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At 10:48 AM 29/01/00 +1100, you wrote:

>

>> andria is a delightful and fun child who shows great love to

everyone around her. We hope as she grows she will live a happy and normal

life. However, only

time will tell, but we feel she will survive as she is such a fighter.<<

Welcome to our wonderful, extended family! I think you summed up ALL

CHARGErs with the above paragraph. They are indeed delightful and loving.

They seem to know how to grab a hold of your heart. Good luck with all

that is to come and the best for the future.

Tiena

Mum to Mikaela (12), Cady (CHaRgE 10), Paige (8)

and wife to Arron

Brisbane, Australia

Home of the 2000 Australasian CHARGE Conference

" See you in 2000 "

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  • 3 weeks later...

.

I was just reading the e-mail on my list and found my message to you was

undeliverable to you due to some technical jargon ? Anyway, not to worry,

here's a copy of the original.

Thanks for taking the time to welcome our family into your home. When I

purchased a computer and started playing with it, little did I think that it

would me to CHARGE One List.

one day. and received " CHARGE Accounts " every 3 months and

our first knowledge of you was in the winter 99 issue. When we first read your

letter it brough tears to our eyes, and even reading it as I'm typeing this

letter it still has the same effect on us. We were told early that CHARGE was so

rare, the chances of having a second child in the same family was so remote, but

your two certainly stops that line of thinking. To lose at 6 months would

be so hard for you and Jeff, but to then to have another baby with CHARGE, well

what can we say. Jillian seems to bring you both so much joy and happiness to

your life and Ibet that is such a support for you and Jillian, much the

same way that Emma is supportive of andria

despite their young ages.

I have been amazed this last week at the news of 2 sets of twins all with

CHARGE as well as all the talk about it being genetic and environmetal ? Your

letter of 8 th Feb. was very much to the point.

Vince & Carol LAMBERT parents to & Anthon

Grandparents to Emma 4 3/4 & andria 31 months. w/CHARGE.

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