Tulsa Oklahoma anyone?????

[Guest guest]

I know it is hereditary - so I was semi-prepared for it when my son called and

told me his symptoms.... :-(

And I knew his health history fits a child with Chiari. (he is now 26)

He is the only one who didn't know that he was describing Chiari.

I have the names of two NSG's from Roz (thank you)

But I am curious - do any of y'all who live in Tulsa have a PCP who 'gets'

Chiari????

And if so - could you please email me and give me his/her name???

He needs to apply for Insure Oklahoma and they require a name up front on the

application.

And by any chance - is there a support group up there for Chiari?

I am fixing to go up to Colorado for another surgery myself -

So I cannot go up there and walk him through getting tested.

I want to make sure he is seeing doctors that know Chiari.

Let go....Let God.

Very hard to do on this one.

Have a blessed day!

Terry Lynne