Re: blepharospasm- treatment (was: sounds like narcolepsy)

[Guest guest]

Hi Jan,

Blepharospasm is common in PD and PD-related disorders (like all

forms of dystonia). (Blepharitis is also common in PD and PD-related

disorders; its origins are completely different than

blepharospasm.) With blepharospasm, the eyelid involuntarily

closes. It may appear that the person is sleepy or uninterested. In

my dad's case (clinical DX of PSP), the eyelids remain closed for an

hour or more. The only treatment I'm aware of is botox injections.

I just forwarded you a local support group email from last year on

blepharospasm. It was part of a lecture on dystonia that another

support group member heard and shared their notes on.

Robin

>________________________________________________________________________

>

>8b. Re: sounds like narcolepsy/Robin

> Posted by: " Janet Colello " janetcolello@... janetcolello

> Date: Fri May 18, 2007 12:50 am ((PDT))

>

>Robin, I am curious, I have never heard of blepharospasm, but I have

>heard of many people here saying that their LOs don't open their

>eyes. My husband has blepharitis and takes medication, an ointment

>for his eyes once a month for redness and tearing. The lids on his

>eyes below and the inner lids above all turn red and the eyes turn a

>pink color. I thought it was pink eye at first, before he was dx. I

>found out that Blepharitis is common with LBD and maybe that is why

>the blepharospasm also is a part of it. Is there treatment for this?

>

>

>rriddle_travel wrote:

>This sounds like narcolepsy. In PD and related disorders, the

>sleep/wake cycle can get out of whack. I don't know how narcolepsy

>is diagnosed; you could investigate this through web research, by

>calling a narcolepsy research dept, or by asking a sleep center. You

>might treat narcolepsy the same way you do fatigue -- Provigil or

>other psychostimulants. Best bet is to call your mother's

>neurologist.

>

>Another possible explanation for the eyes not opening is

>blepharospasm. But that wouldn't account for her not being able to

>hear or seeming like she's asleep.

>

>Sounds like she was asleep! I don't think this is the beginning of

>the end.

>

>

>

> >

> > Hi Everyone

> >

> > Just wanted to let you all know about something that

> > seemed strange to me today. My husband is on vacation

> > and we went together to see my mom today. She was in

> > her usual position. Her eyes closed and slumped over

> > to one side. She did not open her eyes or try to open

> > them the whole time we were there, which is usual now.

> > But what was weird is I clapped my hands four or five

> > times right next to her and she did not respond at

> > all. I would think that if she was asleep she would

> > have at least flinched at least. I repeated this again

> > before we left and got the same no reaction. Can

> > someone go deaf all of a sudden? Or is this just

> > another phase of LBD? Even when she is shaken on the

> > shoulder she does not rouse. I do feel like this is

> > the beginning of the end, but I have felt like that so

> > many many times before, so I try not to speculate any

> > longer. It just gets me all upset and I get so anxious

> > and I can't do anything about it anyway so I try not

> > to go down that road. If anyone has any thoughts or

> > has watched this happen before, please let me know.

> >

> > Dena in So CA

> > Mother (84) Living with LBS in NH

> >

> >