Fw: help, another neurosurgeon, another different diagnosis(long)

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Subject: help, another neurosurgeon, another different diagnosis(long)

To: chiari

Date: Thursday, July 23, 2009, 1:38 PM

i have posted many times before about my son jordan.  in 2002 had an arachnoid

cyst from c6-t11 removed(he was three).  he was also dioagnosed with

hydromyelia(t4-t10) as well.  in 2005 he started to have headaches, but

neurologist or nsg would not do anything.  in 2007 finally a nsg from clevelan

did a mri, and found 6mm chiari.  jordans symptoms are severe ha's at least 3x a

week. blacking out spells, right sided arm goes numb, left leg has shooting pain

in it, has balance issues,and seizures.  doctor decided not to do surgery

because he had good flow around foramem magnum, but there was decreased flow in

fourth ventricle, and crowding of his basal cistern. in 2008 mri says chiari is

5-6mm, and there is now no flow seen in fourth ventricle, and hydromyelia has

grown, and now has slight scoliosis.  read at cleveland clinic, same doctor. 

went for third opinion at childrens of akron, never got to meet nsg, just

ordered mri, and then called with

results.  says his mri is 4-5mm herniation(won't call it a chiari), and says

the brains ventricles are normal.  how can this happen and jordan have more ha's

and more symptoms.  they say the flow is still good. mri report really reads

everything is okay.  his neurologist is just as confused with the results, and

is wondering why a spinal mri was not done at the same time, so is now ordering

one of those.  i am confused and frustrated.  i would be happy with the results,

if his pain was more severe, and having more symptoms.  do not no what to do

next. HELP PLEASE.thank you in advance , shelly