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I so agree with you and you write so well. My Grandmother (not LBD)

stated her wishes as she aged and we did as she wanted (she

threatened to come and haunt us) My Mother and I have both signed our

POA and anything else we could find. My bother had to let his MIL go

as she wanted. There is a time for dying and artificial means to keep

it going (when there is not hope) simply prolong the agony.

My .02 worth

Sharon

>

>

> What a heart wrenching experience, Sandie. I am sure it ripped

your heart

> out, but you are, and were, right. I feel for you in your loss

that occurred as

> of today, but you are also a strong lady with a head on your

shoulders. I

> really appreciate you in helping us as we grope.

>

> Love you,

> Imogene

>

> In a message dated 9/19/2008 4:37:28 PM Central Daylight Time,

> sanclown@... writes:

>

> Jannis-

> This post didn't come through for me, for some unknown reason, so

I am

> thankful Jayn replied and left the message with it. I also agree

with what Jayn

> wrote about true love.

> I also agree with what you said. Atleast 2 1/2 years before my

dad passed

> away I was faced with a feeding tube for my dad. An incompetent

doctor that

> didn't make it to the swallow evaluations done on my dad while he

was

> hospitalized had no idea my dad couldn't swallow anything. So

when I found the

> hospital was going to release him with no means of eating or

drinking I had a 5

> minute decision to make - I opted for the PEG tube. My dad was

able to gain

> weight back he had lost, was able to walk again, had the tube

removed and

> lived on 2 1/2 years after the tube had been removed.

> Then came the time when my dad was refusing to eat. He would turn

his head,

> clench his jaws, and even flail his arms at the utensil as I tried

to feed

> him. I had the tray taken away at breakfast and by the lunch time

meal I

> figured it out. My dad didn't want to eat. He was going to win

his battle. I

> took my dad's hands, looked him in the eyes and said that I knew

what he was

> doing and " it " was ok with me. I would support him with this

decision. He

> looked me straight in the eyes, big and blue as his were, and we

understood

> one another. We cried together. A meeting was called at this

hospital and

> dietary was included. The final decision was mine and when asked

if I wanted a

> PEG tube or IV fluids for my dad I said...no. The doctors

agreed. I

> questioned what would we gain sustaining my dad's life when it was

apparent he knew

> what he wanted. Sure, if he showed an interest in food or liquids

I and the

> staff were prepared to give it to him and he was still offered

nutrition at

> each meal but not forced. Within a 2-3 week period my dad had

less than a

> half cup of a chocolate nutrition drink. That was 6 years ago

earlier this

> month and my dad won his battle with LBD on Sept. 20, 2002.

> It is a personal decision and one of the hardest I have ever

faced. I know

> I honored my dad with what he wanted. He fought a hard 7 years

with LBD and

> was able to win the battle.

> My heart goes out to each and every person who has a loved one

struggling

> with LBD and for those whom have lost their loved ones.

> Huge hugs to all with many prayers-

> Sandie

> Des Moines, IA

> dad, Merle, passed from LBD 9-20-02, at age 65

>

>

>

>

>

>

>

>

>

> **************Looking for simple solutions to your real-life

financial

> challenges? Check out WalletPop for the latest news and

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>

>

>

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