Guest guest Posted October 8, 2007 Report Share Posted October 8, 2007 Hi group, I need to know if anyone has experienced there loved one jerking? My mom has started little jerks from time to time. I also tried to explain to her about her disease. When I was done I asked her for a kiss and put my lips to her and she was able to kiss me. Do you think that is an indication that she understood anything I said? She is sleeping more and eating less. What does the mottling look like? I'm not sure if i'm seing it or not. Please pray that the Lord would be good too her and spare her pain. And mine! Love to all, Lynn --------------------------------- Shape Yahoo! in your own image. Join our Network Research Panel today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2007 Report Share Posted October 10, 2007 Lynn S,, I sure know what you mean about your Mom not being there for you and yet you find yourself taking such good care of her. I had a similar problem. Mom was so critical all my life. I did take care of her. (Not sure if I forgave her! LOL) But I did it for my Dad who had died lots earlier and would have taken very good care of her as he had me all my life. I use to say " Dad would never have forgiven me for not taking care of her. " Yet I know I did it for myself. And you are right, it isn't her fault, but I sometimes wondered why I was doing it. Lots of hugs, Donna R Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in a nh. She was almost 89 when she died in '02. No dx other than mine. Moms condition Thank you group for your input about what signs to look for on my moms body . That helps me. She does have the P that goes with the LBD. Well today was a hard time for me. I had to report for jury duty this morning. Dave went to stay at moms for a while since he didn't have to work till noon. He thought my mom was on her last hours and here I am stuck at court! God is good! I got out of it by noon . They didn't need my group. I rushed over to see her and she was actually eating what was being fed to her. She was still in outer space but her eyes were wide open. Go figure!!! I guess God is using this roller coaster time to transform something in me but I hate it. She has had weird BM's 4 yesturday and at least 2 today. I think maybe things are shutting down. What do you think? I am worn out. I cry a lot. My mother wasn't there for me when she should have been, yet I know she didn't know any better. She loved me inspite of her inability to take care of me during difficult times in my life. But I forgive her for she knew not what she did. I love her and I am there for her whatever happens. I want to be there for her when she passes. I didn't even get to say goodbye to my dad. I guess this is my way to deal with the pain.Or is being there sadistic on my part. Any way tomorrow is another day in Lewyland. I appreciate everyone of you and wish I could thank you all in person and maybe someday I can! God Bless, Lynn S. p.s. Some people go to Disnyland for fun, We go to Lewyland for craziness!!!!! --------------------------------- Don't let your dream ride pass you by. Make it a reality with Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2007 Report Share Posted October 10, 2007 Yes Dena, your mom must be a very strong woman with good care. I think of you often. This has been a very long end of journey for you. , Oakville Ont. Mother, age 92, died Aug. 12/06 after 13 year decline from PDD > > > Thank you group for your input about what signs to > > look for on my moms body . That helps me. She does > > have the P that goes with the LBD. > > Well today was a hard time for me. I had to > > report for jury duty this morning. Dave went to > > stay at moms for a while since he didn't have to > > work till noon. He thought my mom was on her last > > hours and here I am stuck at court! God is good! I > > got out of it by noon . They didn't need my group. > > I rushed over to see her and she was actually eating > > what was being fed to her. She was still in outer > > space but her eyes were wide open. Go figure!!! I > > guess God is using this roller coaster time to > > transform something in me but I hate it. She has > > had weird BM's 4 yesturday and at least 2 today. I > > think maybe things are shutting down. What do you > > think? I am worn out. I cry a lot. My mother wasn't > > there for me when she should have been, yet I know > > she didn't know any better. She loved me inspite of > > her inability to take care of me during difficult > > times in my life. But I forgive her for she knew > > not what she did. I love her and I am there for her > > whatever happens. I > > want to be there for her when she passes. I didn't > > even get to say goodbye to my dad. I guess this is > > my way to deal with the pain.Or is being there > > sadistic on my part. Any way tomorrow is another day > > in Lewyland. > > I appreciate everyone of you and wish I could > > thank you all in person and maybe someday I can! > > God Bless, > > Lynn S. > > p.s. Some people go to Disnyland for fun, We go > > to Lewyland for craziness!!!!! > > > > > > --------------------------------- > > Don't let your dream ride pass you by. Make it a > > reality with Yahoo! Autos. > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > ________________________________________________________________________________\ ____ > Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games. > http://get.games.yahoo.com/proddesc?gamekey=monopolyherenow > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 Hi Thank you for thinking of me. It has been a long road for the " end stage " of this awful disease. I try not to dwell on that because it just makes it all harder to do day to day. I am thankful for the days months etc...with her. The one thing that always helps me through besides God, is that I feel that she is so out of it most of the time that she is not aware of time or where she is. She has never asked to go home or anything as she cannot put her words together enough to make a statement. Usually it is just moaning, but occasionally I will hear a word that I recognize. She has not given me any indication that she knows me in 20 or more months now. That is the saddest part of her disease. Yet, it is a blessing too. It is like her soul has gone on and her shell of a body remains. I don't believe that can happen, but that is the best way that I can describe it. Does that make any sense to you? My mom is a different case than most. I know usually the patients do recognize their LO's up until the very end. I do try to be joyful, but some days I just do not want to get out of bed. But I am caring for her sisters and brother, so I must. I feel I am right where I am suppose to be and what more could I ask for. Dena in SoCal Mother(84)Almost 85. Existing with LBD in NH --- stimtimminss wrote: > Yes Dena, your mom must be a very strong woman with > good care. I think of you often. > This has been a very long end of journey for you. > > , Oakville Ont. > > Mother, age 92, died Aug. 12/06 after 13 year > decline from PDD > > > > > > > Thank you group for your input about what signs > to > > > look for on my moms body . That helps me. She > does > > > have the P that goes with the LBD. > > > Well today was a hard time for me. I had to > > > report for jury duty this morning. Dave went to > > > stay at moms for a while since he didn't have to > > > work till noon. He thought my mom was on her > last > > > hours and here I am stuck at court! God is good! > I > > > got out of it by noon . They didn't need my > group. > > > I rushed over to see her and she was actually > eating > > > what was being fed to her. She was still in > outer > > > space but her eyes were wide open. Go figure!!! > I > > > guess God is using this roller coaster time to > > > transform something in me but I hate it. She > has > > > had weird BM's 4 yesturday and at least 2 today. > I > > > think maybe things are shutting down. What do > you > > > think? I am worn out. I cry a lot. My mother > wasn't > > > there for me when she should have been, yet I > know > > > she didn't know any better. She loved me > inspite of > > > her inability to take care of me during > difficult > > > times in my life. But I forgive her for she > knew > > > not what she did. I love her and I am there for > her > > > whatever happens. I > > > want to be there for her when she passes. I > didn't > > > even get to say goodbye to my dad. I guess this > is > > > my way to deal with the pain.Or is being there > > > sadistic on my part. Any way tomorrow is another > day > > > in Lewyland. > > > I appreciate everyone of you and wish I could > > > thank you all in person and maybe someday I can! > > > God Bless, > > > Lynn S. > > > p.s. Some people go to Disnyland for fun, We > go > > > to Lewyland for craziness!!!!! > > > > > > > > > --------------------------------- > > > Don't let your dream ride pass you by. Make > it a > > > reality with Yahoo! Autos. > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > > > > > > ________________________________________________________________________________\ ____ > > Boardwalk for $500? In 2007? Ha! Play Monopoly > Here and Now (it's updated for today's > economy) at Yahoo! Games. > > > http://get.games.yahoo.com/proddesc?gamekey=monopolyherenow > > > > > ________________________________________________________________________________\ ____ Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games. http://get.games.yahoo.com/proddesc?gamekey=monopolyherenow Quote Link to comment Share on other sites More sharing options...
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