Re: IMDSA Conference 2009

[Guest guest]

Hi All,

Last week I passed on some information about grants possible to go to the

conference.  I went in to fill out the grant today and they are no longer taking

applications.  They said they had over 500,000 request.  I just thought I would

pass that info along to all of you.

 

Sue

Subject: IMDSA Conference 2009

To: mosaicds

Date: Wednesday, September 3, 2008, 5:27 PM

Hello IMDSA Families!

I’m Rowe and the Family Assistance Coordinator for the 2009

Conference being held in Cincinnati, OH July 10-12, 2009 . I volunteered for the

job because I want to help as many families get to the conference as I can.

     First of all, for those of you who do not know me, I’m a single Mom

to two great boys, Trey age 8 with ADHD and Austin age 5 with MDS.  I had no

prior knowledge of Austin’s MDS or even DS before his birth. There were no

signs from sonograms and I was too young to have an amnio done.  So when Austin

came at 36 weeks, weighing in at just 5 pounds 2 ounces and 18 inches long

(after only 3 hours of labor!) it was a shock to my then husband and me of the

diagnosis of Down syndrome. From that time until the spring of 2007 I had always

thought Austin had a “milder” or “lighter” form of DS not knowing at all

about mosaicism.

    In the spring of 2007 I was a full time college student taking an

English class and was required to do a research paper. I did it on Down syndrome

and thus found out about Mosaic DS and IMDSA.  I became a member and went to

the conference in Richmond, VA (we live near Lexington, VA) in the summer of

2007 and it was there that I had Austin tested for MDS and to an accuracy of 96%

Austin has MDS. I have been involved with IMDSA ever since and even though I’m

raising two boys alone, and a part time college student (studying for my Nursing

degree), I try to help out any way I can. So when the opportunity to help with

next year’s conference presented itself I jumped on board.

     My job is to help families get to the conference by any financial

means possible. There are local and long distance organizations, grants, and

corporations willing and able to donate money for this cause and it’s my job

to contact them on your behalf. I will be the sole contact person between them

and you (and of course IMDSA’s Board of Directors and committee chairpersons

for the conference), all you have to do is say; “YES WE WANT TO COME!!!” 

Please send me an email at becky@... with the following information..

 

1.      Name of Family (initial contact first/last name)

2.     Number of Family members attending conference (and ages)

3.     Name of Family Member with DS/MDS (and age)

4.     Email & physical addresses, phone number(s).

That’s all…I do the rest for you (how easy is that?!) I know some or most

of you are thinking this is charity or a handout, please don’t think that, for

that is not what it is. A lot of clubs (such as Lions, Rotary, Kiwanis, etc),

corporations, have money set aside for non profit organizations such as IMDSA

and are willing to give us their money!  All I have to do is ask for it (on

yours and IMDSA’s behalf of course!) All you have to do is let me know that

you and your family want to come to the Conference it is that simple I promise.

 

Please note that there are no guarantees that each family will get this

assistance, however, this is the first step in attempting to receive the

assistance.

 

Please feel free to contact me at anytime should you have any questions,

 

God Bless,

Family Assistance Coordinator

International Mosaic Down Syndrome Association

(home)

(cell)

 

Blessings Abound,

(Becky) Rowe

Mom to Trey (8 ADHD) & Austin (5 MDS)

________________________________

Family Assistance Coordinator

 www.imdsa.org or becky@...

Help Team Austin @:

http://teambrats08.chipin.com/team-austin

[Guest guest]

Thanks Sue, I had saved that information to look into further. Thanks for the

update!

G'night ya'll!!!

 

Blessings Abound,

(Becky) Rowe

Mom to Trey (8 ADHD) & Austin (5 MDS)

________________________________

Family Assistance Coordinator

 www.imdsa.org or becky@...

Help Team Austin @:

http://teambrats08.chipin.com/team-austin

 

IMDSA Conference 2009

To: mosaicds

Date: Wednesday, September 3, 2008, 5:27 PM

Hello IMDSA Families!

I’m Rowe and the Family Assistance Coordinator for the 2009

Conference being held in Cincinnati, OH July 10-12, 2009 . I volunteered for the

job because I want to help as many families get to the conference as I can.

     First of all, for those of you who do not know me, I’m a single Mom

to two great boys, Trey age 8 with ADHD and Austin age 5 with MDS.  I had no

prior knowledge of Austin’s MDS or even DS before his birth. There were no

signs from sonograms and I was too young to have an amnio done.  So when Austin

came at 36 weeks, weighing in at just 5 pounds 2 ounces and 18 inches long

(after only 3 hours of labor!) it was a shock to my then husband and me of the

diagnosis of Down syndrome. From that time until the spring of 2007 I had always

thought Austin had a “milder” or “lighter” form of DS not knowing at all

about mosaicism.

    In the spring of 2007 I was a full time college student taking an

English class and was required to do a research paper. I did it on Down syndrome

and thus found out about Mosaic DS and IMDSA.  I became a member and went to

the conference in Richmond, VA (we live near Lexington, VA) in the summer of

2007 and it was there that I had Austin tested for MDS and to an accuracy of 96%

Austin has MDS. I have been involved with IMDSA ever since and even though I’m

raising two boys alone, and a part time college student (studying for my Nursing

degree), I try to help out any way I can. So when the opportunity to help with

next year’s conference presented itself I jumped on board.

     My job is to help families get to the conference by any financial

means possible. There are local and long distance organizations, grants, and

corporations willing and able to donate money for this cause and it’s my job

to contact them on your behalf. I will be the sole contact person between them

and you (and of course IMDSA’s Board of Directors and committee chairpersons

for the conference), all you have to do is say; “YES WE WANT TO COME!!!” 

Please send me an email at becky@... with the following information..

 

1.      Name of Family (initial contact first/last name)

2.     Number of Family members attending conference (and ages)

3.     Name of Family Member with DS/MDS (and age)

4.     Email & physical addresses, phone number(s).

That’s all…I do the rest for you (how easy is that?!) I know some or most

of you are thinking this is charity or a handout, please don’t think that, for

that is not what it is. A lot of clubs (such as Lions, Rotary, Kiwanis, etc),

corporations, have money set aside for non profit organizations such as IMDSA

and are willing to give us their money!  All I have to do is ask for it (on

yours and IMDSA’s behalf of course!) All you have to do is let me know that

you and your family want to come to the Conference it is that simple I promise.

 

Please note that there are no guarantees that each family will get this

assistance, however, this is the first step in attempting to receive the

assistance.

 

Please feel free to contact me at anytime should you have any questions,

 

God Bless,

Family Assistance Coordinator

International Mosaic Down Syndrome Association

(home)

(cell)

 

Blessings Abound,

(Becky) Rowe

Mom to Trey (8 ADHD) & Austin (5 MDS)

________________________________

Family Assistance Coordinator

 www.imdsa.org or becky@...

Help Team Austin @:

http://teambrats08.chipin.com/team-austin