thank goodness, his hallucinations have abated a bit. He is taking

Razadyne

> 16mg.

>

> We have been having the kids here quite a bit, and our calender is full

with

> Doctor appointments.

>

> I was scared a while back about a lump in my breast. The Mammagraphy and

> sonogram was inconclusive, in that the lump could be seen, but it didn't

appear

> to be a dangerous lump. The breast was badly bruised in that spot, and

the

> doctor wants it to clear, and then do the test again in three months. I

am very

> happy that the lump is getting smaller. Serious lumps don't shrink.

>

> I got a new printer, and it has spewed paper all over the place. I sure

do

> need to learn how to use it! I sure do miss my old, very old, printer.

>

> Well, that is just about our update. We are off to the pulmonologist

> downtown. I sure wish I had one closer. In time, I'll get that too. I am

on a

> waiting list for a Geriatric Doctor near me.

>

> Does anyone have anything going on, even if it is just about life in

> general, as I have written? Love to hear from you.

>

> Imogene

> Caregiver for my True Texas Gentleman husband of 35 years. He has LBD

with

> Parkinsonism.

>

>

>

>