Re: To - Thoughtful House

August 1, 2009

Hi ,

Sorry to jump in here, but I wanted to ask you more about what you have heard from others re: Thoughtful House. My kids' constipation is under control, and we have been doing biomedical and diet restrictions with a DAN doctor for almost 4 years now, but have not resolved my kids' severe food intolerances and healed their leaky guts. I have been considering taking them to the GI at Thoughtful House, but did hear one negative from a mom who went years ago to the NY location. Any feedback I can get would be great.

If you wish, you can email me offlist.

Thanks,

amkavickers@...

To: miralax Sent: Saturday, August 1, 2009 2:52:31 AMSubject: Re: Help!!!! I need help for my DS who is 11.

I have heard very good feedback from mothers who have taken their children to Thoughtful House for constipation and GI issues. They are located in TX and they do have an office in NYC as well. Please check them out and hopefully they can help your son or grandson. Good luck! Here is their website.http://www.thoughtfulhouse.org/--- In miralax@yahoogroups .com, Bobbie Bartram <bjbartram@. ..> wrote:>> Yes!!!! I get told the same thing after clean outs his colon is all stretched out just keep going and then he will start going normally, well when I keep giving the laxatives with or without we still get no formed stools and he gets backed up again. In the last few months he is starting to have a distended stomach which is releived when they clean him out. His GI did one in May with golytely

and then did a colonoscopy. Then sent him to surgeon, she did her own manual clean out and did some rectal biopsies but we are back to accidents all the time right after it. You can't tell me someone will "poop" in their pants and have no knowledge of it, which she has assured me that he is so stretched out that he doesn't have any control over it, HOW IS THAT NOT A PROBLEM that warrants further investigation. I do what they say and after a few months he is right back to square one all over again. I don't think they listen when I tell him what his life is like.> > > > ____________ _________ _________ __> From: Barnett <dkbar711@.. .>> To: miralax@yahoogroups .com> Sent: Friday, July 31, 2009 10:48:00 PM> Subject: Re: Help!!!! I need help for my DS who is

11.> > > I have no answers as to what to do, but wanted to tell you I know what you're going through. My 7 yr. old grandson has had accidents since he was 3 (no accidents from 2-3) and all we've been told is give Miralax, sometimes MOM, and have him sit on the commode after he eats. I took him to play with a friend recently and overheard his 5 year old sister telling the friend that he has accidents in his pants all the time.. After reading these posts, we have started giving him the olive oil and benefiber and cutting down on the Miralax. He has an appointment Aug.. 10 with his gi specialist, and I'm thinking hospitalization and tests will be the next step. 4 years of Miralax and constantly focusing on sitting on the commode after eating and no improvement whatsoever. What gets me is we don't know if he's unable to stop the accidents because he's receiving so much Miralax or because he is impacted and the colon can't go back to

normal. Without having an> xray frequently, there's no way to tell if he's constipated or not. Like your son, my grandson goes every day, sometimes 3-4 times a day. The confusing thing is, he always had gone every day, even when this problem first started and before the Miralax. But after the accidents started, medical exams and xrays confirmed that he was totally backed up. Now we're told that the colon is probably stretched and the only way to go back is to keep giving Miralax to keep him cleaned out. > > I do everything I can when he's with me to get him to drink water, eat veggies and fruits and my daughter is doing the same when he goes home. He's enjoying salads with lots of olive oil on them. The olive oil has just been started within the last few days. I'm putting Benefiber in his cereal. I'm going to talk to the gi dr. when we go about the alternatives to Miralax. And I really think we won't have a good idea what's going on

with his colon until he has the tests. I want this problem to go away and I'm getting very discouraged. I know we have to do whatever it takes to help him get better. But I, like you, don't know what that is.> > I really empathize with you and pray that you, and all of us dealing with this problem, find the answers.> > > > ____________ _________ _________ __> From: bjbartram <bjbartramyahoo (DOT) com>> To: miralax@yahoogroups .com> Sent: Friday, July 31, 2009 9:23:01 PM> Subject: Help!!!! I need help for my DS who is 11.> > I know everyone is talking about constipation but my son who is still incontient, constantly goes. The docs all say constipation but it is hard to say that someone who has to be changed up to 10 times a day is constipated. His poop is still unformed--tarry- like substance. He has had a clean out in May and then another in June from the

Ped. Surgeon. He was tested for CD and HS both were negative they said. He has had the blood test for Celiacs--again negative. I have tried for years to find out what is going on with him but no one seems to care. The ped. gi just wants to have the ACES procedure done on him the surgeon has now performed her own tests and says he is not a canidate for this. Now I am back to sqaure one with no one else to turn to. Since both have shuffled him back and forth both have said they have done all they can do. I have been taking him to docs since he was 3 for this. All anyone ever says is "he is constipated give him> Miralax and put him on the toilet after every meal" well this doesn't work. He is supposed to take Miralax 2 times a day and senekot says ped gi--doesn't work but after quite a few days he will get explosive diareha that ends up everywhere. The surgeon says to give him a 1000mL saline enema every night well we did that can't get it all just

squirts out of the rectum while it is still draining in. Then that it!!! Not to mention that he has behvior problems with other children which I am sure comes from the fact that most kids just make fun of him for "pooping his pants" and for wearing Pull Ups" which created the problem of him sneaking his older and younger brothers undies. We have even caught him using his little sisters panties. The problem is when he has an accident it eats the bottoms out of the undies. I have bought enough underwear for him to furnish a 1000 kids with undies for life I finally gave up and say NO MORE UNDERWEAR you have to> wear the pull ups and he has none that is why he is after everyone else's. Can someone tell me what I am doing wrong, I managed to get the older and the two younger ones to be potty trained why can't I get this one. He has so many problems, why can't we just resolve this one at least then my family could at least go some where again. My

husband has pretty much refused to go anywhere that we all have to go due to his ACCIDENTS. Not fair to the other kids that didn't do anything wrong but since he has a problem we never go anywhere we just stay at home.> > Sorry to be so long and thanks for listening if there is anyone still reading this I just don't know what to do!!!!! Can anyone help me is there anything I can do to get him going in the toilet like everyone else.> > > > ------------ --------- --------- ------> >

August 1, 2009

,

I have not heard anything negative about Thoughtful House. I have heard the

doctors there are very good at what they do and they will listen to you, work

with you to come up with a treatment plan for your child. They also have a

nutritionist in house to work with you and they also follow DAN! protocol. Dr.

Jepson who is based out in Texas has written a book called " Changing the course

of Autism " and Dr. Krigsman based out in NYC is a GI specialist who is also a

pediatrician. If you have specific questions you can post them to the yahoo

group below. Currently, I believe in that group, there are about maybe 3-4

families that are receiving treatments through Thoughtful House and you maybe

able to get more answers by posting your questions there.

http://health.groups.yahoo.com/group/NoVa_FamiliesTreatingAutism/

Hope that helps!

> >

> > Yes!!!! I get told the same thing after clean outs his colon is all

stretched out just keep going and then he will start going normally, well when I

keep giving the laxatives with or without we still get no formed stools and he

gets backed up again. In the last few months he is starting to have a distended

stomach which is releived when they clean him out. His GI did one in May with

golytely and then did a colonoscopy. Then sent him to surgeon, she did her own

manual clean out and did some rectal biopsies but we are back to accidents all

the time right after it.. You can't tell me someone will " poop " in their pants

and have no knowledge of it, which she has assured me that he is so stretched

out that he doesn't have any control over it, HOW IS THAT NOT A PROBLEM that

warrants further investigation. I do what they say and after a few months he is

right back to square one all over again. I don't think they listen when I tell

him what his life is like.

> >

> > ____________ _________ _________ __

> > From: Barnett <dkbar711@ .>

> > To: miralax@yahoogroups .com

> > Sent: Friday, July 31, 2009 10:48:00 PM

> > Subject: Re: Help!!!! I need help for my DS who is 11.

> >

> > I have no answers as to what to do, but wanted to tell you I know what

you're going through. My 7 yr. old grandson has had accidents since he was 3 (no

accidents from 2-3) and all we've been told is give Miralax, sometimes MOM, and

have him sit on the commode after he eats. I took him to play with a friend

recently and overheard his 5 year old sister telling the friend that he has

accidents in his pants all the time. After reading these posts, we have started

giving him the olive oil and benefiber and cutting down on the Miralax. He has

an appointment Aug.. 10 with his gi specialist, and I'm thinking hospitalization

and tests will be the next step. 4 years of Miralax and constantly focusing on

sitting on the commode after eating and no improvement whatsoever. What gets me

is we don't know if he's unable to stop the accidents because he's receiving so

much Miralax or because he is impacted and the colon can't go back to normal.

Without having an

> > xray frequently, there's no way to tell if he's constipated or not. Like

your son, my grandson goes every day, sometimes 3-4 times a day. The confusing

thing is, he always had gone every day, even when this problem first started and

before the Miralax. But after the accidents started, medical exams and xrays

confirmed that he was totally backed up. Now we're told that the colon is

probably stretched and the only way to go back is to keep giving Miralax to keep

him cleaned out.

> >

> > I do everything I can when he's with me to get him to drink water, eat

veggies and fruits and my daughter is doing the same when he goes home. He's

enjoying salads with lots of olive oil on them. The olive oil has just been

started within the last few days. I'm putting Benefiber in his cereal. I'm going

to talk to the gi dr. when we go about the alternatives to Miralax. And I really

think we won't have a good idea what's going on with his colon until he has the

tests. I want this problem to go away and I'm getting very discouraged. I know

we have to do whatever it takes to help him get better. But I, like you, don't

know what that is.

> >

> > I really empathize with you and pray that you, and all of us dealing with

this problem, find the answers.

> >

> > ____________ _________ _________ __

> > From: bjbartram <bjbartramyahoo (DOT) com>

> > To: miralax@yahoogroups .com

> > Sent: Friday, July 31, 2009 9:23:01 PM

> > Subject: Help!!!! I need help for my DS who is 11.

> >

> > I know everyone is talking about constipation but my son who is still

incontient, constantly goes. The docs all say constipation but it is hard to say

that someone who has to be changed up to 10 times a day is constipated. His poop

is still unformed--tarry- like substance. He has had a clean out in May and then

another in June from the Ped. Surgeon. He was tested for CD and HS both were

negative they said. He has had the blood test for Celiacs--again negative. I

have tried for years to find out what is going on with him but no one seems to

care. The ped. gi just wants to have the ACES procedure done on him the surgeon

has now performed her own tests and says he is not a canidate for this. Now I am

back to sqaure one with no one else to turn to. Since both have shuffled him

back and forth both have said they have done all they can do. I have been taking

him to docs since he was 3 for this. All anyone ever says is " he is constipated

give him

> > Miralax and put him on the toilet after every meal " well this doesn't work.

He is supposed to take Miralax 2 times a day and senekot says ped gi--doesn't

work but after quite a few days he will get explosive diareha that ends up

everywhere. The surgeon says to give him a 1000mL saline enema every night well

we did that can't get it all just squirts out of the rectum while it is still

draining in. Then that it!!! Not to mention that he has behvior problems with

other children which I am sure comes from the fact that most kids just make fun

of him for " pooping his pants " and for wearing Pull Ups " which created the

problem of him sneaking his older and younger brothers undies. We have even

caught him using his little sisters panties. The problem is when he has an

accident it eats the bottoms out of the undies. I have bought enough underwear

for him to furnish a 1000 kids with undies for life I finally gave up and say NO

MORE UNDERWEAR you have to

> > wear the pull ups and he has none that is why he is after everyone else's.

Can someone tell me what I am doing wrong, I managed to get the older and the

two younger ones to be potty trained why can't I get this one. He has so many

problems, why can't we just resolve this one at least then my family could at

least go some where again. My husband has pretty much refused to go anywhere

that we all have to go due to his ACCIDENTS. Not fair to the other kids that

didn't do anything wrong but since he has a problem we never go anywhere we just

stay at home.

> >

> > Sorry to be so long and thanks for listening if there is anyone still

reading this I just don't know what to do!!!!! Can anyone help me is there

anything I can do to get him going in the toilet like everyone else.

> >

> > ------------ --------- --------- ------

> >

August 2, 2009

Thanks, !

To: miralax Sent: Sunday, August 2, 2009 1:39:27 AMSubject: Re: To - Thoughtful House

,I have not heard anything negative about Thoughtful House. I have heard the doctors there are very good at what they do and they will listen to you, work with you to come up with a treatment plan for your child. They also have a nutritionist in house to work with you and they also follow DAN! protocol. Dr. Jepson who is based out in Texas has written a book called "Changing the course of Autism" and Dr. Krigsman based out in NYC is a GI specialist who is also a pediatrician. If you have specific questions you can post them to the yahoo group below. Currently, I believe in that group, there are about maybe 3-4 families that are receiving treatments through Thoughtful House and you maybe able to get more answers by posting your questions there. http://health. groups.yahoo. com/group/ NoVa_FamiliesTre atingAutism/Hope

that helps!> >> > Yes!!!! I get told the same thing after clean outs his colon is all

stretched out just keep going and then he will start going normally, well when I keep giving the laxatives with or without we still get no formed stools and he gets backed up again. In the last few months he is starting to have a distended stomach which is releived when they clean him out. His GI did one in May with golytely and then did a colonoscopy. Then sent him to surgeon, she did her own manual clean out and did some rectal biopsies but we are back to accidents all the time right after it.. You can't tell me someone will "poop" in their pants and have no knowledge of it, which she has assured me that he is so stretched out that he doesn't have any control over it, HOW IS THAT NOT A PROBLEM that warrants further investigation. I do what they say and after a few months he is right back to square one all over again. I don't think they listen when I tell him what his life is like.> > > > > > > > ____________

_________ _________ __> > From: Barnett <dkbar711@ .>> > To: miralax@yahoogroups .com> > Sent: Friday, July 31, 2009 10:48:00 PM> > Subject: Re: Help!!!! I need help for my DS who is 11.> > > > > > I have no answers as to what to do, but wanted to tell you I know what you're going through. My 7 yr. old grandson has had accidents since he was 3 (no accidents from 2-3) and all we've been told is give Miralax, sometimes MOM, and have him sit on the commode after he eats. I took him to play with a friend recently and overheard his 5 year old sister telling the friend that he has accidents in his pants all the time. After reading these posts, we have started giving him the olive oil and benefiber and cutting down on the Miralax.. He has an appointment Aug.. 10 with his gi specialist, and I'm thinking hospitalization and tests will be the next step. 4 years of Miralax

and constantly focusing on sitting on the commode after eating and no improvement whatsoever. What gets me is we don't know if he's unable to stop the accidents because he's receiving so much Miralax or because he is impacted and the colon can't go back to normal. Without having an> > xray frequently, there's no way to tell if he's constipated or not. Like your son, my grandson goes every day, sometimes 3-4 times a day. The confusing thing is, he always had gone every day, even when this problem first started and before the Miralax. But after the accidents started, medical exams and xrays confirmed that he was totally backed up. Now we're told that the colon is probably stretched and the only way to go back is to keep giving Miralax to keep him cleaned out. > > > > I do everything I can when he's with me to get him to drink water, eat veggies and fruits and my daughter is doing the same when he goes home. He's enjoying

salads with lots of olive oil on them. The olive oil has just been started within the last few days. I'm putting Benefiber in his cereal. I'm going to talk to the gi dr. when we go about the alternatives to Miralax. And I really think we won't have a good idea what's going on with his colon until he has the tests. I want this problem to go away and I'm getting very discouraged. I know we have to do whatever it takes to help him get better. But I, like you, don't know what that is.> > > > I really empathize with you and pray that you, and all of us dealing with this problem, find the answers.> > > > > > > > ____________ _________ _________ __> > From: bjbartram <bjbartramyahoo (DOT) com>> > To: miralax@yahoogroups .com> > Sent: Friday, July 31, 2009 9:23:01 PM> > Subject: Help!!!! I need help for my DS who is 11.> > > > I

know everyone is talking about constipation but my son who is still incontient, constantly goes. The docs all say constipation but it is hard to say that someone who has to be changed up to 10 times a day is constipated. His poop is still unformed--tarry- like substance. He has had a clean out in May and then another in June from the Ped. Surgeon. He was tested for CD and HS both were negative they said. He has had the blood test for Celiacs--again negative. I have tried for years to find out what is going on with him but no one seems to care. The ped. gi just wants to have the ACES procedure done on him the surgeon has now performed her own tests and says he is not a canidate for this. Now I am back to sqaure one with no one else to turn to. Since both have shuffled him back and forth both have said they have done all they can do. I have been taking him to docs since he was 3 for this. All anyone ever says is "he is constipated give him> >

Miralax and put him on the toilet after every meal" well this doesn't work.. He is supposed to take Miralax 2 times a day and senekot says ped gi--doesn't work but after quite a few days he will get explosive diareha that ends up everywhere. The surgeon says to give him a 1000mL saline enema every night well we did that can't get it all just squirts out of the rectum while it is still draining in. Then that it!!! Not to mention that he has behvior problems with other children which I am sure comes from the fact that most kids just make fun of him for "pooping his pants" and for wearing Pull Ups" which created the problem of him sneaking his older and younger brothers undies. We have even caught him using his little sisters panties. The problem is when he has an accident it eats the bottoms out of the undies. I have bought enough underwear for him to furnish a 1000 kids with undies for life I finally gave up and say NO MORE UNDERWEAR you have to>

> wear the pull ups and he has none that is why he is after everyone else's. Can someone tell me what I am doing wrong, I managed to get the older and the two younger ones to be potty trained why can't I get this one. He has so many problems, why can't we just resolve this one at least then my family could at least go some where again. My husband has pretty much refused to go anywhere that we all have to go due to his ACCIDENTS. Not fair to the other kids that didn't do anything wrong but since he has a problem we never go anywhere we just stay at home.> > > > Sorry to be so long and thanks for listening if there is anyone still reading this I just don't know what to do!!!!! Can anyone help me is there anything I can do to get him going in the toilet like everyone else.> > > > > > > > ------------ --------- --------- ------> > > >

August 5, 2009

You are very welcome ! Good Luck!

> > >

> > > Yes!!!! I get told the same thing after clean outs his colon is all