Update

[Guest guest]

Thanks for the update and the good news! It all sounds

positive at this point. I will continue my good

thoughts and prayers as I am sure everyone else will

also.

Dena in So CA

Mother (84) Living with LBD in NH

--- ljrob09 wrote:

> Just a quick update on my dad in the hospital.

> We're still hanging

> on. He seems to be responding to the treatments for

> bacteria (bladder

> & possible sepsis). Apparently anemia caused

> hypoxia which contributed

> to his heart attack. So they are also working on

> the anemia. Not much

> they can do for the heart & congestive heart

> failure, except try to

> manage it with medicine. So overall, we are doing

> better than

> expected. Still a few more days to go in the

> hospital.

>

> Thank you for your thoughts, wishes and prayers.

> Pretty powerful stuff!

>

>

> Daughter of Bill, 91

>

>

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[Guest guest]

Hi Nina,

Congratulations on finding someone who sounds like she may be just what

you were looking for. If things work out maybe she can stay on as your

caregiver when your regular housekeeper comes back!

Hope it all works out for you & your mom.

Daughter of Bill, 91

[Guest guest]

Dear Nina, It is great to hear from you and get the update. We've been thinking

of you. How fortunate to find this temporary housekeeper. Who knows, if she has

NH experience, perhaps she can segue into the caregiver role. Anybody who

recognizes meds, understands the value of touch (her massage for example), and

is kind-heaarted and thoughtful - is a real find.

How is your mom doing? What has happened with her meds? Did you find a new

local MD and get some of the check-ups done?

You and your mom remain in my thoughts and prayers. You are such a caring

daughter!

Peace, Lin

Nina Jordan wrote:

Hey everyone,

Wow , I have loads of catching up to do! I havent emailed in a while.... I

remember wanting to reply to emails a while back but I cant even remember which

ones they were.So please dont hate me if I didnt reply back

The past week has been crazy busy! We have been interviewing nurses left rigth

and center, so far we havent really found a nurse that we're completely

comfortable with! Its SO much more difficult than I thought. The good news is I

managed to track down a physio therapest who agreed to come over a few times a

weeks since my mother has been extremely week all over.

The worst part of the past week was trying to find a part time house keeper who

could fill in for the 6 wks our present house keeper will be away. I did alot of

searching in advance and I found someone to fill in. I asked her to start a

little before our house keeper left so that she would be able to sort of ease in

into our routine and be able to take care of mom while im at work . she seemed

to catch on really quickly and did great for the first 2 days she started

working with us. HOWEVER, yesterday , when we woke up in the morning I found

that she had taken all her stuff , turned off her cell phone and ran away! I

think she got a little scared from one of my moms raging fits. In any case , i

stayed home from work and started calling every agency I could find in the

newspaper , nobody really wanted to give us a housekeeper on a part time basis.

Funnily enough , I started to give up by mid day and had no idea what to do. My

sister came over and gave me an old newspaper she

had found on the floor of her office, so i called 2 more agencies , one of

which told me that they had someone , but they asked for alot of money! Anyway ,

i was desperate, I ran to the agency and there she was, shes sooo petite and so

thin, not for anything but i was a little worried about how she would handle if

my mom fell or smth. ANYWAY , long story short, it turns out she has nursing

home experience! shes really sweet and was able to identify aricept as soon as

she saw the pill. She says she already dealt with Alzheimers patients so thats a

good sign too. We'll see what happens.Also this morning she was massaging my

mothers legs because she was in alot of pain, i thought that was exteremely

sweet. I guess the first girls running away was a blessing in disguise.

Talk to you guys later, have to get back to work , ive been lucky in that the HR

has been really sympathetic with me and agreed to give me some flexible hours

this week.

Hugs

Nina

MOther aged 60 diagnosed last year with LBD

Welcome to LBDcaregivers.

[Guest guest]

We made our way home today. Im a little down but well be ok! Our lil guy well be

having surgery 1st week of september! He well be having colostimy/ostimy....so

many terms, and the dreaded pull thru at the same time. Instead of original 3

stages of surgries, now only two if no complications. This is a bitter sweet for

us. Avoided for so long but cant be avoided at this point. But one thing I can

say is that when they mentioned this when he 1st became ill, I know my son would

have been high risk for surgries and now I can say due to this group and

learning about natural over the years, he is a bundle of health and I feel he

well be able to take this on much better/recovery! I feel in my heart if this

would have been done befor all the natural knowledge/healing he couldnt have

endured it. His surgeon told us that due to the hirschsprungs the good

intestines is overworking and with time well keep getting worse. I well update

at the time! Jennie<><

[Guest guest]

Jennie, I will keep your son and your family in my prayers. I know what you mean when you say that the natural healing has made your son strong enough to endure surgery. Natural healing is so powerful and I am very thankful that your little guy has benefited.

Susie ~

 

We made our way home today. Im a little down but well be ok! Our lil guy well be having surgery 1st week of september! He well be having colostimy/ostimy....so many terms, and the dreaded pull thru at the same time. Instead of original 3 stages of surgries, now only two if no complications. This is a bitter sweet for us. Avoided for so long but cant be avoided at this point. But one thing I can say is that when they mentioned this when he 1st became ill, I know my son would have been high risk for surgries and now I can say due to this group and learning about natural over the years, he is a bundle of health and I feel he well be able to take this on much better/recovery! I feel in my heart if this would have been done befor all the natural knowledge/healing he couldnt have endured it. His surgeon told us that due to the hirschsprungs the good intestines is overworking and with time well keep getting worse. I well update at the time! Jennie<><

-- “Be careful reading medical books. You might die of a mis-print.” -- Mark Twain

[Guest guest]

Jennie,

My thoughts and prayers are with your little guy and your family. Everything will be OK; he will

recover and continue to be a bundle of health!

a

Update

We made our way home today. Im a little down but well be ok! Our lil guy well be having surgery 1st week of september! He well be having colostimy/ostimy....so many terms, and the dreaded pull thru at the same time. Instead of original 3 stages of surgries, now only two if no complications. This is a bitter sweet for us. Avoided for so long but cant be avoided at this point. But one thing I can say is that when they mentioned this when he 1st became ill, I know my son would have been high risk for surgries and now I can say due to this group and learning about natural over the years, he is a bundle of health and I feel he well be able to take this on much better/recovery! I feel in my heart if this would have been done befor all the natural knowledge/healing he couldnt have endured it. His surgeon told us that due to the hirschsprungs the good intestines is overworking and with time well keep getting worse. I well update at the time! Jennie<><

[Guest guest]

Dear Jennie,

Your post is very inspiring. I am sorry that this is necesarry. But

your attitude is very supportive of your son, and that is what he needs

most. I can only feel that way about my sons' disease too - that I

can't prevent him from requiring some surgeries and medications, but I

have made him as strong as I can to get through all that. So thank

you for writing about your feelings so far in this process. I hope all

goes well in the next month as you all get ready.

sharry

Jennie wrote:

We made our way home today. Im a little down but well be ok! Our

lil guy well be having surgery 1st week of september! He well be having

colostimy/ostimy....so many terms, and the dreaded pull thru at

the same time. Instead of original 3 stages of surgries, now only two

if no complications. This is a bitter sweet for us. Avoided for so long

but cant be avoided at this point. But one thing I can say is that when

they mentioned this when he 1st became ill, I know my son would have

been high risk for surgries and now I can say due to this group and

learning about natural over the years, he is a bundle of health and I

feel he well be able to take this on much better/recovery! I feel in my

heart if this would have been done befor all the natural

knowledge/healing he couldnt have endured it. His surgeon told us that

due to the hirschsprungs the good intestines is overworking and with

time well keep getting worse. I well update at the time!

Jennie<><

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