Re: Saddest day of my life

[Guest guest]

DEBBY--Thank you so much for your lovely note; the words you said

about GBIC will always make me feel good. I am, again, so sorry for

Jimmy; I figured the service would be soon and I knew you'd be

grieving--will always be grieving for him. I wish I had an answer

about why this happened. I wish I could explain it... (At least, with

my dad, I well knew he'd smoked for 45 years...) I'll pray for Jimmy

and you both. I hate to see you so hurt!

Love, Ava Lee

In GastricBypass-InfoCentral@y..., " Debby Rose " <rosebod@h...> wrote:

>

>

>

>

> Hello friends

> This has been the sadest and toughest day of my life. We burried

my sweet

> Jimmy today. Ive never cried so hard in my life. They played his

album of

> how great thou art and I cried buckets. Seeing him lying in that

casket

> tore me up I lost it and had to be helped to sit down. Thank you

all for

> the articles and comforting words and love you have sent me and his

family.

> I passed them on to his parents. I had to speak at the funeral and

it was

> so hard. the church was packed. He was very loed and I DID find

some

> comfort in that. Some one on hear said that he was now my very own

special

> angle and im clinging to that. Thank you for letting me cry on

your

> shoulders, You all have helped me more than you will ever know.

I love

> all of you and amso gratefull to God for directingme to all of

you. Vic,

> Ava thanks for starting such a loving careing group. I WIll be a

member

> till the day I join my sweet Jimmy in heaven.

> Love Debby R

>

> _________________________________________________________________

> MSN Photos is the easiest way to share and print your photos:

> http://photos.msn.com/support/worldwide.aspx

[Guest guest]

We're here for you Jewel... we'll do everything we can to help you figure

out your puzzle....

We're here, too, if all you need to do at a given time is scream.

Most of us have been were you are, but none of us for as long as you've

been there. We understand VERY well how much it sucks.... You know that!

I'm here too, Jewel... You know where to find me....

Topper () *nearly 14 years post RAI*

On Fri, 07 Nov 2003 09:43:30 -0000 " Jewel Dartt "

writes:

> I know it's been awhile since I posted on this list. I have been

> reading a lot of the back posts on all the thyroid lists I belong

> too

> and trying to get meds optimized on Armour. Finally figuring out my

> adrenals was causing me problems and addressing that problem. Doing

> good until my t4 dropped like a rock and became very ill and hypo.

> So

> I surmised I am not one of those who do well on a low free t4. So

> now

> trying to optimize by supplementing with t4 with armour. Went

> hyper..sigh and I'm exhausted...from the seesawing back and forth

> having symptoms of both hyper and hypo.

> Sigh... last night due to edema being so bad, my dh had to cut off

> my

> wedding rings. I cried as he did so because even though I knew it

> had

> to be done due to cutting off my circulation...it was very hard

> emotionally. I'm still working on trying to optimize meds and I am

> discovering that everybody is different. There are no hard and fast

> rules with this disease. What works for one person may not work for

> another. There are no quick fixes...not for me anyway.

> I envy those of you you have found that right combo or right med for

> you, but I also am happy for you because it gives me hope that there

> will be light at the end of this long tunnel.

> As my dh cut the rings from my finger, my tears fell over his hand

> as

> I whispered to him all I want is to be normal again. But I'm so

> tired

> of trying...

> He hugged me close and said " I love you and will always be here for

> you in sickness and in health. "

> I may be sick but I thank God everyday for a husband who

> understands...The fight to be well is not over yet! I just have to

> retreat a bit and regroup....

> I already know I have to do this myself because everytime a doctor

> is

> involved they really screw me up!

> I'm Post Grave/RAI with no thyroid function for 13 years. my disease

> is called brittle. Meaning hormones have to be exactly right to feel

> well. Kinda hard to get exactly right with no function!

> Now I know why two doctors a few years ago fired me. They claimed my

> thyroid disease was to severe and complicated.

> The truth is they didn't want to try and do the right tests and work

> to get me on the right meds. They wanted to do a yearly tsh and

> write

> out a script for t4 and send me on my way along with a script for

> anti depressants. I'm sure most of us have been through this:}

> Okay, enough self-pity. I really just needed to share with others

> who

> have suffered and those who may still be suffering and understand

> what it is like...to just want your life back...

> Take Care

> Jewel Dartt

> http://www.geocities.com/jkdartt

[Guest guest]

I hear you Jewel. I am trying to do the same thing right now. I tout

Armour and the natural thyroid meds because the basic ingredients are the

right ones, but there's no magic thing about it. I, too, cannot go " poof "

and have back my former athletic self that I was. I'm working with mine

right now, and I'm getting the feeling that I'm probably going to add back

the T4, but it's going to be the brand that I consider safest for ME, not

someone else. It takes so much time to find that formula, and it's not the

same one for everyone. I know that I felt really lousy on synthetics alone,

so that's why I made the change. I feel that it was the right one, but I

also knew that it would be a long road to hoe. Have to be very careful and

just keep getting those labs, etc... to fine tune or whatever you call it.

Mine, too, I found out for the first time in forever is a low T4 in

comparison to my T3. Some of that could have been the initial phase of

dosing on Armour and having cut out the T4 med so soon, due to allergy. We

just have to continue to work on it. Certain aspects of me are better,

others aren't yet. I don't tout thyroid surgery, but sometimes I'd like to

know exactly where I stand with this see-sawing thing, with the Hashi's.

It's been 10 yrs, and I know that this thing is still sputtering up-down,

up-down. That's discouraging withing itself. I don't have insurance, so

I've got to keep coughing up the money for my own tests, etc....

Saddest day of my life

> I know it's been awhile since I posted on this list. I have been

> reading a lot of the back posts on all the thyroid lists I belong too

> and trying to get meds optimized on Armour. Finally figuring out my

> adrenals was causing me problems and addressing that problem. Doing

> good until my t4 dropped like a rock and became very ill and hypo. So

> I surmised I am not one of those who do well on a low free t4. So now

> trying to optimize by supplementing with t4 with armour. Went

> hyper..sigh and I'm exhausted...from the seesawing back and forth

> having symtoms of both hyper and hypo.

> Sigh... last night due to edema being so bad, my dh had to cut off my

> wedding rings. I cried as he did so because even though I knew it had

> to be done due to cutting off my circulation...it was very hard

> emotionally. I'm still working on trying to optimize meds and I am

> discovering that everybody is different. There are no hard and fast

> rules with this disease. What works for one person may not work for

> another. There are no quick fixes...not for me anyway.

> I envy those of you you have found that right combo or right med for

> you, but I also am happy for you because it gives me hope that there

> will be light at the end of this long tunnel.

> As my dh cut the rings from my finger, my tears fell over his hand as

> I whispered to him all I want is to be normal again. But I'm so tired

> of trying...

> He hugged me close and said " I love you and will always be here for

> you in sickness and in health. "

> I may be sick but I thank God everyday for a husband who

> understands...The fight to be well is not over yet! I just have to

> retreat a bit and regroup....

> I already know I have to do this myself because everytime a doctor is

> involved they really screw me up!

> I'm Post Grave/RAI with no thyroid function for 13 years. my disease

> is called brittle. Meaning hormones have to be exactly right to feel

> well. Kinda hard to get exactly right with no function!

> Now I know why two doctors a few years ago fired me. They claimed my

> thyroid disease was to severe and complicated.

> The truth is they didn't want to try and do the right tests and work

> to get me on the right meds. They wanted to do a yearly tsh and write

> out a script for t4 and send me on my way along with a script for

> anti depressants. I'm sure most of us have been through this:}

> Okay, enough self-pity. I really just needed to share with others who

> have suffered and those who may still be suffering and understand

> what it is like...to just want your life back...

> Take Care

> Jewel Dartt

> http://www.geocities.com/jkdartt

[Guest guest]

I'm here for you also Jewel! You can vent to me anytime at docwhite@... .What a wonderful husband you have.I had to have my wedding ring cut off in emergency room once because I was bleeding to death and they had the IV'S wide open.No matter what the reason,it feel's like they're cutting into your heart.

Love & Prayer's

Shirley

Re: Saddest day of my life

We're here for you Jewel... we'll do everything we can to help you figureout your puzzle....We're here, too, if all you need to do at a given time is scream.Most of us have been were you are, but none of us for as long as you'vebeen there. We understand VERY well how much it sucks.... You know that!I'm here too, Jewel... You know where to find me....Topper () *nearly 14 years post RAI*On Fri, 07 Nov 2003 09:43:30 -0000 "Jewel Dartt" writes:> I know it's been awhile since I posted on this list. I have been > reading a lot of the back posts on all the thyroid lists I belong > too > and trying to get meds optimized on Armour. Finally figuring out my > adrenals was causing me problems and addressing that problem. Doing > good until my t4 dropped like a rock and became very ill and hypo. > So > I surmised I am not one of those who do well on a low free t4. So > now > trying to optimize by supplementing with t4 with armour. Went > hyper..sigh and I'm exhausted...from the seesawing back and forth > having symptoms of both hyper and hypo.> Sigh... last night due to edema being so bad, my dh had to cut off > my > wedding rings. I cried as he did so because even though I knew it > had > to be done due to cutting off my circulation...it was very hard > emotionally. I'm still working on trying to optimize meds and I am > discovering that everybody is different. There are no hard and fast > rules with this disease. What works for one person may not work for > another. There are no quick fixes...not for me anyway.> I envy those of you you have found that right combo or right med for > you, but I also am happy for you because it gives me hope that there > will be light at the end of this long tunnel.> As my dh cut the rings from my finger, my tears fell over his hand > as > I whispered to him all I want is to be normal again. But I'm so > tired > of trying...> He hugged me close and said "I love you and will always be here for > you in sickness and in health."> I may be sick but I thank God everyday for a husband who > understands...The fight to be well is not over yet! I just have to > retreat a bit and regroup.... > I already know I have to do this myself because everytime a doctor > is > involved they really screw me up!> I'm Post Grave/RAI with no thyroid function for 13 years. my disease > is called brittle. Meaning hormones have to be exactly right to feel > well. Kinda hard to get exactly right with no function!> Now I know why two doctors a few years ago fired me. They claimed my > thyroid disease was to severe and complicated. > The truth is they didn't want to try and do the right tests and work > to get me on the right meds. They wanted to do a yearly tsh and > write > out a script for t4 and send me on my way along with a script for > anti depressants. I'm sure most of us have been through this:} > Okay, enough self-pity. I really just needed to share with others > who > have suffered and those who may still be suffering and understand > what it is like...to just want your life back... > Take Care> Jewel Dartt> http://www.geocities.com/jkdartt

[Guest guest]

> We're here for you Jewel... we'll do everything we can to help you

figure

> out your puzzle....

>

> We're here, too, if all you need to do at a given time is scream.

>

> Most of us have been were you are, but none of us for as long as

you've

> been there. We understand VERY well how much it sucks.... You know

that!

>

> I'm here too, Jewel... You know where to find me....

>

> Topper () *nearly 14 years post RAI*

>

>

without you and your e-mails in trying to help me I would have

already given up. The worst part of this disease is it robbing me of

my mind. The brain fog, the anxiety, the depression, lack of

motivation, short term memory loss. Taking away my ability to write!

That really ticks me off:]

I will get better, but god knows that I can't go by what other people

are doing. I have to find that place myself with a combination of

Armour and t4 right for my body and I'm going to somehow.

Thank you and also . Right now, I know I'm on the right

supplements and so I feel, even with my setbacks, I will get there.

If I don't...well I'm not going to think that way... it's too easy

when you feel so bad and your brain isn't functioning as well as you

need it too. I forgot how good it felt just for others to understand.

My wedding rings sit in my Jewel Box and someday I will be able to

wear them again.

Take care and be well

Jewel Dartt

http://www.geocities.com/jkdartt

[Guest guest]

> I hear you Jewel. I am trying to do the same thing right now. I

tout

> Armour and the natural thyroid meds because the basic ingredients

are the

> right ones, but there's no magic thing about it. I, too, cannot

go " poof "

> and have back my former athletic self that I was. I'm working with

mine

> right now, and I'm getting the feeling that I'm probably going to

add back

> the T4, but it's going to be the brand that I consider safest for

ME, not

> someone else. It takes so much time to find that formula, and it's

not the

> same one for everyone. I know that I felt really lousy on

synthetics alone,

> so that's why I made the change. I feel that it was the right one,

but I

> also knew that it would be a long road to hoe. Have to be very

careful and

> just keep getting those labs, etc... to fine tune or whatever you

call it.

> Mine, too, I found out for the first time in forever is a low T4 in

> comparison to my T3. Some of that could have been the initial

phase of

> dosing on Armour and having cut out the T4 med so soon, due to

allergy. We

> just have to continue to work on it. Certain aspects of me are

better,

> others aren't yet. I don't tout thyroid surgery, but sometimes I'd

like to

> know exactly where I stand with this see-sawing thing, with the

Hashi's.

> It's been 10 yrs, and I know that this thing is still sputtering up-

down,

> up-down. That's discouraging withing itself. I don't have

insurance, so

> I've got to keep coughing up the money for my own tests, etc....

>

>

It's nice to know someone else besides me is having the same

prolems... of trying to find the right combo or med for them.. makes

me feel not so alone or weird, But that is selfish of me because I

truly want you and anyone else with this awful disease to get better

and feel well again. I don't have insurance either and that does make

it harder and discouraging at times. Trust me, people without thyroid

function has just as much of a problem trying to stabize and feel

well again. At least I do. For some of us it's a long and terible

road to recovery. There are times when I just want to go back to t4

and forget about trying to recover my life again after so many years.

Live with the hypo symtoms, brain fog,loss of memory, agorphobia,

etc. The problem is, over the last few years these symtoms have

gotten worse and that scares me.

Quality of life is more important to me than Quantity...so I am

hanging in there. We will find that light at the end of the tunnel.

I'm praying for all of us that can't go by the numbers or by

protocals set by doctors or other people.

I wish there was one med or combo med that fit all. It would make it

so much easier...But our bodies are different and what works for one

doesn't always work for another. That is something I have learned in

this long process:}

> > Take Care and be well

> > Jewel Dartt

> > http://www.geocities.com/jkdartt

[Guest guest]

We're gonna figure you out Jewel.. we have a whole bunch of minds working

here... and even if we have some brain fog in the mix.... with our

combined efforts your puzzle WILL be solved... look at how far I have

come.... In one month will mark the one year anniversary of my last

crash..... when I couldn't even walk down the hall to the bathroom

without falling down.... when I couldn't even peel two potatoes....

Now... I lift light weights for 45 minutes every night. I do chair

dancing and other assorted seated exercises a dozen times a day....

Yesterday was a calendar marking day..... I roasted a turkey, made gravy,

made a batch of truffles cleaned up the whole kitchen and got everything

all put away and cleaned up, cooked up a batch of rice for my mini meals

along with a batch of pasta... set up my mini-meals for three days. All

WITHOUT sitting down while doing it! I never even got out the chair!!!!!

I did sit down with the cooled turkey to pull off the meat and dice it

and then I portioned it out with gravy and set that up to freeze over

night.... an 11 pound turkey got turned into 44 meat and gravy servings

for my mini meals. It's all frozen into muffin tins ready to knock out of

the tins to bag and put back in the freezer.

In between all of that I still did my computer work, answering emails and

working on setting up our new national web site, the one I was telling

you about... We hope to have our official launch this weekend!!!

Today I have the turkey carcass simmering on the stove with some of my

favorite herbs and spices to make turkey stock... It will be reduced down

to triple strength and then that will also be frozen into muffin tins and

then the chunks bagged up so I can grab the concentrated stock any time I

want to make soups, gravy or to season rice or pasta.

Just two months ago I still couldn't do my supper dishes without getting

a chair to sit at the sink!!!! I used a chair to sit at the stove to stir

pasta for the lousy 6 minutes it takes to cook, cause I couldnt' stand

that long!

You're gonna make it Jewel... You will, cause we're ALL gonna

help!!!!!!!!

Topper () aka ThyroGeek (one of the four ThyroMusketeers)

On Fri, 07 Nov 2003 19:35:53 -0000 " Jewel Dartt "

writes:

>

> without you and your e-mails in trying to help me I would have

> already given up. The worst part of this disease is it robbing me of

> my mind. The brain fog, the anxiety, the depression, lack of

> motivation, short term memory loss. Taking away my ability to write!

> That really ticks me off:]

> I will get better, but god knows that I can't go by what other

> people

> are doing. I have to find that place myself with a combination of

> Armour and t4 right for my body and I'm going to somehow.

> Thank you and also . Right now, I know I'm on the right

> supplements and so I feel, even with my setbacks, I will get there.

> If I don't...well I'm not going to think that way... it's too easy

> when you feel so bad and your brain isn't functioning as well as you

> need it too. I forgot how good it felt just for others to

> understand.

> My wedding rings sit in my Jewel Box and someday I will be able to

> wear them again.

> Take care and be well

> Jewel Dartt

> http://www.geocities.com/jkdartt

[Guest guest]

> I'm here for you also Jewel! You can vent to me anytime at

docwhite@c... .What a wonderful husband you have.I had to have my

wedding ring cut off in emergency room once because I was bleeding to

death and they had the IV'S wide open.No matter what the reason,it

feel's like they're cutting into your heart.

> Love & Prayer's

> Shirley

>

Thank you so much Shirley and you are so right. It felt like my

heart was being cut out. I have the best husband in the world. I

think that must be my compensation in this life, or I would have

already commited suicide a long time ago.

I have family members who prefer to think I'm a hyper-chondriac and

crazy, than to think I'm actually sick. Who in their right mind or

not... would want to be so ill and not have a normal or at least as

close to normal life as possible? I'm only 46 years old. I don't want

to feel like I'm 80. I want to live!!! Remember that old movie with

Hayworth? Jeez...lol I think I'm rambling .

Time to get off here and rest a bit...

Take care and be well

Jewel Dartt

http://www.geocities.com/jkdartt

> >