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So my son was on the Bactrim for Staph culture and on Symbicort 160 for

" asthma. " He got somewhat better after six weeks of abx and his PFTs were up so

we took him off Symbicort and put him on QVAR 80. He is still doing albuterol

nebs and using a vest for chest clearance, both twice a day. He occasionally has

low grade fevers but even more obvious, his really heavy phlegmy cough is back.

I am so frustrated, he has been really bad since early February.

We wanted him off the Symbicort since he is only 7 but would your guess be that

it helped keep inflammation down and he needs it? Or, could he still be

culturing bugs in his lungs? I am still so tempted to ask for a bronchoscopy to

figure this out once and for all. It has been recommended to us by two other CF

clinics but our CF doctor won't do it now since he seems so reactive. I wouldn't

call it reactive, I would call it sick.

I would love some input. I am all out of ideas but hate to see him suffer so

much.

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