Guest guest Posted January 15, 2010 Report Share Posted January 15, 2010 hi, i was sent to uc davis for follow up on high plumonary pressures. this dr said my blood work shows sceledurma and lupus my spelling is most likely wrong. i am told i need right heart caths done evey six months to a yr. they dont understand why my right heart caths show ok but my echos show moderate to severe plulmonay pressure and test show the damage from high lung pressure so it definately has been high. also since i have been taking demeral for body pain from chiari or eds it has been helpful for the pain and i am not one that likes to take meds. im very disapointed in myself to do this. it seems though that i have to take more demeral and i hope my dr is keping eye on the amounts being safe. he writes that it is for the chiari. also my lung dr put in his notes that i have the benign hypermobile type eds. it is so frustrating still that i have to get my reports to get infor they dont tell me much of. thanks, joyce Quote Link to comment Share on other sites More sharing options...
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